Re: Digest Number 2787

[Guest guest]

Wow - someone else who really feels out of plac at the rheumatologists

office! thanks so much - i cried last night and at 4 this morning - my

husband is so great though - just stays with me and doesn't ask a thing.

Your words are a blessing this morning. Janet

Hi there Janet!

Welcome to the group! I wanted to give you a big (((((((((hug))))))))))

hello, your story really touched me because it could have been me writing

that, except for the part with the children (none yet).

I'm 26 years old and was diagnosed at 25. I had exactly the same reactions

as you at work " you're too young " " oh my grandmother had that in her knees "

" do you know you'll be crippled in a wheelchair " " yes my finger hurts too

sometimes " bla bla bla The latest and my absolute Favorite " no no no you

don't have it, my friend has Terminal Rheumatoid Arthritis - the serious

one!!??!! " and of course the eternal " but you look fine "

It's great that you have a good Rheumy, mine is great too - she just had a

baby and is on 4 months maternity leave, I'm happy for her but it's a bit

scary knowing she's not available, but she's wonderful! I had exactly the

same experience as you when I was first diagnosed, couldn't do anything! My

husband had to brush my hair (it was long and I had to cut it short),

squeeze my toothpaste out, open the fridge door any door actually, I

couldn't drive and he even had help me onto and off the loo (really

embarrassing)! I even had to wake him up to pull up the covers when I was

cold, it was just too painful and difficult. It was a nightmare and I was

terrified that was " it " , my life was over!

None of the NSAID's worked for me, I tried Voltaren, Mobic and a few others

and then she finally put me on Prednisone. The first dose didn't work so

well and I still had pain and stiffness so she increased the dose till..WOW!

It was a complete turnaround and within days I was feeling almost as good

as my old self, it was really amazing. I've been on Pred for about 16

months now and do get flares sometimes and but nothing close to how bad it

was in the beginning. I will start either Plaquenil or Methotrexate once

I've had a baby. I've been really lucky though that my RA is not as

aggressive as some of our friends here and has been well controlled by the

Pred.

Sorry this has been so long and I hope you weren't bored but I just wanted

to share my story to show you that there is hope and a diagnosis of RA

doesn't mean the end of your world, with the right treatment you should be

able to play in the grass with your little babies again and have a life

closer to the one you miss again.

It is very hard to accept that you have a chronic disease, don't feel bad if

you go through the " grief and acceptance " and back to the " anger and grief "

all over again a few times. It's so normal and we all go through the same

thing.

This group is an enormous help in dealing with this disease. You have on

tap support and information whenever you need it from people who honestly

care and truly know how you are feeling. We are all walking this road

together and are there to help. Just jump in and make yourself at home.

You are in my thoughts and prayers.

Hugs,

Heidi

(((((((((((((((Carol))))))))))))))))))

Oooooohhh noooooo! I missed your birthday! I'm a bit behind and only just

saw this HAPPY BIRTHDAY!!

I'm so sorry you had such a bad flare during your visit, gosh Arthur is a

real pain in the you know what sometimes. Thank goodness it's getting

better. Please try and get some rest now and get rid of this virus ASAP.

I'm so glad baby and his mom are doing well.

The jobs going well, as hectic as ever. I'm really looking forward to that

holiday! The Marriage Encounter we went on during the weekend was really an

incredible experience. Very emotional and interesting, almost life altering

LOL! One thing that came out of it was how much my job interferes with our

life/my health and amazingly enough during all the exercises we did I didn't

once bring it up as a top priority in my life, hopes and dreams even though

I am so devoted to it and it is definitely given priority over everything

else. Weird how life works out, anyway right now moving isn't really an

option but at least I can try to change the center of my universe more

towards something that is more important to me. Eventually I would love to

do volunteer work, something to help others. Hopefully Jules will one day

make enough for me to be able to give myself to something a bit more in line

with what I really want to do. Don't get me wrong, I really enjoy the

challenge of my job but it's such a superficial world - banking - just

talking about money all day. I love my clients as individuals and enjoy

trying to help them but let's be honest they are not exactly Needy if they

can bank with us LOL! The baby mission is in full swing :-) I'm trying not

to think about it but it's pretty much impossible - I'm far more relaxed

about it though - just have a good feeling that all those prayers are going

to work. The Non-smoking mission has been a great success! It will be 4

weeks on Wednesday and I don't even have cravings anymore, I haven't even

put on any weight, which I'm so relieved about! I will e-mail you my weight

loss for the week and am very stoked to report that I've lost another 2

pounds!

I hope you have a good safe trip home, enjoy your new floors!

Please let us know how your virus is going.

Sending love ((((((((((((((((dinosaur hugs))))))))))))))))))) and hot

chicken soup across the ocean.

Heidi

Hi Jeanine!

I'm so glad to hear you are feeling a little better after your surgery, I

hope that you continue to improve. Thanks for your prayers!

Hugs & prayers,

Heidi

Subject: the way to inner peace - OT funny

LOL Kathe!

Hi !

I'm so sorry to hear that you have IBS on top of the RA. It sounds like you

are on quiet a cocktail of meds, I hope you get some relief from them soon.

Please take & a's advice and check out if you are being looked

after properly, a second opinion on your medication might be a good idea.

You are in my thoughts and prayers, I will say special prayers that your

biopsy is negative.

Hugs,

Heidi

Subject: How Long Will It Take?

I'm so sorry your Dad is suffering so much, he really needs to see another

Doctor that will treat his pain and disease more aggressively. I think it's

wonderful that you care so much and have come to try and find out more,

welcome to the group!

What you are doing now and just listening and supporting your dad will do

wonders for him, he must be pretty scared right now. Like you say everyone

is different but I can tell you from my experience that it took about 3

months to find the right treatment and regain most of my before RA

activities and be almost pain free a lot of the time. I still work and have

a very active life. There is hope, please don't think that he will need to

be like this forever.

