Sjogren's syndrome: a guide

[Guest guest]

" Sjogren's Syndrome: A Guide for the Patient " :

http://www.myalgia.com/sjogrens.htm

[Guest guest]

Hi , thanx forthe info on Sjogren's...my rheummy told melast week she

believes I need to add this to my list of ailments...the info was timely and

helpful...I see my eye doc next week...A question for you...my rheummy also

told me to start phasing off the premarin (Ogen) i have been on since my

hysterectomy about 12 years ago. I changed to every other day for a few

weeks then will reduce it again. She also told me to add soy to my diet and

to take a soy supplement vitamin. I have taken in for 3 days and promptly

throw up...could it be it is toxic with one of my meds? Or, could it be I am

just allergic to the soy? the pharmacist told me to stop the soy

immediately...so I did...but what can I use instead of the premarin? any

thoughts you have would sure be appreciated...I have been doing well on the

combo of meds I am on...but obviously if I can't keep them in my

system...the symptoms of RA have returned in the worst flare I have had in

months....thanks ahead of time for any info you can send my way...hope you

are feeling well today...fall usually is a good time for most of us it

seems, hope you are having a painfree day...marge

[ ] Sjogren's syndrome: a guide

> " Sjogren's Syndrome: A Guide for the Patient " :

>

> http://www.myalgia.com/sjogrens.htm

>

>

>

>

>

[Guest guest]

Hi Marge,

Regarding your reaction to soy, my sister decided to try a soy supplement a

few years ago as a natural method to reduce effects of hot flashes. (Had

opted not to use HRT.)

Turns out after a very short amount of time she found out she was allergic

to soy and actually went into anaphylactic shock. Being the daughter of a

druggist and

married to a pharmacist, she had benadryl on hand. Now she is super

sensitive to all things soy, even newsprint. It is amazing the number of

things that contain soy. I think you will also find that there are large

numbers of people allergic to soy.

Sorry you are in a flare, hope you get it under control quickly.

Suzanne in NW FL

Re: [ ] Sjogren's syndrome: a guide

> Hi , thanx forthe info on Sjogren's...my rheummy told melast week she

> believes I need to add this to my list of ailments...the info was timely

and

> helpful...I see my eye doc next week...A question for you...my rheummy

also

> told me to start phasing off the premarin (Ogen) i have been on since my

> hysterectomy about 12 years ago. I changed to every other day for a few

> weeks then will reduce it again. She also told me to add soy to my diet

and

> to take a soy supplement vitamin. I have taken in for 3 days and promptly

> throw up...could it be it is toxic with one of my meds? Or, could it be I

am

> just allergic to the soy? the pharmacist told me to stop the soy

> immediately...so I did...but what can I use instead of the premarin? any

> thoughts you have would sure be appreciated...I have been doing well on

the

> combo of meds I am on...but obviously if I can't keep them in my

> system...the symptoms of RA have returned in the worst flare I have had in

> months....thanks ahead of time for any info you can send my way...hope you

> are feeling well today...fall usually is a good time for most of us it

> seems, hope you are having a painfree day...marge

[Guest guest]

Sorry about your Sjogren's, Marge. I hope you can find a way to be

comfortable.

As far as the Premarin and the soy supplement, I would call your

rheumatologist and tell her what happened and ask for suggestions. I'm

in the pharmacist's camp. Don't take the soy supplement anymore before

talking to your doctor.

Until you can speak with your rheumatologist, here is some interesting

reading:

What healingdeva.com says about HRT alternatives:

http://healingdeva.com/hrt.htm

There are a lot of interesting links here at the Feminist Women's Health

Center:

http://www.fwhc.org/menopause/menopause.htm

Thanks for the good wishes. So far, it's a good day. I hope you will

enjoy it, too!

