Guest guest Posted May 23, 2008 Report Share Posted May 23, 2008 Hi Stella, have you been to a good neurologist? It sounds like it might be a good idea. And just rest dear. My hypothetical question (because I luckily have gotten my pain under control) is, which would I rather have back – my body or my mind? Can’t decide really…but I really would trade my right arm for health! (I’m left handed…)Aylwin xox Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2008 Report Share Posted May 24, 2008 Oh Robbie, even in your writing I can tell that you are not doing well now. I had CMF as my chemo treatment which only thinned my hair (but i already had thin hair) and then my hair thickened up but not to what it was. My radiation was on the left breast but it didn't burn me. The radiologist was very careful and the Radiation Oncologist prescribed a cream I had to apply to my breast. After treatment I was put on Arimidex (I was 59 and post-menapause), which, as it turned out, gave me terrible Pain throughout my body and it also was thinning my bones (I already had Osteoporosis) so I had to stop it. I refused the topomax because it could have made my depression and anxiety worse (I had a difficult time then). I was taking Actonel since Nov 2003 (had to stop through treatments) until Jan 2008. I realized by accident that it also was making my pain progressively worse! So I stopped taking it. That is not to say that I don't have any pain now, not by a long shot. As you said, the pain is constant but fluctuating. But my fatigue continues to worsen. I've had the face and eye pain for14-15 years on and off so I know that it's not from radiation. But your body is different and as far as I'm concerned everyone's body reacts differently to treatments. I'll keep you in my thoughts. Regards, Stella Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.