You and your family are in my prayers, please feel free to come on over and

ask anything you need, we are here to offer information and support to each

other and there are others here who come for support because someone they

love has RA.

Hugs,

Heidi

_________________________________________________________________

Join the world's largest e-mail service with MSN Hotmail.

http://www.hotmail.com

________________________________________________________________________

________________________________________________________________________

[Guest guest]

In a message dated 1/31/03 2:01:18 AM Pacific Standard Time, writes:

Harper - Ive got high platelet count, I havent yet found out what it means, my fault as I havent yet gone back to my doctor for so called 'further tests'. Cant face it at the moment.

Jan

Jan. Face it. Otherwise, the situation gets more difficult, not easier. If your high platelet count indicates anemia, you may be able to get started right away on something that will make you feel better. Make arrangements today.

Harper

[Guest guest]

Hi Terry,

I just got up from taking one of my so-called naps. A

lot of times, or should I say most of the time, I feel

extremely tired, sluggish, like gravity is weighing me

down, so I have the urge to just lie down and go to

sleep.

Fatigue was my main concern before finally being

diagnosed at the end of the year in 1999, after a

liver biopsy. Doctors were concerned because I had

elevated liver function test results, and didn't know

why since I told them I didn't drink and had not been

exposed to anybody with hepatitis.

It wasn't until I researched the disease myself that I

found out that extreme fatigue is one of the common

symptoms. While surprised that doctors weren't worried

about that when I told them how tired I was, it

relieved me to know that my constant fatigue was due

to an illness. Before, the doctors and other people

would tell me I needed to take vitamins and get more

active, but neither helped.

When your're tired and have no energy-you're tired and

have no energy! Age didn't matter because people would

often say I am " too young to be sleeping my life

away, " and to " get out there and do something. " My

mother always called me lazy so she brushed it off

when it probably could have been diagnosed sooner than

in my mid-twenties.

Now that I'm turning 30, and have been taking my

prescriptions the way I should, I still don't have any

energy, but I'm more aware now that it is not my

fault. And, I too was told that I look good, but I

thank people and only wish I felt as good.

Take care,

Delarita

--- wrote:

>

[Guest guest]

Wow, , sounds like you’ve found someone to really help. Would you please share the name of the sinus inhaler? Thanks! Message 1a. I hope this helps some of you. Posted by: " Roth " samsmom6602@... samsmom6602 Tue Sep 21, 2010 8:53 pm (PDT) Hi Everyone,Just thought I would let you know in my search to find a doctor that can actually help people with Samter's Triad I came across Dr. Tucker Allergist and Immunologist in West Palm Beach, Florida. Apparently people travel from all parts of the world to see Dr. Tucker with very rare allergy cases that most doctors can not help. Dr. Tucker who has got to be close to 80 years old actually worked on allergy cases with Max Samter, and knew him personally. I have not met a more worldly knowledgeable doctor in my life. He has written many books and is in Top Docs magazine. He says that most people with nasal polyps also have allergies to mold and yeast. I really never tested positive to allergies at all no matter which allergist did a skin test on me. Most doctors will not do the kind of skin testing Dr. Tucker does. I had close to 200 allergy tests done, and have to go back tomorrow for him to review my skin again. He immediately talked about mold and diet. Most people have Fungal Sinusitis which also causes a lot of fungus and yeast in other parts of the body, as well as sinuses. His recommendation is 30 day treatment of oral Fungal medication along with diet, and he took a Qvar 40mg rescue Asthma inhaler and turned it into a sinus inhaler for my nose. Two puffs in each nostril I felt immediate relief from sinus congestion. It also gets into the lungs from the nose so it works for both. I would have never known that. He studies the many different allergy reactions the body has to different things some allergens don't show up right away, and mainstream doctors only concentrate on Type I allergy reactions.He also recommends herbal anti - inflammatory, and Omega 3 fish oil. Whole food diet especially RAW fruits and veggies which I already knew. No dairy either which I also knew. He also recommended x-clear nasal spray. I will be seeing him again, but I am very hopeful of more he can do to help Samters.

[Guest guest]

Hi , Dr Tucker took a Qvar 40mg rescue Asthma inhaler and turned it into a nasal inhaler. Two puffs twice a day in each nostril. This is something he came up with to help and it worked it cleared my stuffiness right up. He has been using this method for many years since he said most nasal sprays don't work for people with Samters. he knew the compounds in every nasal spray and reasons why they don't work for people with Samters. Sent on the Sprint® Now Network from my BlackBerry®From: " Wadkins" <susanwadkins@...>Sender: samters Date: Wed, 22 Sep 2010 06:28:31 -0400<samters >Reply samters Subject: RE: Digest Number 2787 Wow, , sounds like you’ve found someone to really help. Would you please share the name of the sinus inhaler? Thanks! Message 1a. I hope this helps some of you. Posted by: " Roth " samsmom6602@... samsmom6602 Tue Sep 21, 2010 8:53 pm (PDT) Hi Everyone,Just thought I would let you know in my search to find a doctor that can actually help people with Samter's Triad I came across Dr. Tucker Allergist and Immunologist in West Palm Beach, Florida. Apparently people travel from all parts of the world to see Dr. Tucker with very rare allergy cases that most doctors can not help. Dr. Tucker who has got to be close to 80 years old actually worked on allergy cases with Max Samter, and knew him personally. I have not met a more worldly knowledgeable doctor in my life. He has written many books and is in Top Docs magazine. He says that most people with nasal polyps also have allergies to mold and yeast. I really never tested positive to allergies at all no matter which allergist did a skin test on me. Most doctors will not do the kind of skin testing Dr. Tucker does. I had close to 200 allergy tests done, and have to go back tomorrow for him to review my skin again. He immediately talked about mold and diet. Most people have Fungal Sinusitis which also causes a lot of fungus and yeast in other parts of the body, as well as sinuses. His recommendation is 30 day treatment of oral Fungal medication along with diet, and he took a Qvar 40mg rescue Asthma inhaler and turned it into a sinus inhaler for my nose. Two puffs in each nostril I felt immediate relief from sinus congestion. It also gets into the lungs from the nose so it works for both. I would have never known that. He studies the many different allergy reactions the body has to different things some allergens don't show up right away, and mainstream doctors only concentrate on Type I allergy reactions.He also recommends herbal anti - inflammatory, and Omega 3 fish oil. Whole food diet especially RAW fruits and veggies which I already knew. No dairy either which I also knew. He also recommended x-clear nasal spray. I will be seeing him again, but I am very hopeful of more he can do to help Samters.

