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Kathi Okie

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((((((((((((Kathi))))))))))))....what a wonderful job of packing so much

information about scleroderma in one poem! I'm so sorry for all you

experience...I do think it is helpful to get the feelings, the

descriptons, the fears, the symptoms down on paper (or email!) Somehow

it makes the nasty disease not seem quite as powerful. We have to be

our own best advocates, and I truly believe visually reading your truth,

your experience, makes us stronger in our efforts to advocate for

ourselves to receive the best possible medical care.

Many Hugs My Okie-Girl...I love you bunches!

Tess

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