Re: Recovery Center

[Guest guest]

Hi Alia, I’m sure the time off would do you some good and it sounds really

nice & cushy, but I’d bet my life it’s no cure. So that’s just what I think!

If you can afford it, it might not hurt! But if you can’t…is it worth the

risk of all that $$$? Aylwin xox

[Guest guest]

>

> I'm thinking about taking a term off from school and going to this

recovery center retreat place for a few weeks. I don't know. It would

be nice to get away from the stress of my daily life and get treated

in a more comprehensive way. Seeing a nutritionist would probably be

good. What do you guys think? Here's the website:

http://www.thebridgerecoverycenter.com/

>

> -Alia

>

Hi Alia: Place looks wonderful. However, i agree with the others and

would have posted their comments as well; but, wont repeat LOL.

If i were wealthy , i would be jumping on a plane and meeting you there!

Hey, we could all go and really have a group !

Anyway, there are many wellness places; so if this is really something

you would like to do and can afford to do.....then I would advise

searching the net and looking at several to make appropriate choice

for you.

I would urge you not to expect any great miracle; because you

basically are going to be pampered for 19 days or so (you can even

have a massage everyday) thats one thing that helps my fibromyalgia

the most.

Also, I checked with the Better Business Bureau and the owner is

listed there (he is not a doctor) it is listed as a health resort.

There are no complaints on file and he is listed as a member of the BBB.

He started the business in 1999 and incorporated in 2001

Additional DBA Names

Bridge (The)

Health Restoration Systems, Inc.

Bridge Health Recovery Center (The)

Hope this helps you in making a decision that is good for you.

Getting some R & R is great for those with CFIDS and FMS, you might

want to figure up the cost of a vacation (alone or with a close

friend) include cost of daily massage, seeing nutritionist, etc and

deciding if that would be the way to go. Just a thought.Five start

hotels have massage therapists and nutritional food. I have stayed in

5 star hotels before and there is a difference !

If you go, please let us know how you do

Remember, that if stressful on your finances; then stress will be

waiting for you when you return home. I am not trying to talk you out

of it, just bringing ideas up that you may not have thought of.

Wish you the best

Blessings

Debby

[Guest guest]

Thanx everyone for your comments. It helps. I have family willing to pay if I

go to that place, but I stil don't know. I guess the idea appeals to me because

I'm not really seeing a dr who understands CFS incredibly well. Today he told me

that he thinks expecting to be able to change my sleep probs may be unreasonable

because I'm not active enough and am laying down a lot during the day. He also

told me that the reason I feel better w/ b-12 injections but don't feel much

better w/ oral b-12 may be because of a placebo effect. He did recomend vitamin

D, which I haven't tried before. Maybe I just need to find a way to get to

Portland to see a CFS/FMS specialist. It's actually easier in a way for me to

get to the airport (on a shuttle) and go somewhere than to drive myself to

Portland.

-Alia

[Guest guest]

Hi Alia, well, the retreat place sounds nice, but I’d bet they take the mild

view of our serious disease. If I were you (said she in an opinionated way),

there would be more benefit to getting to a REAL doc. Just make sure it’s

someone who takes it all seriously. Your doc sounds well intentioned but

ignorant and therefore useless. That is total BS about the B12, it does work

better for most by injection, and of course there are truly helpful

supplements, but it really sounds like he just doesn’t know dick, ‘scuse my

language! Good Luck dear, Aylwin xox

[Guest guest]

The reason you feel better when you do vitamin B-12 injections is because there

is better absorption when injected vs. oral supplements. I have been doing

injections  of B-12 for several years and it does help with cognitive function,

pain and energy. I can tell because if I discontinue them I feel extra fatigue,

pain and have less cognitive function. ( Your doctor is an idiot if he/she

doesn't know that). But then again there are so many idiot doctors out there.

