Guest guest Posted October 5, 2000 Report Share Posted October 5, 2000 Like my sister-in-law, your grandmother may be having trouble swallowing--so you might try pudding, and minced things stirred into mashed potatoes. Or she might be having trouble managing her spoon, if she's still feeding herself and has tremors. For a while there Marti was very concerned about spilling things on herself. Or she might be having trouble keeping on track. We have to remind my sister-in-law to keep on eating. We had three months when Marti wasn't eating at all. She went from 110 to 94 pounds and the doctors were urging us to put in a feeding port, which we were resisting. Putting her on Aricept and Seroquel seemed to increase her appetite or vastly improved her swallowing, we're not sure which, and she's back up to over 100 pounds, and has an excellent appetite. I think a journal is an excellent idea. It's so hard to remember details when it's time to give the doctor a report. I email Marti's husband in Germany a weekly report and save all the emails in a folder, so I have the equivalent of a journal stored in my computer. All of you take care out there, Ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2000 Report Share Posted October 6, 2000 Hello, Everyone ... Several questions about keeping journals -- a super idea! As a matter of fact, I gave a copy of the journal I had been keeping about my Dad for a period of about a year to the geriatrician before he was admitted for assessment in August. She found it to be of great help in providing some accurate historic background on the onset of symptoms and rapid changes in his behavior. We should all be keeping such diaries -- I found it helped my " peace of mind " to be writing things down -- and who knows, maybe our records will be of use to some researcher somewhere, sometime. Anne Eadie Journal keeping? > I have started keeping a daily journal of my Grandmothers bout w/ > the LBD. I thought that I would do a monthly summary of changes and > different conditons that I could take w/ me to the neurologist then > next time that we see him. I will keep the summaries brief. I > thought that maybe I would be able to remember changes better if I > could have a way to reference back. Has anyone else done this, does > anyone else think that this is a good idea? > > I suppose one of the most difficult things that I am trying to deal > w/ for myself is the uncertainty of this disease. I must say again > that I am very glad that we have this group to turn to. > > My grandmother is not wanting to eat very much. Has anyone else > experienced this? > > Well that is all for this evening. Hopefully I can post again > tomorrow. Everyone have a good evening or day! > > Nansea > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2000 Report Share Posted October 6, 2000 Anne, That was kinda what I was thinking along w/ helping my grandma. I wonder if at some point in time that those entries would help someone else. At least I know that they won't hurt anything. She seems to be a bit worse today. She is outta balance and her eating is slow. She was diagnosed w/ emphysema today also, but the bright side of that is, that it isn't really bad and they think that they can control it w/ an inhaler. So that is good. I'm also thankful that she can respond well today and yesterday too. So her mind is pretty sharp. I think that an important thing for me to remember that is in all of this chaos is always something to be thankful for. I may have to look for a while for it but it is always there. Thank you everyone for listening. Nansea > Hello, Everyone ... > > Several questions about keeping journals -- a super idea! > > As a matter of fact, I gave a copy of the journal I had been keeping about > my Dad for a period of about a year to the geriatrician before he was > admitted for assessment in August. She found it to be of great help in > providing some accurate historic background on the onset of symptoms and > rapid changes in his behavior. > > We should all be keeping such diaries -- I found it helped my " peace of > mind " to be writing things down -- and who knows, maybe our records will be > of use to some researcher somewhere, sometime. > > Anne Eadie > Journal keeping? > > > > I have started keeping a daily journal of my Grandmothers bout w/ > > the LBD. I thought that I would do a monthly summary of changes and > > different conditons that I could take w/ me to the neurologist then > > next time that we see him. I will keep the summaries brief. I > > thought that maybe I would be able to remember changes better if I > > could have a way to reference back. Has anyone else done this, does > > anyone else think that this is a good idea? > > > > I suppose one of the most difficult things that I am trying to deal > > w/ for myself is the uncertainty of this disease. I must say again > > that I am very glad that we have this group to turn to. > > > > My grandmother is not wanting to eat very much. Has anyone else > > experienced this? > > > > Well that is all for this evening. Hopefully I can post again > > tomorrow. Everyone have a good evening or day! > > > > Nansea > > > > > > Quote Link to comment Share on other sites More sharing options...
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