Guest guest Posted July 24, 2008 Report Share Posted July 24, 2008 I really need to vent about what's been happening to me lately and I appreciate all of you letting me do it. I was diagnosed with CFIDS about 3 years ago. In the past 2 weeks several things have happened to frustrate me beyond explaination. First, my claim for a second opinion with another infectious disease specialist was rejected by my health insurance carrier stating my plan only covers one consultation per year, per specialty. That's ridiculous when you have disease that so many MDs don't understand. Next, my MD recommended I try infused gamma globulin because my IG levels are slightly below normal and the IM gamma globulin shots did not raise the levels. CFIDS is not a reason to administer infused gamma globulin according to the PBM that administers my drug benefit. Does anyone have any medical references on this topic? Topping it off, I'm fortunate enough to be able to work. I've been feeling more exhausted lately and I'm very concerned about " hitting the wall " so I came home from work today and went to bed for a 2 hour nap. After I got up and my husband came in from outside he asked me if I was okay. I said yes, just really tired. He actually responded, " what are you tired from? " I wanted to scream at him but I knew if I started I wouldn't stop and it would take too much energy. Thanks for listening. Quote Link to comment Share on other sites More sharing options...
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