Are you talking about Portland , OR or Portland, MAINE. I might have a referral

for you if it is OREGON that you are talking about. Ilive in the Seattle area. 

diane

[Guest guest]

I would encourage you to try Vitamin D orally. 1, 000 IU's per day. Have a

baseline lab test done first and I bet that your levels are low. I had mine

measured last year and they were so low that I should have been hospitalized,

but of course I wasn't as my doc did'nt bother to inform me of the results until

2 MONTHS later when I just happened to be in her office. It does help with pain

and fatigue and the overall malaise. Might take a couple of months to feel

better though. Supplements never work quickly. Have periodic labs done to

monitor levels. It sounds like you live in Portland, OR because of the

suggestion of vitamin D as those of us in the pacific NW are ususally low in

vit. D-no sun and all the rain. Lots of medical research out now about  the

negative effects of low levels of Vit. D -Google it for further info.  hope this

helps you.  diane

[Guest guest]

If I were going to go anywhere, it would be to the MCC clinic in

Cologne Germany. The clinic is on the forefront of new treatments

and technologies for many serious illnesses and CFS. The

website/link below is to their website and a PDF document on how they

diagnose and treat CFS/FMS and related illnesses. I like how they

think. I wish more doctors worldwide would take this approach. My

father consulted them before decding on his cancer therapy.

http://www.cologne-model.com/

http://www.cologne-model.com/pdf/2007-01-22_15-14-30.pdf

Wishing you the best,

Jody

[Guest guest]

Some people cannot absorb the vitamins unless they are injected, there

can be different reasons for this.

Any questions ask, I'm not shy. Take care of you.

Big gentle huggles,

Di in Feasterville-Trevose, PA, USA )

[Guest guest]

Hi Jodi, yes, it does look pretty good…and they do have a similar approach

to Dr. Hyde in Canada, which is to do thorough investigations. I’m not sure

they understand the parameters of true neurological ME though. Aylwin xox

[Guest guest]

For those of you receiving B-12 injections....

How often do you get them and at what dose? About how long did it take you to

notice a difference?

I have tried them about 1x week for 8 weeks and I didn't notice any difference.

But I have CFS/ME for 17 years and suspect I am extremely deficient. I always

thought that I just needed more.

M. Brasley, Psy.D.

Associate Psychologist

Hudson River Psychiatric Center

hrpsmcb@...

[Guest guest]

I used to get them 2x a week and I felt a world better

Date: Thursday, November 20, 2008, 11:49 AM

For those of you receiving B-12 injections.. ..

How often do you get them and at what dose? About how long did it take you to

notice a difference?

[Guest guest]

Hi Meghan, well, I never noticed any difference with the B12 shots

either…and then I developed an inflammatory reaction to them and had to stop

anyway. I do have a diet with lots of full spectrum protein in it though, so

I imagine that perhaps I wasn’t deficient in the first place? I know “extra”

of certain nutrients does help us, but IMHO B12 is a hit-and-miss…helps some

folks a whole lot, and others not at all. Also, I’ve had ME for 22 years and

had “progressed” by the time I tried this. Aylwin xox

[Guest guest]

I get about 1 1/2 cc. twice a week of hydroxycobalmine B12. I started

about 4 years ago when I was in Paris and I knew that they sold over the

counter injectables. Maybe it was Paris but I noticed a boost after about 4

injections in 4 days at 1cc. Per shot. What they sell in Paris is

methycobalmine which is the same at you would get at your PCP office. I

have copied and pasted as article from ImmuneSupport. Hope that helps.

Lois

[Guest guest]

I have tried a bunch of supplements and the two that may have helped

me are Magnesium (you need to take a good Magnesium tablet -

Magnesium chelate or maleate) and NAC.

I also take D and B-vitamins and others. But the Magnesium and NAC

were recent (within the last year) that I had not taken before and I

do have now have more periods without fatigue and also stamina to do

things and not just have to lie down all the time. I still have

fatigue but not all the time and I am having days when I

feel " normal " .

[Guest guest]

I HAVE BEEN DOING b-12 INJECTIONS FOR SEVERAL YEARS. i DO 2CC IM 3 x per week. I

can't remember how long it took to see the difference as I have been on them for

so long.   Helps fatigue, cognitive function and pain. can tell the difference

when I am off of them.   diane  

[Guest guest]

2 months?! Jeez, sounds like your doc wasn't very on the ball. Yeah, I used to

live CA and got enough vitamin D there, at least during the summer. It's why I

love the sun, and why I? find OR so hard. Thankfully this winter has been

gentler. I actually live about 90 min from Portland. I've driven the distance

once, but I had to take a break at a pit stop and I spent the night in Portland

rather than driving back the same day. I started taking the vitamin D yesterday,

so here's hoping.

