Guest guest Posted May 11, 2008 Report Share Posted May 11, 2008 I do not know why I do not know that answer, but I don't. What is the difference? Deanna,Fort Worth, TexasMom to Cody age 10, Dx: EE, Food Allergies (elimination diet: rye, wheat, soy, and beef), Env. Allergies to mountain cedar and cats, allergic conjunctivitis, and possible GBS (Guillian Barre Syndrome). fleet> > > > > > Hello all,> > > > We finally saw the ped. GI last week for my 3yo who has been > > constipated her entire life. She recommended removing all milk (wehad > > already removed *most* of it), a bunch of labs, and giving her 2fleet > > enema's 12 hours apart. I am fine with the milk removal, had the labs > > drawn, but am a bit uneasy about the enema's given 12 hours apart.Any > > thoughts or input would be appreciated.> > > > Thanks in advance,> > > > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2008 Report Share Posted May 12, 2008 Wow! How interesting. It has been planted in our heads for so long how important milk is, who would have guessed that it is not only bad for people who are intolerant or allergic, but for all of us. I think I am going to try lowering our dairy intake and see how it goes, maybe there is a lot to this. I have pushed milk on Cody forever, just like it was pushed on me. I will replace his milk with orange juice, the one we buy has just as much calcium as milk. Deanna,Fort Worth, TexasMom to Cody age 10, Dx: EE, Food Allergies (elimination diet: rye, wheat, soy, and beef), Env. Allergies to mountain cedar and cats, allergic conjunctivitis, and possible GBS (Guillian Barre Syndrome). fleet> > > > > > > > > Hello all,> > > > > > We finally saw the ped. GI last week for my 3yo who has been > > > constipated her entire life. She recommended removing all milk (we > > had > > > already removed *most* of it), a bunch of labs, and giving her 2 > > fleet > > > enema's 12 hours apart. I am fine with the milk removal, had the > > labs > > > drawn, but am a bit uneasy about the enema's given 12 hours apart. > > Any > > > thoughts or input would be appreciated.> > > > > > Thanks in advance,> > > > > > > > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2008 Report Share Posted May 12, 2008 look at how awesome you are , it's so nice you take the time to explain that in such depth, we need more people like you.............littlelief wrote: Hi Deanna,What kind of testing was run to determine that milk was not a problemfor Cody? There are several types of allergy testing - IgE, IgA, andIgG are the common ones. Skin prick and RAST testing, to myunderstanding, will not reveal digestively-disruptive food"allergies"/sensitivities. Serum IgG antibody testing is typicallydone to determine the "delayed" type allergies - like the food"allergies"/sensitivities that aren't manifest by a rapid anaphylacticresponse but are manifest by digestive distress/problems. Some kidsare IgA deficient (or at least have low IgA counts), so IgA testingmay not provide a clear picture. If you do have IgA testing done, besure that "Total Serum IgA" is quantified also. Lactose is the sugar in milk that some people cannot break down (andtherefore they get digestive distress such as gas/diarrhea). Caseinand whey are proteins in milk that some people cannot properly digestand the immune system mounts a response to these proteins. So,lactose is not typically the big (or at least not the only) problemfor the kids who are milk-intolerant, it's the protein (casein). Iftesting was done only for lactose intolerance, then you should lookinto testing for casein sensitivity.Also, the fecal antibody testing for anti-casein antibodies may bemore sensitive than the serum test. I think Enterolab is the onlyplace that does fecal antibody testing. Personally, I think the fecalantibody testing is the best way to go for the food intolerancetesting. These antibodies are being made and secreted into the GItract (to the best of my understanding at this time). They aren'tnecessarily being taken up into the blood stream (especially if the GItract is inflamed and irritated) and therefore may not be detected byserum antibody testing at the levels at which they might actually bepresent in the GI tract).And, finally, although I'm a believer in the anti-body testing to helpdetermine food intolerances/allergies - especially to be able toconvince