Guest guest Posted September 17, 2006 Report Share Posted September 17, 2006 Hi Vera, Thank you for openly sharing so much of your success with us-bethanocol, stronger chelation etc. I truly appreciate all your input. We all know as parents how much we have gone through, but to not have your families support must be so difficult. Your note brought me to tears. Hopefully seeing all the wonderful gains you have made will open their eyes and minds. Congratulations on all your success with . Thanks for the phone numbers. I will be calling you. I work part time as well. Call me at home if you like . (San Diego) Where are you located, so I'm not calling too early or late? Geena is 5 and seems to have similarities to . Take care. -------------- Original message from Vera : -------------- Hi was diagnosed with moderate to severe autism and borderline mental retardation before age 3. It is very exciting, because we have definitely recovered his IQ. He is in kindergarten and the teacher just told us that he is ready to mainstream. He will have an aide but more for his back (the mercury left him with CP in his lower back) and we are doing HBOT. Technically, he is over age level for fine motor skills, math and reading. We did do the French test and his mercury is still very high. We are starting DMPS suppositories. His main two issues are that he is a little socially awkard and can not have a conversation at an age appropriate level. He still has no upper body strength but we still have more HBOT, chelation and then Carnitor and creatinine in the aresenal. We are going to see if it improves on its own over the next 6 months with the stronger chelation and HBOT, if not we will try the creatinine and/or the Carnitor. He really needs the hard chamber HBOT (not just the soft chamber due to the CP). It costs $80,000. We are going to apply to a foundation to see if they can help. My number is (714)734-3818 (home) or (949)253-5221 (at work but better to talk). If you would like to talk please feel free to call. I only work part-time but the (949)253-5221 is a private line and you can leave a message. I can return it almost always within one day. gets really upset when I talk about his condition. I try to leave the room, but he knows what I am doing, and it bothers him. He has asked me never to say the "A" word again. So I try to have these conversations at work. It is always nice to talk to other parents, because in many respects, we are so alone. Personally, Rob and I have zero family support -- they more or less disowned us when we told them we would not put him in an institution. Best wishes and please let me know if I can better answer your question. Sincerely, Vera arvinseroj <arvinseroj> wrote: Hi Vera, could you tell me,about your son's condition right now, my understanding is, that he is very close to recovery.thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2006 Report Share Posted September 17, 2006 Sorry Vera, I just realized this note was not meant for the group. I 've been wanting to thank you anyways. -------------- Original message from gartgal@...: -------------- Hi Vera, Thank you for openly sharing so much of your success with us-bethanocol, stronger chelation etc. I truly appreciate all your input. We all know as parents how much we have gone through, but to not have your families support must be so difficult. Your note brought me to tears. Hopefully seeing all the wonderful gains you have made will open their eyes and minds. Congratulations on all your success with . Thanks for the phone numbers. I will be calling you. I work part time as well. Call me at home if you like . (San Diego) Where are you located, so I'm not calling too early or late? Geena is 5 and seems to have similarities to . Take care. -------------- Original message from Vera <sircarlitosbcglobal (DOT) net>: -------------- Hi was diagnosed with moderate to severe autism and borderline mental retardation before age 3. It is very exciting, because we have definitely recovered his IQ. He is in kindergarten and the teacher just told us that he is ready to mainstream. He will have an aide but more for his back (the mercury left him with CP in his lower back) and we are doing HBOT. Technically, he is over age level for fine motor skills, math and reading. We did do the French test and his mercury is still very high. We are starting DMPS suppositories. His main two issues are that he is a little socially awkard and can not have a conversation at an age appropriate level. He still has no upper body strength but we still have more HBOT, chelation and then Carnitor and creatinine in the aresenal. We are going to see if it improves on its own over the next 6 months with the stronger chelation and HBOT, if not we will try the creatinine and/or the Carnitor. He really needs the hard chamber HBOT (not just the soft chamber due to the CP). It costs $80,000. We are going to apply to a foundation to see if they can help. My number is (714)734-3818 (home) or (949)253-5221 (at work but better to talk). If you would like to talk please feel free to call. I only work part-time but the (949)253-5221 is a private line and you can leave a message. I can return it almost always within one day. gets really upset when I talk about his condition. I try to leave the room, but he knows what I am doing, and it bothers him. He has asked me never to say the "A" word again. So I try to have these conversations at work. It is always nice to talk to other parents, because in many respects, we are so alone. Personally, Rob and I have zero family support -- they more or less disowned us when we told them we would not put him in an institution. Best wishes and please let me know if I can better answer your question. Sincerely, Vera arvinseroj <arvinseroj> wrote: Hi Vera, could you tell me,about your son's condition right now, my understanding is, that he is very close to recovery.thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2006 Report Share Posted September 27, 2006 Hi Vera, I remember, you said about vitamin A protocal, for 2 days, my question is that my son started, Valtrex and diflucan, but he turns his head to sides, left and right side, and that became a habit, is it safe to start only vitamin A, to salve that problem while he is on Valtrex, or I should wait for a while, and do it later with Bethanocal and vitamin A. thanks in advance. Quote Link to comment Share on other sites More sharing options...
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