[Guest guest]

There is also a book called Disease Prevention and Treatment Scientific Protocols that Integrate Mainstream and Alternative Medicine. I highly recommend this book Dr Tucker wrote the passages in the book on Allergies. Sent on the Sprint® Now Network from my BlackBerry®From: " Wadkins" <susanwadkins@...>Sender: samters Date: Wed, 22 Sep 2010 06:28:31 -0400<samters >Reply samters Subject: RE: Digest Number 2787 Wow, , sounds like you’ve found someone to really help. Would you please share the name of the sinus inhaler? Thanks! Message 1a. I hope this helps some of you. Posted by: " Roth " samsmom6602@... samsmom6602 Tue Sep 21, 2010 8:53 pm (PDT) Hi Everyone,Just thought I would let you know in my search to find a doctor that can actually help people with Samter's Triad I came across Dr. Tucker Allergist and Immunologist in West Palm Beach, Florida. Apparently people travel from all parts of the world to see Dr. Tucker with very rare allergy cases that most doctors can not help. Dr. Tucker who has got to be close to 80 years old actually worked on allergy cases with Max Samter, and knew him personally. I have not met a more worldly knowledgeable doctor in my life. He has written many books and is in Top Docs magazine. He says that most people with nasal polyps also have allergies to mold and yeast. I really never tested positive to allergies at all no matter which allergist did a skin test on me. Most doctors will not do the kind of skin testing Dr. Tucker does. I had close to 200 allergy tests done, and have to go back tomorrow for him to review my skin again. He immediately talked about mold and diet. Most people have Fungal Sinusitis which also causes a lot of fungus and yeast in other parts of the body, as well as sinuses. His recommendation is 30 day treatment of oral Fungal medication along with diet, and he took a Qvar 40mg rescue Asthma inhaler and turned it into a sinus inhaler for my nose. Two puffs in each nostril I felt immediate relief from sinus congestion. It also gets into the lungs from the nose so it works for both. I would have never known that. He studies the many different allergy reactions the body has to different things some allergens don't show up right away, and mainstream doctors only concentrate on Type I allergy reactions.He also recommends herbal anti - inflammatory, and Omega 3 fish oil. Whole food diet especially RAW fruits and veggies which I already knew. No dairy either which I also knew. He also recommended x-clear nasal spray. I will be seeing him again, but I am very hopeful of more he can do to help Samters.

[Guest guest]

What do he mean by “he knew the compounds in every nasal spray

and reasons why they don't work for people with Samters?” I wouldn’t be able

to function without my Veramyst! (though I do have bad allergies too) And

every ENT and allergist I have even seen has said I will always need a nasal

spray because to help keep the polyps from coming back.

K.

From:

samters [mailto:samters ] On Behalf Of samsmom6602@...

Sent: Wednesday, September 22, 2010 7:49 AM

samters

Subject: Re: Digest Number 2787

Hi ,

Dr Tucker took a Qvar 40mg rescue Asthma inhaler and turned it into a nasal

inhaler. Two puffs twice a day in each nostril. This is something he came up

with to help and it worked it cleared my stuffiness right up. He has been using

this method for many years since he said most nasal sprays don't work for

people with Samters. he knew the compounds in every nasal spray and reasons why

they don't work for people with Samters.

Sent on the Sprint® Now Network from my BlackBerry®

From: " Wadkins "

<susanwadkins@...>

Sender: samters

Date: Wed, 22 Sep 2010 06:28:31 -0400

<samters >

Replysamters

Subject: RE: Digest Number 2787

Wow, , sounds like

you’ve found someone to really help. Would you please share the name of

the sinus inhaler? Thanks!

Message

1a.

I

hope this helps some of you.

Posted by: " Roth " samsmom6602@...

samsmom6602

Tue Sep 21, 2010 8:53 pm (PDT)

Hi Everyone,

Just thought I would let you know in my search to find a doctor that can

actually help people with Samter's Triad I came across Dr. Tucker

Allergist and Immunologist in West Palm Beach, Florida. Apparently people

travel from all parts of the world to see Dr. Tucker with very rare allergy

cases that most doctors can not help. Dr. Tucker who has got to be close to 80

years old actually worked on allergy cases with Max Samter, and knew him

personally. I have not met a more worldly knowledgeable doctor in my life. He

has written many books and is in Top Docs magazine.

He says that most people with nasal polyps also have allergies to mold and

yeast. I really never tested positive to allergies at all no matter which

allergist did a skin test on me. Most doctors will not do the kind of skin

testing Dr. Tucker does. I had close to 200 allergy tests done, and have to go

back tomorrow for him to review my skin again. He immediately talked about mold

and diet. Most people have Fungal Sinusitis which also causes a lot of fungus

and yeast in other parts of the body, as well as sinuses. His recommendation is

30 day treatment of oral Fungal medication along with diet, and he took a Qvar

40mg rescue Asthma inhaler and turned it into a sinus inhaler for my nose. Two

puffs in each nostril I felt immediate relief from sinus congestion. It also

gets into the lungs from the nose so it works for both. I would have never

known

that. He studies the many different allergy reactions the body has to different

things some allergens don't show up right away, and mainstream doctors only

concentrate on Type I allergy reactions.

