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I have low grade fevers and flushing alot havent had it this week but most of

the time...dont really know at this point what to do about it. My primary about

a year ago gave me niacin I didnt take it. I am going to a neuro next week and a

Rheumo thereafter will let ya know if I learn anything new

Good Luck

Debra Schulz

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  • 3 months later...

, I'm coming into this a little late and have kind of skimmed over

everything, but low fever (anything above your normal body temp to about 101)

are not uncommon in CFIDS. I have had CFIDS for many years and I go in and out

of low grade fever, sometimes lasting several months at a time. From what I have

learned, there are several theories about it, but the bottom line is that just

like swollen glands and other symptoms common to CFIDS that some doctors

misunderstand, it is just something we learn to live with (at least we try). My

doctor likes to tell me that I am 'progressing along just as we would expect'. I

am always unsure of how to take this, as I am usually worse (with a new symptom

to boot) when he does.

Please let us know what happens with the possible Lupus diagnosis. Seems like

these kinds of illnesses tend to gather together in us for some reason.

Gentle hugs to you,

Gretchen

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, that makes complete sense. I think it is important to follow symptoms if

they are pointing to something else as well. And even if it is a 'normal'

symptom for CFIDS, if it isn't normal for you, it is still a big concern. I'm

sorry if I sounded like I wasn't taking your concerns for your fever seriously,

that was not at all my intention. I just think that there are so many symptoms

that DO go with CFIDS, it is difficult to know where everyone is in their

illness and new symptoms can be scary when they may just be part of CFIDS. I

hope your search into Lupus finds you something that will help you. (((hugs))).

________________________________

My fevers are completely gone after a week. I'm so relieved. That was the

first time out of 10 years that I've ever had one stay. So I wasn't sure what

was happening.

I've never had swollen glands with my disease. Dr. Bell who is my CFIDS

specialist had wanted me to see a Hematologist now because I've been losing

neutrophils.

With Cfids, losing neutrophils is not normal.

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Hi Gretchen:

 

I now have a cold and I still don't have enough neutrophils.  Dr. Bell's office

called me Friday--his nurse called.  I was so surprised.  She asked me if Dr.

Bell had called me back about the Hematologist and I said no.  She said he was

going to call me today if he had breaks in between patietnts.  But I didn't hear

back.  He's not there very long in his office so I figure he will call later.  I

was very surprised that he was even calling me.

 

He doesn't come in till 2:00 and they see the last patint about 4:00 and he's

not there everyday.  So he doesn't have alot of time.  But the nurse told me to

write down all my questions so that when he calls me then I can ask him.

 

                                                       Lou

, that makes complete sense. I think it is important to follow symptoms if

they are pointing to something else as well. And even if it is a 'normal'

symptom for CFIDS, if it isn't normal for you, it is still a big concern. I'm

sorry if I sounded like I wasn't taking your concerns for your fever seriously,

that was not at all my intention. I just think that there are so many symptoms

that DO go with CFIDS, it is difficult to know where everyone is in their

illness and new symptoms can be scary when they may just be part of CFIDS.

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