Guest guest Posted October 12, 2008 Report Share Posted October 12, 2008 Can someone explain to me about IGE levels? hugsKaybeez wrote: Do you really think prednisone lowers IGE? I thought normal levels were 114? I think 270 is very good. I am at my best right now at 1025. I wonder if I will get anywhere near the normal range. Barbara My IEg levels are in the 560 range. Way high. The prednisone hassuppressed them some. As of yesterday they were 270. Still way high(should be around 30). We tried the Xolair for 3 months with noclinical effect. It just did not work for me. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2008 Report Share Posted October 12, 2008 Barbara, I'm so sorry for being so rude, I don't think I ever welcomed you to the group. I'm Terry From Southern MD and have had asthma for 3 years and am still learning ALOT especially from this group, You'll love this group, Looks like you've already made some connections. Shew I'm off to bed, I can hardly keep my eye's open tonight. Been working on Soccer stuff, 20 year class reunion stuff, My Space page. very time consuming. I look forwarding to getting to know you! Terry Head Coach to the Chaney Bull DogsI know God will not give me anything I can't handle. I just wish that He didn't trust me so much. ~Mother Teddy Bear's Early Learning ProgramEstablished August of 1992 From: asthma [mailto:asthma ] On Behalf Of beezSent: Sunday, October 12, 2008 7:12 PMTo: asthma Subject: IGE levels Do you really think prednisone lowers IGE? I thought normal levels were 114? I think 270 is very good. I am at my best right now at 1025. I wonder if I will get anywhere near the normal range. Barbara My IEg levels are in the 560 range. Way high. The prednisone hassuppressed them some. As of yesterday they were 270. Still way high(should be around 30). We tried the Xolair for 3 months with noclinical effect. It just did not work for me. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2008 Report Share Posted October 12, 2008 According to the specialized pulmonologist at the Mayo Clinic the steroids do suppress IGE. He said that anything over 30 indicates an allergic reaction, but to be considered for Xolair it had to be over 100 (that may be where the 114 number comes in). He also indicated that most insurances won't cover it unless the number is a good bit higher than that. The first time I tested last September my number was 430 and just slowly climbed to 570 (I think I said 560 before). Madeline > > Do you really think prednisone lowers IGE? > > I thought normal levels were 114? I think 270 is very good. > > I am at my best right now at 1025. I wonder if I will get anywhere near the > normal range. > > Barbara > > > > _____ > > > > My IEg levels are in the 560 range. Way high. The prednisone has > suppressed them some. As of yesterday they were 270. Still way high > (should be around 30). We tried the Xolair for 3 months with no > clinical effect. It just did not work for me. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2008 Report Share Posted October 13, 2008 Hi Madeline, Again thank you for that information. I get copies of my blood tests and that’s where I saw 114. I thought if your IGE was high you would produce loads of mucus as a reaction to an allergen. I am over 1,000 and at this time that is not happening. My symptoms seem more like asthma with shortness of breath, tightness and fatigue. If people with asthma are under 1,000 then I wonder I am still so high? Does anyone else on the list have any information? Barb According to the specialized pulmonologist at the Mayo Clinic the steroids do suppress IGE. He said that anything over 30 indicates an allergic reaction, but to be considered for Xolair it had to be over 100 (that may be where the 114 number comes in). He also indicated that most insurances won't cover it unless the number is a good bit higher than that. The first time I tested last September my number was 430 and just slowly climbed to 570 (I think I said 560 before). Madeline Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2008 Report Share Posted October 13, 2008 > Xolair can take a year or longer sometimes to reach any benefits Three months does not seem very long to decide it wasn't working. Was it your decision to stop or someone else's. If you have coverage for this drug you may want to give it another try. It has taken me off of oral steroids and others who were on a 60 mg. maintanance dose of prednisone. I like being able to breathe with the windows open and my neighbors cutting grass everyday. Sharon > > My IEg levels are in the 560 range. Way high. The prednisone has > suppressed them some. As of yesterday they were 270. Still way high > (should be around 30). We tried the Xolair for 3 months with no > clinical effect. It just did not work for me. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2008 Report Share Posted October 13, 2008 Sharon, From my understanding is that 6 months is the norm for determination of effectiveness of Xolair. Our decision was made by the fact that while I was on it my IEG numbers kept climbing and I was deteriorating. Actually ended up in the hospital 3 times. At the end of the 3 months it was a joint decision by me and my doc to discontinue it. From my research and his knowledge, I should have at least seen a stability in my IEG numbers at that point, and as I said they were continuing to climb. We may try it again at a later point, but right now the steroid issue is the big thing on our list. Also starting pulmonary rehab on the 21st to try to rebuild some smooth muscle wall strength. Madeline > > > Xolair can take a year or longer sometimes to reach any benefits > Three months does not seem very long to decide it wasn't working. Was > it your decision to stop or someone else's. If you have coverage for > this drug you may want to give it another try. It has taken me off of > oral steroids and others who were on a 60 mg. maintanance dose of > prednisone. I like being able to breathe with the windows open and my > neighbors cutting grass everyday. Sharon > > > > My IEg levels are in the 560 range. Way high. The prednisone has > > suppressed them some. As of yesterday they were 270. Still way high > > (should be around 30). We tried the Xolair for 3 months with no > > clinical effect. It just did not work for me. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2008 Report Share Posted October 13, 2008 Not all allergy attacks involve lots of mucus. I've had plenty of severe allergy attacks that manifested as shortness of breath only: no runny nose, no itchy eyes, no coughing. With my food allergies, which can easily get my asthma going, I can't even say my stomach bothers me. > > Hi Madeline, > > Again thank you for that information. I get copies of my blood tests and > that's where I saw 114. > > I thought if your IGE was high you would produce loads of mucus as a > reaction to an allergen. > > I am over 1,000 and at this time that is not happening. > > My symptoms seem more like asthma with shortness of breath, tightness and > fatigue. If people with asthma are under 1,000 then I wonder I am still so > high? Does anyone else on the list have any information? > > Barb > > > > _____ > > > > According to the specialized pulmonologist at the Mayo Clinic the > steroids do suppress IGE. He said that anything over 30 indicates an > allergic reaction, but to be considered for Xolair it had to be over > 100 (that may be where the 114 number comes in). He also indicated > that most insurances won't cover it unless the number is a good bit > higher than that. The first time I tested last September my number > was 430 and just slowly climbed to 570 (I think I said 560 before). > Madeline > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2008 Report Share Posted October 14, 2008 Hi Madeline, Please let us know it is going well. Thanks, Alana > starting pulmonary rehab on the 21st to try to rebuild some smooth > muscle wall strength. Quote Link to comment Share on other sites More sharing options...
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