Re: Ok Kathi - Where are you??

[Guest guest]

<PRE>kathi, i am so sorry you are having such a rough time right now. i hope

your

dad will get well soon. i have been sick to my stomach the past couple of

days. i think it's also from the mtx, does anyone know if that gets better or

worse with time kathy in il

[Guest guest]

Kathi, and you are well-loved indeed, I'm quite sorry to hear about your

father. I hope that his condition will improve very soon and that you

will be relieved the terrible worry.

I'm sorry that your own physical state is still bad. Are you still

taking the methotrexate orally? Maybe injections would help you tolerate

it better?

I know you are still waiting for Enbrel, but what about Abbott's D2E7? I

read through the study and I don't think you qualify, but maybe they

would give it to you anyway? Did your doctor say anything about it?

What is the status of your appointment with Dr. Mayes?

Sending prayers and hugs,

Re: [ ] Ok Kathi - Where are you??

> Kathe: I am here,just having a hard time finding that

> humor and as Iris says smart alecness right now....the

> increase(doubled)MTX is giving me I hard time and I

> tend to think everytime they give me hope that this

> time it is going to do the trick and go through being

> depressed when it doesnt....and if I cant find

> something upbeat and funny to post I tend not to, as

> there are others that have bigger problems that little

> ole me.....but as your asked .....I have lost another

> 20 pounds and got the talking to.....I am just sick of

> docs and sick of being sick. And on top of everything

> I recieved a call from my brother that my dad had

> fallen down stairs and wasnt found for about 5

> hours...they think he has a cerebral hemorage(sp) and

> if so because of the COPD ther is great concern about

> surgery as if they vent him he may never come off the

> vent, so I have been trying to keep the phone lines

> free, for the call that says it is time to fly to New

> Hampshire...everytime the phone rings I answer it with

> dread. Thank you for your post about being a much

> loved member,it made me feel good, although I am sure

> there are some that would argue that one ..

> LOL.....Kathe thanks for thinking of me, hugs to you

> Kathe....and as always thanks for your very big

> heart.....(((((((Kathe))))))))

> Kathi in OK

>

>

> --- Kathe Sabetzadeh <lv2ryd@...> wrote:

> > Hi Kathi:

> >

> > Sorry about the oops post - this is the real thing!

> > Where are you? It's been a long time since you

> > posted. Are you okay? I miss your posts and your

> > sense of humor. I worry about you, my friend.

> >

> > Kathe in CA

[Guest guest]

Kathi,

It¹s hard to be cheerful when you feel so bad. Don¹t ever doubt how much we

love you Kathi. You are a cherished member and I hate to hear that you¹re

feeling so bad. I hope the mtx kicks in and gives you some relief instead

of giving you a hard time. Is the mtx giving you GI problems?

Sorry about your dad¹s fall. I hope he¹s going to be ok. I will keep him

in my prayers.

a

[Guest guest]

Kathi,

The virus you have is called sackie. I know it because I know a family

that has recently been infected. One member of the family works in a

pediatric office and brought the infection home to the rest of the family.

Although it is more common in children, adults can get it to. So sorry you

have such a miserable virus and hope it clears up quickly. I don't blame

you for having a hissy fit when the mtx helps so much. Hopefully this will

pass quickly.

http://www.edcp.org/html/handfoot.html

http://www.bioscience.org/1997/v2/e/ramsingh/list.htm

http://www.bioscience.org/1997/v2/e/ramsingh/list.htm

http://www.ibufamily.org/coxsacki.html

a

> a: I am sorry about your rear-ending, but glad no

> one was seriously hurt. Sorry to all for not having

> posted and am way behind in posts. Seems as the MTX

> was doing as it was suppose to do and I was not. I am

> a daisy girl scout leader and was exposed to mouth and

> hand virus, I was WHAT like hoofnmouth? The doc was

> very concerned as normally only childeren get it and

> the actual name is coxy something virus, anyway that

> combined with the MTX was causing blisters all over

> even in unmentional places. So then there was a big

> argument as they said no more MTX and I was having a

> hissy fit as it has made me feel better than I have in

> 3 years, so they back paced and decided until the

> blisters all heal and then they will rethink the what

> do we do with this one.....have been in bed 4 days as

> I just couldnt fuction the combo really knocked me for

> a loop....anyway thinking of you all, and hope

> everything is OK with everyone...it will take me days

> to get caught up.....hugs Kathi in OK

> --- a <paula54@...> wrote:

[Guest guest]

Kathi,

Hope you feel better soon! Goodness, after reading some of the information in

the links a sent, it is a wonder more people don't contract this virus.

I used to work with a girl who had a fetish for cleaning her phone with alcohol

daily, sometimes frequently during a single day. After being diagnosed with RA

I find myself much more conscious of keeping phone receivers and keyboards

disinfected. My former co-worker would get quite a laugh out of seeing me

now...

Suzanne

>

> From: a <paula54@...>

> Date: 2002/11/09 Sat PM 11:36:45 EST

> " " < >

> Subject: Re: [ ] Ok Kathi - Where are you??

>

> Kathi,

> The virus you have is called sackie. I know it because I know a family

> that has recently been infected. One member of the family works in a

> pediatric office and brought the infection home to the rest of the family.