He also recommends herbal anti - inflammatory, and Omega 3 fish oil. Whole food

diet especially RAW fruits and veggies which I already knew. No dairy either

which I also knew. He also recommended x-clear nasal spray.

I will be seeing him again, but I am very hopeful of more he can do to help

Samters.

[Guest guest]

This is the most info I have received other than my own search ad to what samters is after my allergist said sounds like you have this Did this dr say anythingbto you about aspirin desentization?I'd travel to Florida to get a thorough allergy test done!!Thank you for sharingHope you continue to feel better and improveCan you smell?Sent from my iPhoneOn Sep 24, 2010, at 3:34 PM, " Keefer" <julie.keefer@...> wrote:

What do he mean by “he knew the compounds in every nasal spray

and reasons why they don't work for people with Samters?†I wouldn’t be able

to function without my Veramyst! (though I do have bad allergies too) And

every ENT and allergist I have even seen has said I will always need a nasal

spray because to help keep the polyps from coming back.

K.

From:

samters [mailto:samters ] On Behalf Of samsmom6602@...

Sent: Wednesday, September 22, 2010 7:49 AM

samters

Subject: Re: Digest Number 2787

Hi ,

Dr Tucker took a Qvar 40mg rescue Asthma inhaler and turned it into a nasal

inhaler. Two puffs twice a day in each nostril. This is something he came up

with to help and it worked it cleared my stuffiness right up. He has been using

this method for many years since he said most nasal sprays don't work for

people with Samters. he knew the compounds in every nasal spray and reasons why

they don't work for people with Samters.

Sent on the Sprint® Now Network from my BlackBerry®

From: " Wadkins"

<susanwadkins@...>

Sender: samters

Date: Wed, 22 Sep 2010 06:28:31 -0400

<samters >

Replysamters

Subject: RE: Digest Number 2787

Wow, , sounds like

you’ve found someone to really help. Would you please share the name of

the sinus inhaler? Thanks!

Message

1a.

I

hope this helps some of you.

Posted by: " Roth" samsmom6602@...

samsmom6602

Tue Sep 21, 2010 8:53 pm (PDT)

Hi Everyone,

Just thought I would let you know in my search to find a doctor that can

actually help people with Samter's Triad I came across Dr. Tucker

Allergist and Immunologist in West Palm Beach, Florida. Apparently people

travel from all parts of the world to see Dr. Tucker with very rare allergy

cases that most doctors can not help. Dr. Tucker who has got to be close to 80

years old actually worked on allergy cases with Max Samter, and knew him

personally. I have not met a more worldly knowledgeable doctor in my life. He

has written many books and is in Top Docs magazine.

He says that most people with nasal polyps also have allergies to mold and

yeast. I really never tested positive to allergies at all no matter which

allergist did a skin test on me. Most doctors will not do the kind of skin

testing Dr. Tucker does. I had close to 200 allergy tests done, and have to go

back tomorrow for him to review my skin again. He immediately talked about mold

and diet. Most people have Fungal Sinusitis which also causes a lot of fungus

and yeast in other parts of the body, as well as sinuses. His recommendation is

30 day treatment of oral Fungal medication along with diet, and he took a Qvar

40mg rescue Asthma inhaler and turned it into a sinus inhaler for my nose. Two

puffs in each nostril I felt immediate relief from sinus congestion. It also

gets into the lungs from the nose so it works for both. I would have never

known

that. He studies the many different allergy reactions the body has to different

things some allergens don't show up right away, and mainstream doctors only

concentrate on Type I allergy reactions.

He also recommends herbal anti - inflammatory, and Omega 3 fish oil. Whole food

diet especially RAW fruits and veggies which I already knew. No dairy either

which I also knew. He also recommended x-clear nasal spray.

I will be seeing him again, but I am very hopeful of more he can do to help

Samters.

[Guest guest]

Hi ! I am new to this group, have had Samter's for about 20 years, and

very happy to have discovered the group! Thanks for posting the great info re

doctor in Florida. It's so rare to find docs who are knowledgable about our

problem. I might even visit him he sounds so good.

>

> What do he mean by “he knew the compounds in every nasal spray and reasons

why they don't work for people with Samters?†I wouldn’t be able to

function without my Veramyst! (though I do have bad allergies too) And every

ENT and allergist I have even seen has said I will always need a nasal spray

because to help keep the polyps from coming back.

>

>

>

> K.

>

>

>

> From: samters [mailto:samters ] On Behalf Of

samsmom6602@...

> Sent: Wednesday, September 22, 2010 7:49 AM

> samters

> Subject: Re: Digest Number 2787

>

>

>

>

>

> Hi ,

>

> Dr Tucker took a Qvar 40mg rescue Asthma inhaler and turned it into a nasal

inhaler. Two puffs twice a day in each nostril. This is something he came up

with to help and it worked it cleared my stuffiness right up. He has been using

this method for many years since he said most nasal sprays don't work for people

with Samters. he knew the compounds in every nasal spray and reasons why they

don't work for people with Samters.

>

> Sent on the Sprint® Now Network from my BlackBerry®

>

> From: " Wadkins " <susanwadkins@...>

>

> Sender: samters

>

> Date: Wed, 22 Sep 2010 06:28:31 -0400

>

> <samters >

>

> Replysamters

>

> Subject: RE: Digest Number 2787

>

>

>

>

>

> Wow, , sounds like you’ve found someone to really help. Would you

please share the name of the sinus inhaler? Thanks!

>

>

>

>

>

>

>

>

>

> Message

>

> 1a.

>

> I hope this helps some of you.