Re: [ ] Sjogren's syndrome: a guide

> Hi , thanx forthe info on Sjogren's...my rheummy told melast week

she

> believes I need to add this to my list of ailments...the info was

timely and

> helpful...I see my eye doc next week...A question for you...my rheummy

also

> told me to start phasing off the premarin (Ogen) i have been on since

my

> hysterectomy about 12 years ago. I changed to every other day for a

few

> weeks then will reduce it again. She also told me to add soy to my

diet and

> to take a soy supplement vitamin. I have taken in for 3 days and

promptly

> throw up...could it be it is toxic with one of my meds? Or, could it

be I am

> just allergic to the soy? the pharmacist told me to stop the soy

> immediately...so I did...but what can I use instead of the premarin?

any

> thoughts you have would sure be appreciated...I have been doing well

on the

> combo of meds I am on...but obviously if I can't keep them in my

> system...the symptoms of RA have returned in the worst flare I have

had in

> months....thanks ahead of time for any info you can send my way...hope

you

> are feeling well today...fall usually is a good time for most of us it

> seems, hope you are having a painfree day...marge

[Guest guest]

Hi Suzanne, thanks for your response...it probably is an allergic kind of

thing...but amazing to me I have always loved chinese food and pour on the

soy sauce...I'm wondering if its some of the meds I am on for ra...but I

have had chinese food since being on the mtx, plaquenil, folic acid and

etal....just seems strange to have happened so quickly after starting soy

vitamins...I have stopped all soy and I guess chinese food too since last

weeks episode...i'm also thinking the loss of the ra meds when I lost

everything else...has put me into the flare...today was definately

better...so luckily maybe its a short flare....I liked the saying someone

said here recently... " each day is a gift not a given " I am starting to get

back into gratitude for the good days...thanks for listening and

responding...I really appreciate your support and thoughts...m\hope you are

having a good day....marge

Re: [ ] Sjogren's syndrome: a guide

>

>

> > Hi , thanx forthe info on Sjogren's...my rheummy told melast week

she

> > believes I need to add this to my list of ailments...the info was timely

> and

> > helpful...I see my eye doc next week...A question for you...my rheummy

> also

> > told me to start phasing off the premarin (Ogen) i have been on since

my

> > hysterectomy about 12 years ago. I changed to every other day for a few

> > weeks then will reduce it again. She also told me to add soy to my diet

> and

> > to take a soy supplement vitamin. I have taken in for 3 days and

promptly

> > throw up...could it be it is toxic with one of my meds? Or, could it be

I

> am

> > just allergic to the soy? the pharmacist told me to stop the soy

> > immediately...so I did...but what can I use instead of the premarin? any

> > thoughts you have would sure be appreciated...I have been doing well on

> the

> > combo of meds I am on...but obviously if I can't keep them in my

> > system...the symptoms of RA have returned in the worst flare I have had

in

> > months....thanks ahead of time for any info you can send my way...hope

you

> > are feeling well today...fall usually is a good time for most of us it

> > seems, hope you are having a painfree day...marge

>

>

>

>

>

[Guest guest]

Thanks again for all the info on Sjorgens...I saw the eye doc

tonight...in addition to needing a new px for glasses...he confirmed the

sjorgens and I am starting on eye drops...he has scheduled two more tests in

a couple weeks because he got side-tracked and concerned over my blood

pressure...about 6 weeks ago, my GP took me off the bp med becuase it had

been normal for over a year...tonight it was so high...the eye doc sent me

to the med station...they put me back on bp meds and made me stay there

until the bp went down...I see my GP on friday and will see what happens. 2

weeks ago my rheummy took me off the premarin I have been on for 12 years

and added soma for sleep...I am wondering if there is any connection between

all of this. by the way, I am phasing off the premarin just one every other

day...any ideas??? marge

Re: [ ] Sjogren's syndrome: a guide

>

>

> > Hi , thanx forthe info on Sjogren's...my rheummy told melast week

> she

> > believes I need to add this to my list of ailments...the info was

> timely and

> > helpful...I see my eye doc next week...A question for you...my rheummy

> also

> > told me to start phasing off the premarin (Ogen) i have been on since

> my

> > hysterectomy about 12 years ago. I changed to every other day for a

> few

> > weeks then will reduce it again. She also told me to add soy to my

> diet and

> > to take a soy supplement vitamin. I have taken in for 3 days and

> promptly

> > throw up...could it be it is toxic with one of my meds? Or, could it

> be I am

> > just allergic to the soy? the pharmacist told me to stop the soy

> > immediately...so I did...but what can I use instead of the premarin?

> any

> > thoughts you have would sure be appreciated...I have been doing well

> on the

> > combo of meds I am on...but obviously if I can't keep them in my

> > system...the symptoms of RA have returned in the worst flare I have

> had in

> > months....thanks ahead of time for any info you can send my way...hope

> you

> > are feeling well today...fall usually is a good time for most of us it

> > seems, hope you are having a painfree day...marge

>

>

>