Guest guest Posted October 3, 2006 Report Share Posted October 3, 2006 Alina, I understand your frustration. I feel the same way. Endos told me it takes 4 to 6 weeks for the body to adjust to a thyroid medication change. I usually feel lousy the first month. Patients can be hyper and have hypo symptoms and vice versa due to hormone ( thyroid, adrenaline, reproductive hormone imbalance.) The endo system is like a three legged stool with each leg representing different hormones that need to be balanced for a patient to feel good. If one is deficient, the shortage would cause a stool to wobble and the patient not to feel well. The problem I have come across is none of my doctors treat thyroid disorders as a whole body system. An Endo treats the thyroid; a gyn treats reproductive hormones, and so on. I have had some pretty weird psyche symptoms when I was hypo/hyper that disappeared with thyroid medication adjustments. You did not mention what treatment your endo doctor recommended after seeing her. Did she decrease Synthroid? The east coast specialist I saw last year told me to be patient. Rome was not built in a day and regulating a thyroid is just as difficult. Let us know what your GP says. Nan I am just not sure where to go with all this anymore. After going to see the endo in July, she upped the Synthroid to .125. After several weeks, I still felt lousy -- same symptoms (memory loss, brain fog, no energy) so I took matters into my own hands and upped it myself, by taking the .125 and half of the .112 that I had left over. Went back last week and my tsh was .1 (hyper), free t4 was 1.9 (0.8-1.8), t3 uptake was 39 (22-35%) and free t4 index (t7) was 4.7 (1.4-3.8). I think she was annoyed with me <g> Problem being, if I am *hyper* then why do I still have the same symptoms? Nothing has changed really. So I called my family doctor, even though I don't really trust him, and I have an appointment this morning. I am beginning to think that maybe it is a type of clinical depression - symptoms are the same, although certainly not the typical sad depression so who knows. --Alina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2006 Report Share Posted October 3, 2006 The endo changed the synthroid to .137 since I guess she figured .125 wasn't enough to change the symptoms, but clearly the .181 I was taking was too much. Other than that, she told me to come back in 3 months. I know that in some circles (specifically, another group I was on) it is believed that the thyroid controls every aspect of your life, but I'm not convinced that's so. Regardless, I spent nearly an hour with my primary this morning who may not be the useless doctor I thought earlier. He (and I agree with him) feels that I am "depressed" -- not the sad, suicidal type, but the "something's not firing right in the brain" chemical imbalance type. These are symptoms that if I think hard enough, that I've had for a very long time - whether they came before or after the hashi's, I can't say. The hashi's has been around for 12 years. While I don't argue that the thyroid is not helping the situation, I think (hope) that there may be something else going on. I know that hormonally I'm out of whack. The gyn found an elevated prolactin level in May, which brought on the visit to the endo, who found a small prolactinoma on the pituitary, which was trying to force me into menopause, lowered my estradiol and made my periods disappear. With the meds for the prolactinoma, I think things are getting back to normal in that department. very complicated <g> and I think your three-legged stool analogy is right on target. I don't know. At this point, I don't care what they call it or what it is, I just know I can't keep living in this fog. Hope a little Prozac works :-) --Alina Alina,I understand your frustration. I feel the same way. Endos told me it takes 4 to 6 weeks for the body to adjust to a thyroid medication change. I usually feel lousy the first month. Patients can be hyper and have hypo symptoms and vice versa due to hormone ( thyroid, adrenaline, reproductive hormone imbalance.) The endo system is like a three legged stool with each leg representing different hormones that need to be balanced for a patient to feel good. If one is deficient, the shortage would cause a stool to wobble and the patient not to feel well.The problem I have come across is none of my doctors treat thyroid disorders as a whole body system. An Endo treats the thyroid; a gyn treats reproductive hormones, and so on. I have had some pretty weird psyche symptoms when I was hypo/hyper that disappeared with thyroid medication adjustments. You did not mention what treatment your endo doctor recommended after seeing her. Did she decrease Synthroid? The east coast specialist I saw last year told me to be patient. Rome was not built in a day and regulating a thyroid is just as difficult. Let us know what your GP says.Nan I am just not sure where to go with all this anymore. After going to see the endo in July, she upped the Synthroid to .125. After several weeks, I still felt lousy -- same symptoms (memory loss, brain fog, no energy) so I took matters into my own hands and upped it myself, by taking the .125 and half of the .112 that I had left over. Went back last week and my tsh was .1 (hyper), free t4 was 1.9 (0.8-1.8), t3 uptake was 39 (22-35%) and free t4 index (t7) was 4.7 (1.4-3.8). I think she was annoyed with me <g> Problem being, if I am *hyper* then why do I still have the same symptoms? Nothing has changed really. So I called my family doctor, even though I don't really trust him, and I have an appointment this morning. I am beginning to think that maybe it is a type of clinical depression - symptoms are the same, although certainly not the typical sad depression so who knows. --Alina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2006 Report Share Posted October 3, 2006 Alina, I hit the wall of I can't live this way any longer many times and understand. I hope prozac helps. What was your TSH etc before the endo changed you to 125? I am in the same boat as you. Medication doses that are too high or low and leave me symptomatic. I wish you luck. Nan The endo changed the synthroid to .137 since I guess she figured .125 wasn't enough to change the symptoms, but clearly the .181 I was taking was too much. Other than that, she told me to come back in 3 months. I know that in some circles (specifically, another group I was on) it is believed that the thyroid controls every aspect of your life, but I'm not convinced that's so. Regardless, I spent nearly an hour with my primary this morning who may not be the useless doctor I thought earlier. He (and I agree with him) feels that I am "depressed" -- not the sad, suicidal type, but the "something's not firing right in the brain" chemical imbalance type. These are symptoms that if I think hard enough, that I've had for a very long time - whether they came before or after the hashi's, I can't say. The hashi's has been around for 12 years. While I don't argue that the thyroid is not helping the situation, I think (hope) that there may be something else going on. I know that hormonally I'm out of whack. The gyn found an elevated prolactin level in May, which brought on the visit to the endo, who found a small prolactinoma on the pituitary, which was trying to force me into menopause, lowered my estradiol and made my periods disappear. With the meds for the prolactinoma, I think things are getting back to normal in that department. very complicated <g> and I think your three-legged stool analogy is right on target. I don't know. At this point, I don't care what they call it or what it is, I just know I can't keep living in this fog. Hope a little Prozac works :-) --Alina Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.