>

> Posted by: " Roth " samsmom6602@... samsmom6602

>

> Tue Sep 21, 2010 8:53 pm (PDT)

>

>

>

> Hi Everyone,

>

> Just thought I would let you know in my search to find a doctor that can

> actually help people with Samter's Triad I came across Dr. Tucker

> Allergist and Immunologist in West Palm Beach, Florida. Apparently people

> travel from all parts of the world to see Dr. Tucker with very rare allergy

> cases that most doctors can not help. Dr. Tucker who has got to be close to 80

> years old actually worked on allergy cases with Max Samter, and knew him

> personally. I have not met a more worldly knowledgeable doctor in my life. He

> has written many books and is in Top Docs magazine.

>

> He says that most people with nasal polyps also have allergies to mold and

> yeast. I really never tested positive to allergies at all no matter which

> allergist did a skin test on me. Most doctors will not do the kind of skin

> testing Dr. Tucker does. I had close to 200 allergy tests done, and have to go

> back tomorrow for him to review my skin again. He immediately talked about

mold

> and diet. Most people have Fungal Sinusitis which also causes a lot of fungus

> and yeast in other parts of the body, as well as sinuses. His recommendation

is

> 30 day treatment of oral Fungal medication along with diet, and he took a Qvar

> 40mg rescue Asthma inhaler and turned it into a sinus inhaler for my nose. Two

> puffs in each nostril I felt immediate relief from sinus congestion. It also

> gets into the lungs from the nose so it works for both. I would have never

known

> that. He studies the many different allergy reactions the body has to

different

> things some allergens don't show up right away, and mainstream doctors only

> concentrate on Type I allergy reactions.

>

> He also recommends herbal anti - inflammatory, and Omega 3 fish oil. Whole

food

> diet especially RAW fruits and veggies which I already knew. No dairy either

> which I also knew. He also recommended x-clear nasal spray.

>

> I will be seeing him again, but I am very hopeful of more he can do to help

> Samters.

>

[Guest guest]

You will probably find more information simply going through the

message archive on this board than anywhere else!  A lot of these topics come

up year after year and as things change and the people change, the information

grows.  I am pretty sure the topic of fungal sinusitis has been discussed in

the past.

K.

From:

samters [mailto:samters ] On Behalf Of aio_cps@...

Sent: Friday, September 24, 2010 7:32 PM

samters

Subject: Re: Digest Number 2787

This is the most info I have received other than my own

search ad to what samters is after my allergist said sounds like you have

this

Did this dr say anythingbto you about aspirin desentization?

I'd travel to Florida to get a thorough allergy test done!!

Thank you for sharing

Hope you continue to feel better and improve

Can you smell?

Sent from my iPhone

On Sep 24, 2010, at 3:34 PM, " Keefer " <julie.keefer@...> wrote:

What do he mean by “he knew the

compounds in every nasal spray and reasons why they don't work for people with

Samters?†I wouldn’t be able to function without my Veramyst! (though I

do have bad allergies too) And every ENT and allergist I have even seen

has said I will always need a nasal spray because to help keep the polyps from

coming back.

K.

From: samters

[mailto:samters ] On Behalf Of samsmom6602@...

Sent: Wednesday, September 22, 2010 7:49 AM

samters

Subject: Re: Digest Number 2787

Hi ,

Dr Tucker took a Qvar 40mg rescue Asthma inhaler and turned it into a nasal inhaler.

Two puffs twice a day in each nostril. This is something he came up with to

help and it worked it cleared my stuffiness right up. He has been using this

method for many years since he said most nasal sprays don't work for people

with Samters. he knew the compounds in every nasal spray and reasons why they

don't work for people with Samters.

Sent on the Sprint® Now Network from my BlackBerry®

From:

" Wadkins " <susanwadkins@...>

Sender:

samters

Date:

Wed, 22 Sep 2010 06:28:31 -0400

To:

<samters >

ReplyTo:

samters

Subject:

RE: Digest Number 2787

Wow, , sounds like

you’ve found someone to really help. Would you please share the name of

the sinus inhaler? Thanks!

Message

1a.

I

hope this helps some of you.

Posted by: " Roth " samsmom6602@... samsmom6602

Tue Sep 21, 2010 8:53 pm (PDT)

Hi Everyone,

Just thought I would let you know in my search to find a doctor that can

actually help people with Samter's Triad I came across Dr. Tucker

Allergist and Immunologist in West Palm Beach, Florida. Apparently people

travel from all parts of the world to see Dr. Tucker with very rare allergy

cases that most doctors can not help. Dr. Tucker who has got to be close to 80

years old actually worked on allergy cases with Max Samter, and knew him

personally. I have not met a more worldly knowledgeable doctor in my life. He

has written many books and is in Top Docs magazine.

He says that most people with nasal polyps also have allergies to mold and

yeast. I really never tested positive to allergies at all no matter which

allergist did a skin test on me. Most doctors will not do the kind of skin

testing Dr. Tucker does. I had close to 200 allergy tests done, and have to go

back tomorrow for him to review my skin again. He immediately talked about mold

and diet. Most people have Fungal Sinusitis which also causes a lot of fungus

and yeast in other parts of the body, as well as sinuses. His recommendation is

30 day treatment of oral Fungal medication along with diet, and he took a Qvar

40mg rescue Asthma inhaler and turned it into a sinus inhaler for my nose. Two

puffs in each nostril I felt immediate relief from sinus congestion. It also

gets into the lungs from the nose so it works for both. I would have never

known

that. He studies the many different allergy reactions the body has to different

things some allergens don't show up right away, and mainstream doctors only

concentrate on Type I allergy reactions.

He also recommends herbal anti - inflammatory, and Omega 3 fish oil. Whole food

diet especially RAW fruits and veggies which I already knew. No dairy either

which I also knew. He also recommended x-clear nasal spray.

I will be seeing him again, but I am very hopeful of more he can do to help

Samters.