-Alia

Re: Recovery Center

I would encourage you to try Vitamin D orally. 1, 000 IU's per day. Have a

baseline lab test done first and I bet that your levels are low. I had mine

measured last year and they were so low that I should have been hospitalized,

but of course I wasn't as my doc did'nt bother to inform me of the results until

2 MONTHS later when I just happened to be in her office. It does help with pain

and fatigue and the overall malaise. Might take a couple of months to feel

better though. Supplements never work quickly. Have periodic labs done to

monitor levels. It sounds like you live in Portland, OR because of the

suggestion of vitamin D as those of us in the pacific NW are ususally low in

vit. D-no sun and all the rain. Lots of medical research out now about? the

negative effects of low levels of Vit. D -Google it for further info.? hope this

helps you.? diane

[Guest guest]

That's what I thought, and what I tried to tell my dr, but he kept talking

about one study. I told him I don't exactly enjoy sticking a needle in my leg

but B-12 injections are one of the few things that's ever helped me...I can

definitely tell the dif when I don't have them. The effect kicks in about 24hrs

after I have the injection and lasts for about 5 days tapering off.

-Alia

Re: Recovery Center

The reason you feel better when you do vitamin B-12 injections is because there

is better absorption when injected vs. oral supplements. I have been doing

injections? of B-12 for several years and it does help with cognitive function,

pain and energy. I can tell because if I discontinue them I feel extra fatigue,

pain and have less cognitive function. ( Your doctor is an idiot if he/she

doesn't know that). But then again there are so many idiot doctors out there.

Are you talking about Portland , OR or Portland, MAINE. I might have a referral

for you if it is OREGON that you are talking about. Ilive in the Seattle area.?

diane

[Guest guest]

Oh, and I'm in Portland, OR.

Re: Recovery Center

The reason you feel better when you do vitamin B-12 injections is because there

is better absorption when injected vs. oral supplements. I have been doing

injections? of B-12 for several years and it does help with cognitive function,

pain and energy. I can tell because if I discontinue them I feel extra fatigue,

pain and have less cognitive function. ( Your doctor is an idiot if he/she

doesn't know that). But then again there are so many idiot doctors out there.

Are you talking about Portland , OR or Portland, MAINE. I might have a referral

for you if it is OREGON that you are talking about. Ilive in the Seattle area.?

diane

[Guest guest]

I give myself 3cc 1x week. One dr I had recommended doing them up to 3x a week,

but that is way too much for my poor legs. If you do that high a dose I suggest

the longer thinner needles, hurts less. I like to do it in the evening and

usually feel the effects by the end of the next day. Drs seem to forget that not

everyone reacts the same way to things.

-Alia

[Guest guest]

Huh, I don't think I've tried magnesium, though NAC sounds familiar. I actually

went on a 3 mo birth control pill because periods are so difficult for me to go

through. I can barely get out of bed those weeks. Now I only have to go through

that 4 times a year. I have it scheduled so that it's always during a school

term break so I usually have nothing else going on.

-Alia

Re: Recovery Center

I have tried a bunch of supplements and the two that may have helped

me are Magnesium (you need to take a good Magnesium tablet -

Magnesium chelate or maleate) and NAC.

[Guest guest]

I guess that copy and paste didn¹t work when I embedded it in my e-mail. I

have attached the article on Vitamine B which I got from ImmuneSupport.com

Hope that this gives you some help.

Lois

> I get about 1 1/2 cc. twice a week of hydroxycobalmine B12. I started

> about 4 years ago when I was in Paris and I knew that they sold over the

> counter injectables. Maybe it was Paris but I noticed a boost after about 4

> injections in 4 days at 1cc. Per shot. What they sell in Paris is

> methycobalmine which is the same at you would get at your PCP office. I

> have copied and pasted as article from ImmuneSupport. Hope that helps.

[Guest guest]

Thank you to many for your responses....

Would anyone be willing to let me know how you were able to receive them

2-3x/week? What type of doctor would offer you this? Did you have to show up

in bloodwork as deficient? Did they give you an Rx to do it yourself? I have

never had good CFS/ME care and no one has been able to help me much.

Nutritional supplementation helps me to feel a bit better and less inflammed,

but doesn't really touch the fatigue and cognitive fog at all.

Thanks for any information!

Meghan

>>> Florentine Mason 11/20/2008 6:14 PM >>>

I used to get them 2x a week and I felt a world better

[Guest guest]

I'm in Redwood City, San Francisco bay area..does anyone know any

doctors around here who give vitamin b-12 shots?

Thanks

[Guest guest]

The closest I know the names of drs who give b-12 shots to SF is Sacramento,

but your GP should be able to do it for you. It was a UC health care system

general dr who first got me started on them. The nurse would do them for me.?

Alia