Re: New member, and Fibro info

[Guest guest]

Hi and Welcome , I really agree with your perspective that Fibro is all

too often a “go-along” disease with other processes. I wonder if you have

checked out the more “pure” ME definition as vs. the more generalized CFS

one, given the level of disability you have experienced at times that

outstrips your other diagnoses. I think it is also very common to have a

“Nonspecific Inflammatory Arthritis”, as my Rheumie called it for me,

somewhere between RA, AS, Lupus etc. but not fitting neatly into one

category.

And I must say that the best level of REAL care I have received has been at

the very skilled hands of my alternative multimodal practitioner, TCM but

with many other modalities to work with as well, highly trained and

experienced. What field is your training in? Have you tried Curcumin for

your pain? I find it really helps with the arthritic pain (I’m

anaphylactically allergic to all NSAIDS and so do not have other options).

Rest up, feel better, and again, Welcome! Aylwin

[Guest guest]

Thanks so much Dr C and welcome. Reading your story was really

interesting and i feel like i can totally relate to you. I feel the

same way, in the way that fibro seems like a symptom of something

bigger. I asked my doc about this and she said she would of thought i

had Lupus had the blood test not come negitive. Its very confusing

and frustrating isn't it.

Thanks for sharing your story with us.

Gentle hugs

dee

>

> Hello Everyone! I am new here and my name is Dr. Craft, I

have

> had CFS, Fibro, and auto immune disease from about 15, I am now

just

> about to turn 29. At various times of my life I have been

completely

> disabled by these diseases, and was bed ridden and could not

complete

> basic functions on my own. For a few years I was in a wheelchair,

for

> longer on a cane. In all these years, I have yet to find a doc that

> can give me any real answers, give me treatments for the problem

not

> the symptoms, or treat everything as a whole and not just little

> pieces of the puzzle here and there. Unfortunatly, to respond to

the

> Fibro topic, as in many chronic illness, there is a GREAT deal of

> pain, and treatment most often includes the treatment of the

symptoms

> themselves since if there was a real treatment for the disease,

> millions of us would have our lives back.

[Guest guest]

Hi Dr. C,

Welcome to the group! What is your doctorate in?

Any questions ask, I'm not shy. Take care of you.

Big gentle huggles,

Di in Feasterville-Trevose, PA, USA )