update

[Guest guest]

My son is finally going everyday with a skip day here and there and

he is finally gaining weight(was failure to thrive dx)!! It has taken

almost 3 yrs to get to this point, but thank GOD it has happened(not

perfect, but not the hell it was and NO miralax)! The latest we have

added and seems to be doing something is Activia yogurt(im sure it is

the porbiotics). I have been giving him 1 a day(calories/probiotics)!

Our routine is of course pushing the " spring " water(avoid tap with

the chlorine/destroys the so needed bacteria)! A little aloe every

other day, sometimes daily(depends on how the stools are doing).

Vitamin C(1 or 2 grams) about 3 times a week! Magnesium was 2-3 times

a week now just 1 to 2 times a week(higher dose). Epsom salt baths

almost daily. And garlic crushed, goal of at least 1 time a week. I

believe a viral gi is one of the biggest issues of

motility/constipation and chemicals/toxins also. Garlic is a natural

viral killer/bacteria killer/chelator and I swear by this food! And

it sure loosens the stools!! He has been antibiotic(destroys the

intestinal function) free for a long time now due to garlic! Water,

water, water....push them to drink(spring is best)!! Well I just

wanted to update. Things are far from perfect, but sooooo much better

finally! We just cant give up, it can seem like there is no end but

there is light, we are seeing it! Now to just get the courage to

start omega's(my son is neuro impaired, I feel more repreased and

able to progress). I think due to the mercury issues I might start

him on the organic flaxseed instead! Any thoughts on the omega's

would be nice to hear!! Jennie<><

[Guest guest]

Thanks for sharing....very inspiring.

Deanna,Fort Worth, TexasMom to Cody age 10. Diagnosed w/EE on 2/6/08. Also severe reaction to Miralax.

update

My son is finally going everyday with a skip day here and there and he is finally gaining weight(was failure to thrive dx)!! It has taken almost 3 yrs to get to this point, but thank GOD it has happened(not perfect, but not the hell it was and NO miralax)! The latest we have added and seems to be doing something is Activia yogurt(im sure it is the porbiotics). I have been giving him 1 a day(calories/ probiotics) ! Our routine is of course pushing the "spring" water(avoid tap with the chlorine/destroys the so needed bacteria)! A little aloe every other day, sometimes daily(depends on how the stools are doing). Vitamin C(1 or 2 grams) about 3 times a week! Magnesium was 2-3 times a week now just 1 to 2 times a week(higher dose). Epsom salt baths almost daily. And garlic crushed, goal of at least 1 time a week. I believe a viral gi is one of the biggest issues of motility/constipati on and

chemicals/toxins also. Garlic is a natural viral killer/bacteria killer/chelator and I swear by this food! And it sure loosens the stools!! He has been antibiotic(destroys the intestinal function) free for a long time now due to garlic! Water, water, water....push them to drink(spring is best)!! Well I just wanted to update. Things are far from perfect, but sooooo much better finally! We just cant give up, it can seem like there is no end but there is light, we are seeing it! Now to just get the courage to start omega's(my son is neuro impaired, I feel more repreased and able to progress). I think due to the mercury issues I might start him on the organic flaxseed instead! Any thoughts on the omega's would be nice to hear!! Jennie<><

[Guest guest]

Wow Jennie, that is fantastic. I suspect the viral issues and

mycoplasma/toxins are a big thing too, as I see that with my

dd...when she is getting a cold, and it seems like she goes from one

cold right into another lately, her bowels definitely slow down and

become very pellety stools. I have done olive leaf extract (OLE) wit

her in the past, and maybe I will do that again. I also like your

suggestion of trying a different water source.

W

>

> I wanted to update on our son! Although things arent perfect he has

> been having more frequent bm's on his own with less and less

> intervention(he has gone from several meds down to barely 1 now,I

> believe that most(not all) medical issues can recover with gi

> healing). This has taken 3yrs for him to get to this point! He was

> soooooo severe, gi almost not working at all, horrid seizures, etc.

