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Alina,

I understand your frustration. I feel the same way. Endos told me it takes 4 to 6 weeks for the body to adjust to a thyroid medication change. I usually feel lousy the first month. Patients can be hyper and have hypo symptoms and vice versa due to hormone ( thyroid, adrenaline, reproductive hormone imbalance.) The endo system is like a three legged stool with each leg representing different hormones that need to be balanced for a patient to feel good. If one is deficient, the shortage would cause a stool to wobble and the patient not to feel well.

The problem I have come across is none of my doctors treat thyroid disorders as a whole body system. An Endo treats the thyroid; a gyn treats reproductive hormones, and so on.

I have had some pretty weird psyche symptoms when I was hypo/hyper that disappeared with thyroid medication adjustments.

You did not mention what treatment your endo doctor recommended after seeing her. Did she decrease Synthroid? The east coast specialist I saw last year told me to be patient. Rome was not built in a day and regulating a thyroid is just as difficult.

Let us know what your GP says.

Nan

I am just not sure where to go with all this anymore.

After going to see the endo in July, she upped the Synthroid to .125. After several weeks, I still felt lousy -- same symptoms (memory loss, brain fog, no energy) so I took matters into my own hands and upped it myself, by taking the .125 and half of the .112 that I had left over.

Went back last week and my tsh was .1 (hyper), free t4 was 1.9 (0.8-1.8), t3 uptake was 39 (22-35%) and free t4 index (t7) was 4.7 (1.4-3.8).

I think she was annoyed with me <g>

Problem being, if I am *hyper* then why do I still have the same symptoms? Nothing has changed really.

So I called my family doctor, even though I don't really trust him, and I have an appointment this morning. I am beginning to think that maybe it is a type of clinical depression - symptoms are the same, although certainly not the typical sad depression so who knows.

--Alina

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The endo changed the synthroid to .137 since I guess she figured .125 wasn't enough to change the symptoms, but clearly the .181 I was taking was too much. Other than that, she told me to come back in 3 months.

I know that in some circles (specifically, another group I was on) it is believed that the thyroid controls every aspect of your life, but I'm not convinced that's so.

Regardless, I spent nearly an hour with my primary this morning who may not be the useless doctor I thought earlier.

He (and I agree with him) feels that I am "depressed" -- not the sad, suicidal type, but the "something's not firing right in the brain" chemical imbalance type. These are symptoms that if I think hard enough, that I've had for a very long time - whether they came before or after the hashi's, I can't say. The hashi's has been around for 12 years. While I don't argue that the thyroid is not helping the situation, I think (hope) that there may be something else going on.

I know that hormonally I'm out of whack. The gyn found an elevated prolactin level in May, which brought on the visit to the endo, who found a small prolactinoma on the pituitary, which was trying to force me into menopause, lowered my estradiol and made my periods disappear. With the meds for the prolactinoma, I think things are getting back to normal in that department.

very complicated <g> and I think your three-legged stool analogy is right on target.

I don't know. At this point, I don't care what they call it or what it is, I just know I can't keep living in this fog. Hope a little Prozac works :-)

--Alina

Alina,I understand your frustration. I feel the same way. Endos told me it takes 4 to 6 weeks for the body to adjust to a thyroid medication change. I usually feel lousy the first month. Patients can be hyper and have hypo symptoms and vice versa due to hormone ( thyroid, adrenaline, reproductive hormone imbalance.) The endo system is like a three legged stool with each leg representing different hormones that need to be balanced for a patient to feel good. If one is deficient, the shortage would cause a stool to wobble and the patient not to feel well.The problem I have come across is none of my doctors treat thyroid disorders as a whole body system. An Endo treats the thyroid; a gyn treats reproductive hormones, and so on. I have had some pretty weird psyche symptoms when I was hypo/hyper that disappeared with thyroid medication adjustments. You did not mention what treatment your endo doctor recommended after seeing her. Did she decrease Synthroid? The east coast specialist I saw last year told me to be patient. Rome was not built in a day and regulating a thyroid is just as difficult. Let us know what your GP says.Nan

I am just not sure where to go with all this anymore. After going to see the endo in July, she upped the Synthroid to .125. After several weeks, I still felt lousy -- same symptoms (memory loss, brain fog, no energy) so I took matters into my own hands and upped it myself, by taking the .125 and half of the .112 that I had left over. Went back last week and my tsh was .1 (hyper), free t4 was 1.9 (0.8-1.8), t3 uptake was 39 (22-35%) and free t4 index (t7) was 4.7 (1.4-3.8). I think she was annoyed with me <g> Problem being, if I am *hyper* then why do I still have the same symptoms? Nothing has changed really. So I called my family doctor, even though I don't really trust him, and I have an appointment this morning. I am beginning to think that maybe it is a type of clinical depression - symptoms are the same, although certainly not the typical sad depression so who knows. --Alina

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Alina,

I hit the wall of I can't live this way any longer many times and understand. I hope prozac helps. What was your TSH etc before the endo changed you to 125?

I am in the same boat as you. Medication doses that are too high or low and leave me symptomatic.

I wish you luck.

Nan

The endo changed the synthroid to .137 since I guess she figured .125 wasn't enough to change the symptoms, but clearly the .181 I was taking was too much. Other than that, she told me to come back in 3 months.

I know that in some circles (specifically, another group I was on) it is believed that the thyroid controls every aspect of your life, but I'm not convinced that's so.

Regardless, I spent nearly an hour with my primary this morning who may not be the useless doctor I thought earlier.

He (and I agree with him) feels that I am "depressed" -- not the sad, suicidal type, but the "something's not firing right in the brain" chemical imbalance type. These are symptoms that if I think hard enough, that I've had for a very long time - whether they came before or after the hashi's, I can't say. The hashi's has been around for 12 years. While I don't argue that the thyroid is not helping the situation, I think (hope) that there may be something else going on.

I know that hormonally I'm out of whack. The gyn found an elevated prolactin level in May, which brought on the visit to the endo, who found a small prolactinoma on the pituitary, which was trying to force me into menopause, lowered my estradiol and made my periods disappear. With the meds for the prolactinoma, I think things are getting back to normal in that department.

very complicated <g> and I think your three-legged stool analogy is right on target.

I don't know. At this point, I don't care what they call it or what it is, I just know I can't keep living in this fog. Hope a little Prozac works :-)

--Alina

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