[Guest guest]

I have to ask Dr. Tucker about Aspirin Desen. He may do it, and I have not undergone it yet. I spent the whole day in his office, and have to go back for the consult and game plan. He even wants spouses/family members to go in with the patients for the consults so they understand everything. He is truly an amazing doctor that really cares about his patients. Never met a doctor like this before. I have had issues with my sense of smell. I do have some sense of smell, but I feel that it has improved since turning the Qvar rescue inhaler into a nasal inhaler. I also started a 30 day course of anti fungal oral medication. He said many people with this also has overgrowth of yeast and fungus. I have always been treated with antibiotics or t anti fungal Sinus Nebulizer Med, but I have never been on a course of oral anti fungal medication for 30 days. Sent on the Sprint® Now Network from my BlackBerry®From: "aio_cps@..." <aio_cps@...>Sender: samters Date: Fri, 24 Sep 2010 16:32:25 -0700 (PDT)samters <samters >Reply samters Subject: Re: Digest Number 2787 This is the most info I have received other than my own search ad to what samters is after my allergist said sounds like you have this Did this dr say anythingbto you about aspirin desentization?I'd travel to Florida to get a thorough allergy test done!!Thank you for sharingHope you continue to feel better and improveCan you smell?Sent from my iPhoneOn Sep 24, 2010, at 3:34 PM, " Keefer" <julie.keefer@...> wrote: What do he mean by “he knew the compounds in every nasal sprayand reasons why they don't work for people with Samters?†I wouldn’t be ableto function without my Veramyst! (though I do have bad allergies too) Andevery ENT and allergist I have even seen has said I will always need a nasalspray because to help keep the polyps from coming back. K. From:samters [mailto:samters ] On Behalf Of samsmom6602@...Sent: Wednesday, September 22, 2010 7:49 AMsamters Subject: Re: Digest Number 2787 Hi , Dr Tucker took a Qvar 40mg rescue Asthma inhaler and turned it into a nasalinhaler. Two puffs twice a day in each nostril. This is something he came upwith to help and it worked it cleared my stuffiness right up. He has been usingthis method for many years since he said most nasal sprays don't work forpeople with Samters. he knew the compounds in every nasal spray and reasons whythey don't work for people with Samters. Sent on the Sprint® Now Network from my BlackBerry®From: " Wadkins"<susanwadkins@...> Sender: samters Date: Wed, 22 Sep 2010 06:28:31 -0400<samters >Replysamters Subject: RE: Digest Number 2787 Wow, , sounds likeyou’ve found someone to really help. Would you please share the name ofthe sinus inhaler? Thanks! Message 1a. Ihope this helps some of you. Posted by: " Roth" samsmom6602@... samsmom6602 Tue Sep 21, 2010 8:53 pm (PDT)Hi Everyone,Just thought I would let you know in my search to find a doctor that can actually help people with Samter's Triad I came across Dr. Tucker Allergist and Immunologist in West Palm Beach, Florida. Apparently people travel from all parts of the world to see Dr. Tucker with very rare allergy cases that most doctors can not help. Dr. Tucker who has got to be close to 80 years old actually worked on allergy cases with Max Samter, and knew him personally. I have not met a more worldly knowledgeable doctor in my life. He has written many books and is in Top Docs magazine. He says that most people with nasal polyps also have allergies to mold and yeast. I really never tested positive to allergies at all no matter which allergist did a skin test on me. Most doctors will not do the kind of skin testing Dr. Tucker does. I had close to 200 allergy tests done, and have to go back tomorrow for him to review my skin again. He immediately talked about moldand diet. Most people have Fungal Sinusitis which also causes a lot of fungus and yeast in other parts of the body, as well as sinuses. His recommendation is30 day treatment of oral Fungal medication along with diet, and he took a Qvar 40mg rescue Asthma inhaler and turned it into a sinus inhaler for my nose. Two puffs in each nostril I felt immediate relief from sinus congestion. It also gets into the lungs from the nose so it works for both. I would have neverknown that. He studies the many different allergy reactions the body has to differentthings some allergens don't show up right away, and mainstream doctors only concentrate on Type I allergy reactions.He also recommends herbal anti - inflammatory, and Omega 3 fish oil. Whole fooddiet especially RAW fruits and veggies which I already knew. No dairy either which I also knew. He also recommended x-clear nasal spray. I will be seeing him again, but I am very hopeful of more he can do to help Samters.

[Guest guest]