> In learning over time and trying to get his bowels moving daily I

> have come to the conclusion(not 100% on this) that it comes down to

> virus's/mycotoxins. At this point I suspect a combo of both! Both

> thrive in the intestines and moves on even to the brain ie.

spectrum

> issues, seizures, motility etc. It seems this is why it is so much

> worse(constipation/motility) for our son in the winter seasons

> (virus/bacteria issues). The things used for him was very little

> supplements for healing(larger amounts in the beginning to less and

> less in these last few months). Mycotoxins I suspect was the big

> culprit. The healing took very little combo of supplements. Garlic

on

> occaission(typically used when signs of illness)ie.natural viral

> toxin killer(hasnt used antibiotics in so long, this is a BIG

culprit

> in the gi/immune damage) plus garlic has the side affect of loose

> stools, a natural enzyme, etc. Vitamin C, aloe vera juice more

> regularly but are having to use less and less amounts(this is also

a

> natural defense on the myco/virus issues. Magnesium at least 1 a

week

> in higher dose(also lessining this), I dont know that it should be

> used daily with those who's issues are motility, it tends to relax

> the muscles, but not 100% on this. The high dose usage is actually

a

> body toxic overload excreting thing and so the looser stools. OLE-

> viral/myco killer. We just introduced our son to this not to long

ago

> for a flu that struck and it worked great! Danon yogurt for the

> probiotics(this was the latest thing we added and I really think it

> has loosened his stools and of coarse the good bacteria being put

> back). NO TAP WATER!! I cant stress this enough! Our sons reflux

> deminshed after we took him off tap. It is loaded with chlorine,

> although keeps our water safer it in turn is killing our gi

balance.

> The chlorine is also destroying our good bacteria in the gi. Also I

> really feel we are drinking many pharmacuetical drugs. This has

been

> proven over and over. I suspect one reason for the high increase in

> infertility/birth defects comes down to the hormones in the water.

> They are not able to filter this one out. They are also finding

more

> and more that cant be processed out. We stick with spring water, no

> distilling etc. so the minerals are hopefully still in it. Im leary

> on how spring/natural it really is but can say 100% our sons gi has

> improved due to changing the source. We have a long road ahead with

> our son and all his medical, but I wanted to share with others that

> there is light at the end of the tunnel! Gi healing is at the top

for

> overall health!! Jennie<><

>

[Guest guest]

We have been moving for the last week, I have had no internet. Anyway, Friday night Cody spent the night with a friend, his mom called at 11:00 pm saying something was wrong with Cody, she said his eyes are really really red and he buckled over with severe abdominal pain (keep in mind has EE, abdominal pain is a sing of a flare). We rushed over there and took him to the ER, his pain was different than his usual and it was much more severe, he was screaming all the way there. They immediatly put him on morphine, did an ultrasound to check his apendix, they couldn't see it because he was soo full. They gave him an enema (milk of molases) they told him to hold it for 15 - 20 minutes (no problem, he is an expert at that). OMG did he ever GO, he also vomited (probably because of the morphine).

Immediate relief, no more pain. That was the worst experience he has ever had with constipation. He had been going every 2 to 3 days for awhile now, I guess that is still not enough, it finally caught up with him. His GI put him on probiotics, he gave me a month of samples, then a prescription for vsl#3. I guess I am going to have to be more agressive with this.

Deanna,Fort Worth, TexasMom to Cody age 10, Dx: EE, Food Allergies (elimination diet: rye, wheat, soy, and beef), Env. Allergies to mountain cedar and cats, allergic conjunctivitis, and possible GBS (Guillian Barre Syndrome).

update

I wanted to update on our son! Although things arent perfect he has been having more frequent bm's on his own with less and less intervention( he has gone from several meds down to barely 1 now,I believe that most(not all) medical issues can recover with gi healing). This has taken 3yrs for him to get to this point! He was soooooo severe, gi almost not working at all, horrid seizures, etc. In learning over time and trying to get his bowels moving daily I have come to the conclusion(not 100% on this) that it comes down to virus's/mycotoxins. At this point I suspect a combo of both! Both thrive in the intestines and moves on even to the brain ie. spectrum issues, seizures, motility etc. It seems this is why it is so much worse(constipation/ motility) for our son in the winter seasons(virus/bacteria issues). The things used for him was very little supplements for healing(larger amounts in the beginning

to less and less in these last few months). Mycotoxins I suspect was the big culprit. The healing took very little combo of supplements. Garlic on occaission(typicall y used when signs of illness)ie.natural viral toxin killer(hasnt used antibiotics in so long, this is a BIG culprit in the gi/immune damage) plus garlic has the side affect of loose stools, a natural enzyme, etc. Vitamin C, aloe vera juice more regularly but are having to use less and less amounts(this is also a natural defense on the myco/virus issues. Magnesium at least 1 a week in higher dose(also lessining this), I dont know that it should be used daily with those who's issues are motility, it tends to relax the muscles, but not 100% on this. The high dose usage is actually a body toxic overload excreting thing and so the looser stools. OLE- viral/myco killer. We just introduced our son to this not to long ago for a flu that