my DH that DS must avoid certain foods, I can say that itseems that some foods may be causing digestive distress (e.g., severeconstipation/blood in stool) despite repeated negative test results(at least for my son). I've had my son tested for egg intolerance byserum IgG and fecal IgA and both have shown up negative. I don't knowif this is because we've not eaten egg on a regular basis for most ofhis life (I've only tried giving it to him for a week at a timebecause it keeps seeming to correlate with major back-ups/pain - buteach time I've gotten a "negative" test for egg back, I'vereintroduced (like a dummy - against my better instincts) and come outwith a two to three week MAJOR set back in stooling.). So, sometimesyou might just have to go with your instincts and not with the testresults. Ultimately, it is how the body reacts when the food(s) is/are removed- NOT what the test results actually say. Yes, the tests can behelpful/informative in figuring out what foods can be problematic (wewould've probably never eliminated gluten if it weren't for thetesting), but I don't think they can be 100% predictive. Trial/errorwith food elimination and monitoring body response may be your bestbet for determining what food(s) Cody cannot tolerate digestively.HTH!best,p.s. - I see that rye and wheat are listed as one of the foods thatyou've eliminated for Cody - have you tried eliminating ALL glutencontaining foods? Wheat, rye, barley and oats are the biggies - andhe's (I assume) shown reaction on testing to two of the four big ones.It's not easy, trust me, I know, because there's gluten in a lot ofthings, but seems likely to me that if wheat & rye are problematic forhim, then perhaps all gluten should be eliminated for a while to seeif that helps.....??..>> Oh yeah, when my son saw the GI for the first time (he has hadconstipation all his life), he took him off milk also. Later, afterallery testing we found out milk is not the problem. He is not lactoseintolerant or allergic to milk. Maybe others have some in put on milksensitivity.> > Deanna,> Fort Worth, Texas> Mom to Cody age 10, Dx: EE, Food Allergies (elimination diet: rye,wheat, soy, and beef), Env. Allergies to mountain cedar and cats,allergic conjunctivitis, and possible GBS (Guillian Barre Syndrome).> > > > fleet> > > Hello all,> > We finally saw the ped. GI last week for my 3yo who has been > constipated her entire life. She recommended removing all milk (we had > already removed *most* of it), a bunch of labs, and giving her 2 fleet > enema's 12 hours apart. I am fine with the milk removal, had the labs > drawn, but am a bit uneasy about the enema's given 12 hours apart. Any > thoughts or input would be appreciated.> > Thanks in advance,> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2008 Report Share Posted May 12, 2008 sometimes it's not just the milk but the antibiotics they give them, that could be causing difficulties as well.................I wonder which ones they give them, sulfer based etc.?deanna gentry wrote: Wow! How interesting. It has been planted in our heads for so long how important milk is, who would have guessed that it is not only bad for people who are intolerant or allergic, but for all of us. I think I am going to try lowering our dairy intake and see how it goes, maybe there is a lot to this. I have pushed milk on Cody forever, just like it was pushed on me. I will replace his milk with orange juice, the one we buy has just as much calcium as milk. Deanna,Fort Worth, TexasMom to Cody age 10, Dx: EE, Food Allergies (elimination diet: rye, wheat, soy, and beef), Env. Allergies to mountain cedar and cats, allergic conjunctivitis, and possible GBS (Guillian Barre Syndrome). fleet> > > > > > > > > Hello all,> > > > > > We finally saw the ped. GI last week for my 3yo who has been > > > constipated her entire life. She recommended removing all milk (we > > had > > > already removed *most* of it), a bunch of labs, and giving her 2 > > fleet > > > enema's 12 hours apart. I am fine with the milk removal, had the > > labs > > > drawn, but am a bit uneasy about the enema's given 12 hours apart. > > Any > > > thoughts or input would be appreciated.> > > > > > Thanks in advance,> > > > > > > > >> >> Quote Link to comment Share on other sites More sharing options...
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