, He didn't say that none of them work, but he said few of them work and it depends on the compounds and ingredients in the nasal sprays. He studies, researches, and reads up on all the medications whether it be pharmaceutical or herbal. That's more then I can say for most Doctors, and he also worked on allergy cases with Dr. Samter himself that's also more then I can say for any ENT and Allergy Dr. I have ever been too. Sent on the Sprint® Now Network from my BlackBerry®From: " Keefer" <julie.keefer@...>Sender: samters Date: Fri, 24 Sep 2010 16:34:42 -0400<samters >Reply samters Subject: RE: Digest Number 2787 What do he mean by “he knew the compounds in every nasal sprayand reasons why they don't work for people with Samters?” I wouldn’t be ableto function without my Veramyst! (though I do have bad allergies too) Andevery ENT and allergist I have even seen has said I will always need a nasalspray because to help keep the polyps from coming back. K. From:samters [mailto:samters ] On Behalf Of samsmom6602@...Sent: Wednesday, September 22, 2010 7:49 AMsamters Subject: Re: Digest Number 2787 Hi , Dr Tucker took a Qvar 40mg rescue Asthma inhaler and turned it into a nasalinhaler. Two puffs twice a day in each nostril. This is something he came upwith to help and it worked it cleared my stuffiness right up. He has been usingthis method for many years since he said most nasal sprays don't work forpeople with Samters. he knew the compounds in every nasal spray and reasons whythey don't work for people with Samters. Sent on the Sprint® Now Network from my BlackBerry®From: " Wadkins " <susanwadkins@...> Sender: samters Date: Wed, 22 Sep 2010 06:28:31 -0400<samters >Replysamters Subject: RE: Digest Number 2787 Wow, , sounds likeyou’ve found someone to really help. Would you please share the name ofthe sinus inhaler? Thanks! Message 1a. Ihope this helps some of you. Posted by: " Roth " samsmom6602@... samsmom6602 Tue Sep 21, 2010 8:53 pm (PDT)Hi Everyone,Just thought I would let you know in my search to find a doctor that can actually help people with Samter's Triad I came across Dr. Tucker Allergist and Immunologist in West Palm Beach, Florida. Apparently people travel from all parts of the world to see Dr. Tucker with very rare allergy cases that most doctors can not help. Dr. Tucker who has got to be close to 80 years old actually worked on allergy cases with Max Samter, and knew him personally. I have not met a more worldly knowledgeable doctor in my life. He has written many books and is in Top Docs magazine. He says that most people with nasal polyps also have allergies to mold and yeast. I really never tested positive to allergies at all no matter which allergist did a skin test on me. Most doctors will not do the kind of skin testing Dr. Tucker does. I had close to 200 allergy tests done, and have to go back tomorrow for him to review my skin again. He immediately talked about moldand diet. Most people have Fungal Sinusitis which also causes a lot of fungus and yeast in other parts of the body, as well as sinuses. His recommendation is30 day treatment of oral Fungal medication along with diet, and he took a Qvar 40mg rescue Asthma inhaler and turned it into a sinus inhaler for my nose. Two puffs in each nostril I felt immediate relief from sinus congestion. It also gets into the lungs from the nose so it works for both. I would have neverknown that. He studies the many different allergy reactions the body has to differentthings some allergens don't show up right away, and mainstream doctors only concentrate on Type I allergy reactions.He also recommends herbal anti - inflammatory, and Omega 3 fish oil. Whole fooddiet especially RAW fruits and veggies which I already knew. No dairy either which I also knew. He also recommended x-clear nasal spray. I will be seeing him again, but I am very hopeful of more he can do to help Samters.

[Guest guest]

Yes ask him if you think about itKeep us all postedGood luck to youSent from my iPhoneOn Sep 25, 2010, at 9:19 AM, samsmom6602@... wrote:

I have to ask Dr. Tucker about Aspirin Desen. He may do it, and I have not undergone it yet. I spent the whole day in his office, and have to go back for the consult and game plan. He even wants spouses/family members to go in with the patients for the consults so they understand everything. He is truly an amazing doctor that really cares about his patients. Never met a doctor like this before. I have had issues with my sense of smell. I do have some sense of smell, but I feel that it has improved since turning the Qvar rescue inhaler into a nasal inhaler. I also started a 30 day course of anti fungal oral medication. He said many people with this also has overgrowth of yeast and fungus. I have always been treated with antibiotics or t anti fungal Sinus Nebulizer Med, but I have never been on a course of oral anti fungal medication for 30 days. Sent on the Sprint® Now Network from my BlackBerry®From:

"aio_cps@..." <aio_cps@...>

Sender: samters

Date: Fri, 24 Sep 2010 16:32:25 -0700 (PDT)samters <samters >Reply samters

Subject: Re: Digest Number 2787

This is the most info I have received other than my own search ad to what samters is after my allergist said sounds like you have this Did this dr say anythingbto you about aspirin desentization?I'd travel to Florida to get a thorough allergy test done!!Thank you for sharingHope you continue to feel better and improveCan you smell?Sent from my iPhoneOn Sep 24, 2010, at 3:34 PM, " Keefer" <julie.keefer@...> wrote:

What do he mean by “he knew the compounds in every nasal spray

and reasons why they don't work for people with Samters?†I wouldn’t be able

to function without my Veramyst! (though I do have bad allergies too) And

every ENT and allergist I have even seen has said I will always need a nasal

spray because to help keep the polyps from coming back.

K.

From:

samters [mailto:samters ] On Behalf Of samsmom6602@...

Sent: Wednesday, September 22, 2010 7:49 AM

samters

Subject: Re: Digest Number 2787

Hi ,

Dr Tucker took a Qvar 40mg rescue Asthma inhaler and turned it into a nasal

inhaler. Two puffs twice a day in each nostril. This is something he came up

with to help and it worked it cleared my stuffiness right up. He has been using

this method for many years since he said most nasal sprays don't work for

people with Samters. he knew the compounds in every nasal spray and reasons why

they don't work for people with Samters.

Sent on the Sprint® Now Network from my BlackBerry®

From: " Wadkins"

<susanwadkins@...>

Sender: samters

Date: Wed, 22 Sep 2010 06:28:31 -0400

<samters >

Replysamters

Subject: RE: Digest Number 2787

Wow, , sounds like

you’ve found someone to really help. Would you please share the name of

the sinus inhaler? Thanks!

Message

1a.

I

hope this helps some of you.

Posted by: " Roth" samsmom6602@...

samsmom6602

Tue Sep 21, 2010 8:53 pm (PDT)

Hi Everyone,

Just thought I would let you know in my search to find a doctor that can

actually help people with Samter's Triad I came across Dr. Tucker

Allergist and Immunologist in West Palm Beach, Florida. Apparently people

travel from all parts of the world to see Dr. Tucker with very rare allergy

cases that most doctors can not help. Dr. Tucker who has got to be close to 80

years old actually worked on allergy cases with Max Samter, and knew him

personally. I have not met a more worldly knowledgeable doctor in my life. He

has written many books and is in Top Docs magazine.