struck and it worked great! Danon yogurt for the probiotics(this was the latest thing we added and I really think it has loosened his stools and of coarse the good bacteria being put back). NO TAP WATER!! I cant stress this enough! Our sons reflux deminshed after we took him off tap. It is loaded with chlorine, although keeps our water safer it in turn is killing our gi balance. The chlorine is also destroying our good bacteria in the gi. Also I really feel we are drinking many pharmacuetical drugs. This has been proven over and over. I suspect one reason for the high increase in infertility/ birth defects comes down to the hormones in the water. They are not able to filter this one out. They are also finding more and more that cant be processed out. We stick with spring water, no distilling etc. so the minerals are hopefully still in it. Im leary on how spring/natural it really is but can say 100% our

sons gi has improved due to changing the source. We have a long road ahead with our son and all his medical, but I wanted to share with others that there is light at the end of the tunnel! Gi healing is at the top for overall health!! Jennie<><

[Guest guest]

Wow Deanna, I wonder why his eyes get red? Did they say? You should also look at what he ate that day? Did they do a stool sample? Has he ever had one done? Did they ever re-check the appendix? or did they only think it was from being backed up? I am shocked they prescribed VSL#3, good for Cody, maybe they're finally listening................and ONLY because of his severe reactions, now take Cody, and all the children that this happened to, and put them all together and take a look at the pattern and they would see, that indeed PEG is dangerous! Poor kid............... as far as you saying you need to be more aggressive, well, it's written on the FDA adverse reaction sheets, physicians documented, that their bowel seizes up, meaning they simple can't go................even if they wanted to, the VSL#3 should probably work let us know................if not you might want to add ex-lax, or some kind of stimulant laxative to start him

having a learned behavior pattern, to keep him on the right track, please look into if you can give something like this with VSL#3 first though...............Is VSL in a capsule? I would really like to try it. thank you for sharing, and thank you for being such a good Mom! Jeaniedeanna gentry wrote: We have been moving for the last week, I have had no internet. Anyway, Friday night Cody spent the night with a friend,

his mom called at 11:00 pm saying something was wrong with Cody, she said his eyes are really really red and he buckled over with severe abdominal pain (keep in mind has EE, abdominal pain is a sing of a flare). We rushed over there and took him to the ER, his pain was different than his usual and it was much more severe, he was screaming all the way there. They immediatly put him on morphine, did an ultrasound to check his apendix, they couldn't see it because he was soo full. They gave him an enema (milk of molases) they told him to hold it for 15 - 20 minutes (no problem, he is an expert at that). OMG did he ever GO, he also vomited (probably because of the morphine). Immediate relief, no more pain. That was the worst experience he has ever had with constipation. He had been going every 2 to 3 days for awhile now, I guess that is still not enough, it finally caught up with him. His GI put him on probiotics, he gave me a month of samples, then a prescription for vsl#3. I

guess I am going to have to be more agressive with this. Deanna,Fort Worth, TexasMom to Cody age 10, Dx: EE, Food Allergies (elimination diet: rye, wheat, soy, and beef), Env. Allergies to mountain cedar and cats, allergic conjunctivitis, and possible GBS (Guillian Barre Syndrome). update I wanted to update on our son! Although things arent perfect he has been having more frequent bm's on his own with less and less intervention( he has gone from several meds down to barely 1 now,I believe that

most(not all) medical issues can recover with gi healing). This has taken 3yrs for him to get to this point! He was soooooo severe, gi almost not working at all, horrid seizures, etc. In learning over time and trying to get his bowels moving daily I have come to the conclusion(not 100% on this) that it comes down to virus's/mycotoxins. At this point I suspect a combo of both! Both thrive in the intestines and moves on even to the brain ie. spectrum issues, seizures, motility etc. It seems this is why it is so much worse(constipation/ motility) for our son in the winter seasons(virus/bacteria issues). The things used for him was very little supplements for healing(larger amounts in the beginning to less and less in these last few months). Mycotoxins I suspect was the big culprit. The healing took very little combo of supplements. Garlic on occaission(typicall y used when signs of illness)ie.natural viral toxin

killer(hasnt used antibiotics in so long, this is a BIG culprit in the gi/immune damage) plus garlic has the side affect of loose stools, a natural enzyme, etc. Vitamin C, aloe vera juice more regularly but are having to use less and less amounts(this is also a natural defense on the myco/virus issues. Magnesium at least 1 a week in higher dose(also lessining this), I dont know that it should be used daily with those who's issues are motility, it tends to relax the muscles, but not 100% on this. The high dose usage is actually a body toxic overload excreting thing and so the looser stools. OLE- viral/myco killer. We just introduced our son to this not to long ago for a flu that struck and it worked great! Danon yogurt for the probiotics(this was the latest thing we added and I really think it has loosened his stools and of coarse the good bacteria being put back). NO TAP WATER!! I cant stress this enough! Our sons reflux

