to all

[Guest guest]

Hi all - finally got a moment to sit down while trying to wind down from a busy

week at school and get ready for an even busier one! We invite all our dads to

come and eat donuts with the ir kids - and planning these parent involvement

evetns is my job - so I will be at the grocery store 6:30 Mon morning to pick up

roughly 1000 donuts! When the last dad leaves I am walking out with them! Lucky

for me I have to go to Austin to see my doc - so my husband and I are going to

play for a day as well.

Thansk or those of you who have written in about the mtx. I still do not feel

like I am where I could be with the plaqu - so I am going to talk to my doc

about switching and it is my understanding that mtx is " next " on the list with

my drug allergies. So - the constant burn deep in the joints has calmed down - i

am to a constant ache and the pain now comes and goes (quite often

unfortunately). Evenings are rough once I finally sit down. You know - you have

to get everything done because if you sit down at the end of the day you probbly

won't move again! And coming of the pred has been a little fun. I can feel fine

- eat - and then feel like I haven't had anything to eat in forever! So we got o

the o.j and te granola bars and.....The last day or so adrenaline has been my

friend! I find that when I have something I am excited about and that I must get

done it is easier to ignore the pain.

Dn't know if I will post again before i see my doc - weekends equal housework,

grocery stores and errands and kids!

My prayer for us all is that we have a day free of pain! I know that I have

truly forgotten what it feels like not to hurt. I am also trying to get life

insurance set up before I have any " official " diagnosis. Jeanine and I talked

the other night about how hard it is to get insurance once you have been

diagnosed with one of these. Or should I say how expensive it is! I am going to

ask my doctor what I have to disclose at this point and all.

You are in my thoughts - I find that when I am really down I think of those of

you who are struggling more than me and I know that if you can do it, so can I!

Thanks -

hugs to all - Janet