Guest guest Posted October 8, 2008 Report Share Posted October 8, 2008 Hi - does anyone else experience low-grade fever, and a feeling of flushing, when experiencing a flare up of fibromyalgia? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2008 Report Share Posted October 9, 2008 I have low grade fevers and flushing alot havent had it this week but most of the time...dont really know at this point what to do about it. My primary about a year ago gave me niacin I didnt take it. I am going to a neuro next week and a Rheumo thereafter will let ya know if I learn anything new Good Luck Debra Schulz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2008 Report Share Posted October 9, 2008 I do! I'm starting what feels like a wicked flare and am experiencing flu like symptoms. This usually happens when the weather changes Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2009 Report Share Posted January 26, 2009 , I'm coming into this a little late and have kind of skimmed over everything, but low fever (anything above your normal body temp to about 101) are not uncommon in CFIDS. I have had CFIDS for many years and I go in and out of low grade fever, sometimes lasting several months at a time. From what I have learned, there are several theories about it, but the bottom line is that just like swollen glands and other symptoms common to CFIDS that some doctors misunderstand, it is just something we learn to live with (at least we try). My doctor likes to tell me that I am 'progressing along just as we would expect'. I am always unsure of how to take this, as I am usually worse (with a new symptom to boot) when he does. Please let us know what happens with the possible Lupus diagnosis. Seems like these kinds of illnesses tend to gather together in us for some reason. Gentle hugs to you, Gretchen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2009 Report Share Posted January 31, 2009 , that makes complete sense. I think it is important to follow symptoms if they are pointing to something else as well. And even if it is a 'normal' symptom for CFIDS, if it isn't normal for you, it is still a big concern. I'm sorry if I sounded like I wasn't taking your concerns for your fever seriously, that was not at all my intention. I just think that there are so many symptoms that DO go with CFIDS, it is difficult to know where everyone is in their illness and new symptoms can be scary when they may just be part of CFIDS. I hope your search into Lupus finds you something that will help you. (((hugs))). ________________________________ My fevers are completely gone after a week. I'm so relieved. That was the first time out of 10 years that I've ever had one stay. So I wasn't sure what was happening. I've never had swollen glands with my disease. Dr. Bell who is my CFIDS specialist had wanted me to see a Hematologist now because I've been losing neutrophils. With Cfids, losing neutrophils is not normal. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2009 Report Share Posted February 1, 2009 Hi Gretchen: I now have a cold and I still don't have enough neutrophils. Dr. Bell's office called me Friday--his nurse called. I was so surprised. She asked me if Dr. Bell had called me back about the Hematologist and I said no. She said he was going to call me today if he had breaks in between patietnts. But I didn't hear back. He's not there very long in his office so I figure he will call later. I was very surprised that he was even calling me. He doesn't come in till 2:00 and they see the last patint about 4:00 and he's not there everyday. So he doesn't have alot of time. But the nurse told me to write down all my questions so that when he calls me then I can ask him. Lou , that makes complete sense. I think it is important to follow symptoms if they are pointing to something else as well. And even if it is a 'normal' symptom for CFIDS, if it isn't normal for you, it is still a big concern. I'm sorry if I sounded like I wasn't taking your concerns for your fever seriously, that was not at all my intention. I just think that there are so many symptoms that DO go with CFIDS, it is difficult to know where everyone is in their illness and new symptoms can be scary when they may just be part of CFIDS. Quote Link to comment Share on other sites More sharing options...
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