deminshed after we took him off tap. It is loaded with chlorine, although keeps our water safer it in turn is killing our gi balance. The chlorine is also destroying our good bacteria in the gi. Also I really feel we are drinking many pharmacuetical drugs. This has been proven over and over. I suspect one reason for the high increase in infertility/ birth defects comes down to the hormones in the water. They are not able to filter this one out. They are also finding more and more that cant be processed out. We stick with spring water, no distilling etc. so the minerals are hopefully still in it. Im leary on how spring/natural it really is but can say 100% our sons gi has improved due to changing the source. We have a long road ahead with our son and all his medical, but I wanted to share with others that there is light at the end of the tunnel! Gi healing is at the top for overall health!!

Jennie<><

[Guest guest]

Just an observation...Sammy's eyes get really red when he's backed up, progressively worse the longer he's not gone. He also gets what typically looks like "allergy shiners," but much darker than the usual ones he gets from his sinuses.

I'm guessing that somewhere down the line, gut flora and sinuses are so strongly connected that he has this reaction.

We have been moving for the last week, I have had no internet. Anyway, Friday night Cody spent the night with a friend, his mom called at 11:00 pm saying something was wrong with Cody, she said his eyes are really really red and he buckled over with severe abdominal pain (keep in mind has EE, abdominal pain is a sing of a flare). We rushed over there and took him to the ER, his pain was different than his usual and it was much more severe, he was screaming all the way there. They immediatly put him on morphine, did an ultrasound to check his apendix, they couldn't see it because he was soo full. They gave him an enema (milk of molases) they told him to hold it for 15 - 20 minutes (no problem, he is an expert at that). OMG did he ever GO, he also vomited (probably because of the morphine). Immediate relief, no more pain. That was the worst experience he has ever had with

constipation. He had been going every 2 to 3 days for awhile now, I guess that is still not enough, it finally caught up with him. His GI put him on probiotics, he gave me a month of samples, then a prescription for vsl#3. I guess I am going to have to be more agressive with this.

Deanna,Fort Worth, TexasMom to Cody age 10, Dx: EE, Food Allergies (elimination diet: rye, wheat, soy, and beef), Env. Allergies to mountain cedar and cats, allergic conjunctivitis, and possible GBS (Guillian Barre Syndrome).

update

I wanted to update on our son! Although things arent perfect he has been having more frequent bm's on his own with less and less intervention( he has gone from several meds down to barely 1 now,I believe that most(not all) medical issues can recover with gi healing). This has taken 3yrs for him to get to this point! He was soooooo severe, gi almost not working at all, horrid seizures, etc. In learning over time and trying to get his bowels moving daily I have come to the conclusion(not 100% on this) that it comes down to virus's/mycotoxins. At this point I suspect a combo of both! Both thrive in the intestines and moves on even to the brain ie. spectrum issues, seizures, motility etc. It seems this is why it is so much worse(constipation/ motility) for our son in the winter seasons(virus/bacteria issues). The things used for him was very little supplements for healing(larger amounts in the

beginning to less and less in these last few months). Mycotoxins I suspect was the big culprit. The healing took very little combo of supplements. Garlic on occaission(typicall y used when signs of illness)ie.natural viral toxin killer(hasnt used antibiotics in so long, this is a BIG culprit in the gi/immune damage) plus garlic has the side affect of loose stools, a natural enzyme, etc. Vitamin C, aloe vera juice more regularly but are having to use less and less amounts(this is also a natural defense on the myco/virus issues. Magnesium at least 1 a week in higher dose(also lessining this), I dont know that it should be used daily with those who's issues are motility, it tends to relax the muscles, but not 100% on this. The high dose usage is actually a body toxic overload excreting thing and so the looser stools. OLE- viral/myco killer. We just introduced our son to this not to long ago for a flu

that struck and it worked great! Danon yogurt for the probiotics(this was the latest thing we added and I really think it has loosened his stools and of coarse the good bacteria being put back). NO TAP WATER!! I cant stress this enough! Our sons reflux deminshed after we took him off tap. It is loaded with chlorine, although keeps our water safer it in turn is killing our gi balance. The chlorine is also destroying our good bacteria in the gi. Also I really feel we are drinking many pharmacuetical drugs. This has been proven over and over. I suspect one reason for the high increase in infertility/ birth defects comes down to the hormones in the water. They are not able to filter this one out. They are also finding more and more that cant be processed out. We stick with spring water, no distilling etc. so the minerals are hopefully still in it. Im leary on how spring/natural it really is but can say

