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RE: How long can all of you keep going before you're struck down?

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Hi Stella, have you been to a good neurologist? It sounds like it might be a

good idea. And just rest dear. My hypothetical question (because I luckily

have gotten my pain under control) is, which would I rather have back – my

body or my mind? Can’t decide really…but I really would trade my right arm

for health! (I’m left handed…)Aylwin xox

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Oh Robbie, even in your writing I can tell that you are not doing

well now. I had CMF as my chemo treatment which only thinned my hair

(but i already had thin hair) and then my hair thickened up but not

to what it was. My radiation was on the left breast but it didn't

burn me. The radiologist was very careful and the Radiation

Oncologist prescribed a cream I had to apply to my breast. After

treatment I was put on Arimidex (I was 59 and post-menapause), which,

as it turned out, gave me terrible Pain throughout my body and it

also was thinning my bones (I already had Osteoporosis) so I had to

stop it. I refused the topomax because it could have made my

depression and anxiety worse (I had a difficult time then). I was

taking Actonel since Nov 2003 (had to stop through treatments) until

Jan 2008. I realized by accident that it also was making my pain

progressively worse! So I stopped taking it.

That is not to say that I don't have any pain now, not by a long

shot. As you said, the pain is constant but fluctuating. But my

fatigue continues to worsen. I've had the face and eye pain for14-15

years on and off so I know that it's not from radiation. But your

body is different and as far as I'm concerned everyone's body reacts

differently to treatments.

I'll keep you in my thoughts.

Regards, Stella

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