Guest guest Posted September 26, 2008 Report Share Posted September 26, 2008 Thanx Aylwin. It's hard not to take it a little personally, but you're right he's just being formulaic. The good thing about this doc is he'll give me what I ask for. The bad is he doesn't come up w/ anything on his own and is just a GP. I'm trying to decide if I should get in to see another cfs/fms specialist in Portland (1 1/2 hrs away) or Eugene (45mins away). I don't know that I want to be a guinea pig anymore. I had 8 yrs of it and it didn't help, but it is nice to go to a doc who really understands the symptoms and effects of these diseases. The sleep is tricky because I need to knock myself out but not be fuzzy headed the next day from it because of my schoolwork. Without anything, or when my body has adjusted too much to a sleep med, I can go for several days with 0hrs of sleep. That's usually the point that I go crying to my dr for something different. A couple things I've learned about drs for anyone still having trouble getting their gps to write things down; 1.repeat yourself, if you're having a lot of trouble with pain tell them several times at each appointment 2. tell them straight up what your symptoms are, don't exagerate but don't minimize it either 3. ask them to repeat out loud what they're writing down or have them show it to you 4. make a list before you go of what you want to talk about and write down or record their answers 5. bring someone close to you along who can talk about about what they see you go through (som etimes drs like that extra perspective) 6. after a bad drs visit do something positive to treat yourself like go to Starbucks...it won't change anything but it'll make you feel a little better Hope that helps someone, Alia Quote Link to comment Share on other sites More sharing options...
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