He says that most people with nasal polyps also have allergies to mold and

yeast. I really never tested positive to allergies at all no matter which

allergist did a skin test on me. Most doctors will not do the kind of skin

testing Dr. Tucker does. I had close to 200 allergy tests done, and have to go

back tomorrow for him to review my skin again. He immediately talked about mold

and diet. Most people have Fungal Sinusitis which also causes a lot of fungus

and yeast in other parts of the body, as well as sinuses. His recommendation is

30 day treatment of oral Fungal medication along with diet, and he took a Qvar

40mg rescue Asthma inhaler and turned it into a sinus inhaler for my nose. Two

puffs in each nostril I felt immediate relief from sinus congestion. It also

gets into the lungs from the nose so it works for both. I would have never

known

that. He studies the many different allergy reactions the body has to different

things some allergens don't show up right away, and mainstream doctors only

concentrate on Type I allergy reactions.

He also recommends herbal anti - inflammatory, and Omega 3 fish oil. Whole food

diet especially RAW fruits and veggies which I already knew. No dairy either

which I also knew. He also recommended x-clear nasal spray.

I will be seeing him again, but I am very hopeful of more he can do to help

Samters.

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[Guest guest]

Thanks I will definitely keep you posted. Sent on the Sprint® Now Network from my BlackBerry®From: "aio_cps@..." <aio_cps@...>Sender: samters Date: Sat, 25 Sep 2010 09:14:26 -0700 (PDT)samters <samters >Reply samters Subject: Re: Digest Number 2787 Yes ask him if you think about itKeep us all postedGood luck to youSent from my iPhoneOn Sep 25, 2010, at 9:19 AM, samsmom6602@... wrote: I have to ask Dr. Tucker about Aspirin Desen. He may do it, and I have not undergone it yet. I spent the whole day in his office, and have to go back for the consult and game plan. He even wants spouses/family members to go in with the patients for the consults so they understand everything. He is truly an amazing doctor that really cares about his patients. Never met a doctor like this before. I have had issues with my sense of smell. I do have some sense of smell, but I feel that it has improved since turning the Qvar rescue inhaler into a nasal inhaler. I also started a 30 day course of anti fungal oral medication. He said many people with this also has overgrowth of yeast and fungus. I have always been treated with antibiotics or t anti fungal Sinus Nebulizer Med, but I have never been on a course of oral anti fungal medication for 30 days. Sent on the Sprint® Now Network from my BlackBerry®From: "aio_cps@..." <aio_cps@...>Sender: samters Date: Fri, 24 Sep 2010 16:32:25 -0700 (PDT)samters <samters >Reply samters Subject: Re: Digest Number 2787 This is the most info I have received other than my own search ad to what samters is after my allergist said sounds like you have this Did this dr say anythingbto you about aspirin desentization?I'd travel to Florida to get a thorough allergy test done!!Thank you for sharingHope you continue to feel better and improveCan you smell?Sent from my iPhoneOn Sep 24, 2010, at 3:34 PM, " Keefer" <julie.keefer@...> wrote: What do he mean by “he knew the compounds in every nasal sprayand reasons why they don't work for people with Samters?†I wouldn’t be ableto function without my Veramyst! (though I do have bad allergies too) Andevery ENT and allergist I have even seen has said I will always need a nasalspray because to help keep the polyps from coming back. K. From:samters [mailto:samters ] On Behalf Of samsmom6602@...Sent: Wednesday, September 22, 2010 7:49 AMsamters Subject: Re: Digest Number 2787 Hi , Dr Tucker took a Qvar 40mg rescue Asthma inhaler and turned it into a nasalinhaler. Two puffs twice a day in each nostril. This is something he came upwith to help and it worked it cleared my stuffiness right up. He has been usingthis method for many years since he said most nasal sprays don't work forpeople with Samters. he knew the compounds in every nasal spray and reasons whythey don't work for people with Samters. Sent on the Sprint® Now Network from my BlackBerry®From: " Wadkins"<susanwadkins@...> Sender: samters Date: Wed, 22 Sep 2010 06:28:31 -0400<samters >Replysamters Subject: RE: Digest Number 2787 Wow, , sounds likeyou’ve found someone to really help. Would you please share the name ofthe sinus inhaler? Thanks! Message 1a. Ihope this helps some of you. Posted by: " Roth" samsmom6602@... samsmom6602 Tue Sep 21, 2010 8:53 pm (PDT)Hi Everyone,Just thought I would let you know in my search to find a doctor that can actually help people with Samter's Triad I came across Dr. Tucker Allergist and Immunologist in West Palm Beach, Florida. Apparently people travel from all parts of the world to see Dr. Tucker with very rare allergy cases that most doctors can not help. Dr. Tucker who has got to be close to 80 years old actually worked on allergy cases with Max Samter, and knew him personally. I have not met a more worldly knowledgeable doctor in my life. He has written many books and is in Top Docs magazine. He says that most people with nasal polyps also have allergies to mold and yeast. I really never tested positive to allergies at all no matter which allergist did a skin test on me. Most doctors will not do the kind of skin testing Dr. Tucker does. I had close to 200 allergy tests done, and have to go back tomorrow for him to review my skin again. He immediately talked about moldand diet. Most people have Fungal Sinusitis which also causes a lot of fungus and yeast in other parts of the body, as well as sinuses. His recommendation is30 day treatment of oral Fungal medication along with diet, and he took a Qvar 40mg rescue Asthma inhaler and turned it into a sinus inhaler for my nose. Two puffs in each nostril I felt immediate relief from sinus congestion. It also gets into the lungs from the nose so it works for both. I would have neverknown that. He studies the many different allergy reactions the body has to differentthings some allergens don't show up right away, and mainstream doctors only concentrate on Type I allergy reactions.He also recommends herbal anti - inflammatory, and Omega 3 fish oil. Whole fooddiet especially RAW fruits and veggies which I already knew. No dairy either which I also knew. He also recommended x-clear nasal spray. I will be seeing him again, but I am very hopeful of more he can do to help Samters. Reply to sender |Reply to group |Reply via web post |Start a New TopicMessages in this topic(7) Recent Activity: