Re: New---to Madeline - Cushings

[Guest guest]

Kay,

You can check your symptoms here: http://www.cushings-

help.com/checklist-body.htm

If you are on chronic steroids and high doses, you will develop

Cushings.

Hope this helps!

Kathleen

> >

> > Hello all! I am new to this group and would like to thank the

> > moderators for allowing me to join. My reason for joining this

> group

> > is that I am at my WITS end! with my asthma. I have had asthma

now

> > for 23yrs!! but not to this extent. Within the last 10yrs or so

my

> > asthma has gotten increasingly worse and I don't know what to do.

> >

> > Sure, I see a host of specialist, (pulmonologist, allergist & ENT

> > doc) but still no success. Just recently had sinus surgery (in

> july)

> > because I had polyups in my sinuses. I can breath find through my

> > nose now, but my chest is still tight and full of mucus and I

can't

> > seem to move it and upper back hurs. I take Advair 500/50,

> > proventil, singulair and Ipratropium Bromide for my nebs at home.

> > Just got out of the hospital last week thursday. and now I'm

right

> > back to feeling the same way.

> >

> > I am starting to get scared. Doctors say " try light walking and

> > working out " !! as if I didn't know this already. When I do go

> > walking I feel as if I'm going to pass out. I am only 36yrs old!!

> At

> > one point I was working out 5 days a week and was starting to see

> > good results but then WHAM! I got sick in april 07 came down with

> > pneumonia landed in the hospital for a WEEK! and ever since I

have

> > not been able to do any cardio work, just some yoga and pilates.

> >

> > Oh and the steroids!(predinsone) it works great! but the side

> effects

> > are horrible. I feel like I could eat three horses (LOL)so I have

> to

> > remember to just eat lots of fruit and drink water. But then I

> retain

> > the water (in tears now!!)

> >

> > Has anyone tried the Buteyko method? I am so tired of this

asthma.

> As

> > I'm sure you all can relate. I want my life back!

> >

> > Sorry for the long post. Thank you all for any good positive

> feedback

> > to come!

> >

> > hugs

> > Kay

> >

>

[Guest guest]

Right now, I am tapering off. Doc's in the E.R. started me on 10mg take 6, 5,4 and so on. I really have to find an alternative to the steriods. The weight can is just ridiculous! i feel horrible. :-(krskeen wrote: Kay,You can check your symptoms here: http://www.cushings-help.com/checklist-body.htmIf you are on chronic steroids and high doses, you will develop Cushings.Hope this helps!Kathleen> >> > Hello all! I am new to this group and would like to thank the > > moderators for allowing me to join. My reason for joining this > group > > is that I am at my WITS end! with my asthma. I have had asthma now > > for 23yrs!! but not to this extent. Within the last 10yrs or so my > > asthma has gotten increasingly worse and I don't know what to do. > > > > Sure, I see a host of specialist, (pulmonologist, allergist & ENT > > doc) but still no success. Just recently had sinus surgery (in > july) > > because I had polyups in my sinuses. I can

breath find through my > > nose now, but my chest is still tight and full of mucus and I can't > > seem to move it and upper back hurs. I take Advair 500/50, > > proventil, singulair and Ipratropium Bromide for my nebs at home. > > Just got out of the hospital last week thursday. and now I'm right > > back to feeling the same way. > > > > I am starting to get scared. Doctors say "try light walking and > > working out"!! as if I didn't know this already. When I do go > > walking I feel as if I'm going to pass out. I am only 36yrs old!! > At > > one point I was working out 5 days a week and was starting to see > > good results but then WHAM! I got sick in april 07 came down with > > pneumonia landed in the hospital for a WEEK! and ever since I have > > not been able to do any cardio work, just some yoga and pilates.> >

> > Oh and the steroids!(predinsone) it works great! but the side > effects > > are horrible. I feel like I could eat three horses (LOL)so I have > to > > remember to just eat lots of fruit and drink water. But then I > retain > > the water (in tears now!!)> > > > Has anyone tried the Buteyko method? I am so tired of this asthma. > As > > I'm sure you all can relate. I want my life back!> > > > Sorry for the long post. Thank you all for any good positive > feedback > > to come! > > > > hugs> > Kay> >>

[Guest guest]

I have probably said this, but can't remember for sure (I am practicing my alsheimers for later

I was on 60mg of pred off and on for almost 2 years and damaged my eyes. It caused bleeding in the macula (sp?) which left me with black spots in the middle of my vision. I've been off pred for 6 months (except for 2 weeks) and the vision is imporving. As to the weight gain . . . 30 pounds plus!! I manage an addictions program in a prison and now have to look at food as addictive. sigh!!!

Mike

Re: Re: New---to Madeline - Cushings

Right now, I am tapering off. Doc's in the E.R. started me on 10mg take 6, 5,4 and so on. I really have to find an alternative to the steriods. The weight can is just ridiculous! i feel horrible. :-(

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[Guest guest]

I know. I am at a total of 86 pounds since last August, over 30 of

those are just since this August. I have even gotten to the point

where I am not hungry all the time. I really am not eating much at

all right now and still gaining. Averaging three pounds a week

right now. Docs are going nuts, but there is nothing we can do

about it until we get the methotrexate built up and can start trying

to taper the steroids again. So I have just decided to be fat and

sassy! With the Cushings, I have found that maternity shirts fit

much better. So I look pregnant instead of fat! LOL

Madeline

> > >

> > > Hello all! I am new to this group and would like to thank the

> > > moderators for allowing me to join. My reason for joining this

> > group

> > > is that I am at my WITS end! with my asthma. I have had asthma

> now

> > > for 23yrs!! but not to this extent. Within the last 10yrs or

so

> my

> > > asthma has gotten increasingly worse and I don't know what to

do.

> > >

> > > Sure, I see a host of specialist, (pulmonologist, allergist &

ENT

> > > doc) but still no success. Just recently had sinus surgery (in

> > july)

> > > because I had polyups in my sinuses. I can breath find through

my

> > > nose now, but my chest is still tight and full of mucus and I

> can't

> > > seem to move it and upper back hurs. I take Advair 500/50,

> > > proventil, singulair and Ipratropium Bromide for my nebs at

home.

> > > Just got out of the hospital last week thursday. and now I'm

> right

> > > back to feeling the same way.

> > >

> > > I am starting to get scared. Doctors say " try light walking

and

> > > working out " !! as if I didn't know this already. When I do go

> > > walking I feel as if I'm going to pass out. I am only 36yrs

old!!

> > At

> > > one point I was working out 5 days a week and was starting to

see

> > > good results but then WHAM! I got sick in april 07 came down

with

> > > pneumonia landed in the hospital for a WEEK! and ever since I

> have

> > > not been able to do any cardio work, just some yoga and

pilates.

> > >

> > > Oh and the steroids!(predinsone) it works great! but the side

> > effects

> > > are horrible. I feel like I could eat three horses (LOL)so I

have

> > to

> > > remember to just eat lots of fruit and drink water. But then I

> > retain

> > > the water (in tears now!!)

> > >

> > > Has anyone tried the Buteyko method? I am so tired of this

> asthma.

> > As

> > > I'm sure you all can relate. I want my life back!

> > >

> > > Sorry for the long post. Thank you all for any good positive

> > feedback

> > > to come!

> > >

> > > hugs

> > > Kay

> > >

> >

>

[Guest guest]

Me too Mike. I LOVE FOOD!!!! However, I am really very lucky

because I really like fresh veggies like broccoli, celery, and

cauliflower. I am trying to stay away from carrots and fruits

though. Too much sugar in them. Also popping my own popcorn. Very

low cal!

Madeline

>

> I have probably said this, but can't remember for sure (I am

practicing my alsheimers for later

>

> I was on 60mg of pred off and on for almost 2 years and damaged my

eyes.  It caused bleeding in the macula (sp?) which left me with

black spots in the middle of my vision.  I've been off pred for 6

months (except for 2 weeks) and the vision is imporving.  As to the

weight gain . . . 30 pounds plus!!  I manage an addictions program

in a prison and now have to look at food as addictive.  sigh!!!

>

> Mike

>

>

>

> Re: Re: New---to Madeline - Cushings

>

>

> Right now, I am tapering off.  Doc's in the E.R. started me on

10mg take 6, 5,4 and so on.  I really have to find an alternative to

the steriods. The weight can is just ridiculous! i feel horrible.  :-

(

>

>  

>

> Recent Activity

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> New MembersVisit Your Group

> Give Back

> Yahoo! for Good

> Get inspired

> by a good cause.

> Y! Toolbar

> Get it Free!

> easy 1-click access

> to your groups.

> Yahoo! Groups

> Start a group

> in 3 easy steps.

> Connect with others.

> .

>

[Guest guest]

That's my problem too. I am hungry all the time and have gained an extra 10 lbs in a short period of time. If I was able to do more and get more exercise I believe it would help. I too love fresh veggies. I just bought a 4 lbs bags of frozen chopped veggies.

Lou

>> Me too Mike. I LOVE FOOD!!!! However, I am really very lucky > because I really like fresh veggies like broccoli, celery, and > cauliflower. I am trying to stay away from carrots and fruits > though. Too much sugar in them. Also popping my own popcorn. Very > low cal!> Madeline> >

[Guest guest]

Madeline,

I love your positive attitude!!!

With everything you are going through -

you are an inspiration to us all.

Alana

>

So I have just decided to be fat and

> sassy! With the Cushings, I have found that maternity shirts fit

> much better. So I look pregnant instead of fat! LOL

[Guest guest]

Thanks Alana. I have always been one of those super positive people

who drive everyone else nuts. So it much easier for me to stay

upbeat, but even I have my days...

Madeline

> >

> So I have just decided to be fat and

> > sassy! With the Cushings, I have found that maternity shirts fit

> > much better. So I look pregnant instead of fat! LOL

>

[Guest guest]

I would like to thank you also. We made choices to be happy or sad and I am happy that you made that choice. You have been an inspiration to me ever since I joined this group. The following thought always runs through my head...."Laughter is the best medicine...It has no side effect." But I do believe Laughter has side effects....but they are good one. Hang in there ! Hugs to you.

Lou> > >> > So I have just decided to be fat and > > > sassy! With the Cushings, I have found that maternity shirts fit > > > much better. So I look pregnant instead of fat! LOL> >>

[Guest guest]

You guys are so nice. Thank you Lou. This group has been my sanity

for the last several months. You are right laughter is great, as

long as the inhaler is not far away! LOL

Madeline

> > > >

> > > So I have just decided to be fat and

> > > > sassy! With the Cushings, I have found that maternity shirts fit

> > > > much better. So I look pregnant instead of fat! LOL

> > >

> >

>

[Guest guest]

Thank you Madeline. I know what you mean about having an inhaler near. I have had some kind of crud for a week now. They took x-ray and my dr said she saw some swelling. I did not question her at the time because I felt so bad. She asked me if I wanted to go to the Hospital. What kind of question is that? I think I was trying to take pneumonia again. Got a shot of antibiotic and a pres. for Levaquin. My cough is very loose but every time I have to talk much, I start coughing again..... Hope you are feeling much better. Did you get a good rest today?

>> You guys are so nice. Thank you Lou. This group has been my sanity> for the last several months. You are right laughter is great, as > long as the inhaler is not far away! LOL> Madeline> >