Guest guest Posted December 17, 2008 Report Share Posted December 17, 2008 Congratulations on getting your electricity back. We missed the storm by 1 mile and I am eternally greatful that we didn¹t have to deal with it as I am also having a bad flare up. If your problem is fibro and pain you might want to call Dr. Goldenberg. For what it is worth, my PCP recommended him but my problem is fatigue and he doesn¹t treat fatigue. Newton, MA Dr. Don L. Goldenberg Newton-Wellesley Hospital Arthritis-Fibromyalgia Center 2000 Washington Street, #304 Newton, MA 02462 Tel: Fax: (FMS. " Dr. Goldenberg is one of the pioneers of FM research and combines more than 25 years experience to treat patients through his facility, offering both advice and treatment to patients and their personal doctors. He is well-versed in many of the current treatments and is a leader in medical research for the treatment of FM. " ) Try Darren Lynch, MD Family Practice and Integrative Medicine http://northamptonwellness.com/practitioners.php. Some one a this or another yahoo group suggested him. I spoke with his receptionist this week and it sounded like he saw several CFS patients a week and his treatments were similar to the FFC center. Dr. Leonid Gordin at the Marino Center in Cambridge treats CFS and fibro patients. He is wonderful, caring dr. who really liscences but he doesn¹t claim to be an expert but definitely can help. There is also about a month wait to see him. He only uses holistic treatments but, if you really needed prescriptions, would suggest that you would need to request them from your PCP. My PCP doctor wants me to see a Lyme literate dr. so that is my step even though all my tests are negative. But then the tests are totally unreliable. If you see Dr. Lynch, let me know what you think as that will be my next option. Also you could try the Fibro and Fatigue Center in Norwalk, Ct. Let me know how it goes. Lois Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2008 Report Share Posted December 18, 2008 I have pretty much seen every doc in Mass and personally there was a LOT left to be desired. I left Dr. Goldberg or Goldbloom what ever it is, in tears and it got me no where. At that point I needed a cane to walk, and he was not taking my pain seriously and I got the impression he knew very little about CFS and it as a disease process from the things he said. But that was a few years ago. But, just to clarify, especialy for any new members, Fibro is NOT CFS, they are 2 different conditions. Most people with ME and CFS and CFIDS and many many other conditions have Fibro, and I think thats why there seems to be alot of confusion out there about Fibro. Fibro is really a set of symptoms, not a disease process on its own - there is a disease process at work that cuases the Fibro. Cause and effect. I think once the diagnostic process gets more well known and refined it will be widely understood by all docs that CFS, ME, other type conditions cuase wide spread body pain becuase of how our neuro system functions. I still remember the days when it was though Fibro was just a muscle thing! Now we know so much more and we know its faulty functioning pain receptors in our neuro system. These conditions are all very painfull and all have exhaustion as a symptom so finding a doc that can handle ALL the issues, not just those two, is the KEY. For some reason around here, thats VERY RARE indeed!!!! Im lucky I have such a great primary care doc or I would really be screwed! Blessings Dr. Quote Link to comment Share on other sites More sharing options...
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