100% our sons gi has improved due to changing the source. We have a long road ahead with our son and all his medical, but I wanted to share with others that there is light at the end of the tunnel! Gi healing is at the top for overall health!! Jennie<><

[Guest guest]

that's interesting, I wonder why their eyes get red? does this happen all year? could it be allergy related? I've never heard of the connection between red eyes and constipation? My friend that is always stuffy and has those shiners just started a probiotic and for the first time in his life, as far as he can remember, can breath now and those shiners seems to be diminishing, he's in awe............. Cohen wrote: Just an observation...Sammy's eyes get really red when he's backed up, progressively worse the longer he's not gone. He also gets what typically looks like "allergy shiners," but much darker than the usual ones he gets from his sinuses. I'm guessing that somewhere down the line, gut flora and sinuses are so strongly connected that he has this reaction. We have been moving for the last week, I have had no internet. Anyway, Friday night Cody spent the night with a friend, his mom called at 11:00 pm saying something was wrong with Cody, she said his eyes are really really red and he buckled over with severe abdominal pain (keep in mind has EE, abdominal pain is a sing of a flare). We rushed over there and took him to the ER, his pain was different than his usual and it was much more severe, he was screaming all the way there. They immediatly put him on morphine, did an ultrasound to check his

apendix, they couldn't see it because he was soo full. They gave him an enema (milk of molases) they told him to hold it for 15 - 20 minutes (no problem, he is an expert at that). OMG did he ever GO, he also vomited (probably because of the morphine). Immediate relief, no more pain. That was the worst experience he has ever had with constipation. He had been going every 2 to 3 days for awhile now, I guess that is still not enough, it finally caught up with him. His GI put him on probiotics, he gave me a month of samples, then a prescription for vsl#3. I guess I am going to have to be more agressive with this. Deanna,Fort Worth, TexasMom to Cody age 10, Dx: EE, Food Allergies (elimination diet: rye, wheat, soy, and beef), Env. Allergies to mountain cedar and cats, allergic conjunctivitis, and possible GBS (Guillian Barre Syndrome). update I wanted to update on our son! Although things arent perfect he has been having more frequent bm's on his own with less and less intervention( he has gone from several meds down to barely 1 now,I believe that most(not all) medical issues can recover with gi healing). This has taken 3yrs for him to get to this point! He was soooooo severe, gi almost not working at all, horrid seizures, etc. In learning over time and trying to get his bowels moving daily I have come to the conclusion(not 100% on this) that it comes down to virus's/mycotoxins. At this point I suspect a combo of both! Both thrive in the intestines and

moves on even to the brain ie. spectrum issues, seizures, motility etc. It seems this is why it is so much worse(constipation/ motility) for our son in the winter seasons(virus/bacteria issues). The things used for him was very little supplements for healing(larger amounts in the beginning to less and less in these last few months). Mycotoxins I suspect was the big culprit. The healing took very little combo of supplements. Garlic on occaission(typicall y used when signs of illness)ie.natural viral toxin killer(hasnt used antibiotics in so long, this is a BIG culprit in the gi/immune damage) plus garlic has the side affect of loose stools, a natural enzyme, etc. Vitamin C, aloe vera juice more regularly but are having to use less and less amounts(this is also a natural defense on the myco/virus issues. Magnesium at least 1 a week in higher dose(also lessining this), I dont know that it should be used daily with those

who's issues are motility, it tends to relax the muscles, but not 100% on this. The high dose usage is actually a body toxic overload excreting thing and so the looser stools. OLE- viral/myco killer. We just introduced our son to this not to long ago for a flu that struck and it worked great! Danon yogurt for the probiotics(this was the latest thing we added and I really think it has loosened his stools and of coarse the good bacteria being put back). NO TAP WATER!! I cant stress this enough! Our sons reflux deminshed after we took him off tap. It is loaded with chlorine, although keeps our water safer it in turn is killing our gi balance. The chlorine is also destroying our good bacteria in the gi. Also I really feel we are drinking many pharmacuetical drugs. This has been proven over and over. I suspect one reason for the high increase in infertility/ birth defects comes down to the hormones in the water. They are

not able to filter this one out. They are also finding more and more that cant be processed out. We stick with spring water, no distilling etc. so the minerals are hopefully still in it. Im leary on how spring/natural it really is but can say 100% our sons gi has improved due to changing the source. We have a long road ahead with our son and all his medical, but I wanted to share with others that there is light at the end of the tunnel! Gi healing is at the top for overall health!! Jennie<><