> Although it is more common in children, adults can get it to. So sorry you

> have such a miserable virus and hope it clears up quickly. I don't blame

> you for having a hissy fit when the mtx helps so much. Hopefully this will

> pass quickly.

>

>

> http://www.edcp.org/html/handfoot.html

> http://www.bioscience.org/1997/v2/e/ramsingh/list.htm

> http://www.bioscience.org/1997/v2/e/ramsingh/list.htm

> http://www.ibufamily.org/coxsacki.html

>

> a

>

>

>

> > a: I am sorry about your rear-ending, but glad no

> > one was seriously hurt. Sorry to all for not having

> > posted and am way behind in posts. Seems as the MTX

> > was doing as it was suppose to do and I was not. I am

> > a daisy girl scout leader and was exposed to mouth and

> > hand virus, I was WHAT like hoofnmouth? The doc was

> > very concerned as normally only childeren get it and

> > the actual name is coxy something virus, anyway that

> > combined with the MTX was causing blisters all over

> > even in unmentional places. So then there was a big

> > argument as they said no more MTX and I was having a

> > hissy fit as it has made me feel better than I have in

> > 3 years, so they back paced and decided until the

> > blisters all heal and then they will rethink the what

> > do we do with this one.....have been in bed 4 days as

> > I just couldnt fuction the combo really knocked me for

> > a loop....anyway thinking of you all, and hope

> > everything is OK with everyone...it will take me days

> > to get caught up.....hugs Kathi in OK

<snip>

[Guest guest]

Jeepers,

Rearended the same day your husband had surgery!? If that isn't adding

insult to injury! What a time to feel crappy, trying to care for a

convalescent. How's he doing? Hopefully, a, you will be good as new in

a few more weeks.

Suzanne

Re: [ ] Ok Kathi - Where are you??

Humor helps to deal with a lot of problems, but I know there are days

when humor just doesn't cut it. It must be hard to know if the sores

are caused by the disease or by the treatment since it's common for sores to

develop on the fingertips and knuckles in scleroderma. Have you ever had

sores like this before or is it just since increasing the mtx?

Did your doctor increase your folic acid when he increased the mtx?

I hope your doctor had some answers for you at your appointment.

I must have only thought I mentioned getting rear ended the day of my

husband's hernia surgery since others have said they also missed that email.

I'm loosing my mind, what little was there LOL! When my husband was brought

to recovery, they told me it would be a few hours before I could see him

because the recovery room was packed and there was no room for visitors. I

had checked out the hospital cafeteria and it didn¹t look so great so I was

going to get something to eat. I made it 2 blocks from the hospital and was

stopped in traffic when I was rear ended by a young girl that was reading a

map while driving. Grrrrrrrrrr. She was from out of state and lost. I

felt a jarring of my neck, but didn't think it was anything to worry about

until the aches didn't go away. I just hope my docs can fix me as well as

the body shop fixed my car!

They say whiplash takes 6-8 weeks or more to heal and it's almost 5 weeks,

so hopefully it will subside soon.

I should have just eaten the darned hospital food.

Please let us know what your doctor says. I hope this Enbrel shortage is

over soon. I hear the building is done but waiting for FDA inspections. So

maybe soon you'll be able to get it.

I hope you feel better.

a

[Guest guest]

Suzanne,

I¹m happy to say that is 100% recuperated. The body shop did a great

job on my car and it¹s like new. Now if I could only get to where my

husband and car are, I¹ll be a happy camper. My doc prescribed physical

therapy, which I¹ll start tomorrow. He¹s also advising me to try the jaw

splint for the TMJ. It¹s worth a try. I¹m hoping I¹ll be back to normal

soon, thanks for asking.

a

> Jeepers,

>

> Rearended the same day your husband had surgery!? If that isn't adding

> insult to injury! What a time to feel crappy, trying to care for a

> convalescent. How's he doing? Hopefully, a, you will be good as new in

> a few more weeks.

>

> Suzanne

>

> Re: [ ] Ok Kathi - Where are you??

>

>

> Humor helps to deal with a lot of problems, but I know there are days

> when humor just doesn't cut it. It must be hard to know if the sores

> are caused by the disease or by the treatment since it's common for sores to

> develop on the fingertips and knuckles in scleroderma. Have you ever had

> sores like this before or is it just since increasing the mtx?

> Did your doctor increase your folic acid when he increased the mtx?

> I hope your doctor had some answers for you at your appointment.

>

> I must have only thought I mentioned getting rear ended the day of my

> husband's hernia surgery since others have said they also missed that email.

> I'm loosing my mind, what little was there LOL! When my husband was brought

> to recovery, they told me it would be a few hours before I could see him

> because the recovery room was packed and there was no room for visitors. I

> had checked out the hospital cafeteria and it didn¹t look so great so I was

> going to get something to eat. I made it 2 blocks from the hospital and was

> stopped in traffic when I was rear ended by a young girl that was reading a

> map while driving. Grrrrrrrrrr. She was from out of state and lost. I

> felt a jarring of my neck, but didn't think it was anything to worry about

> until the aches didn't go away. I just hope my docs can fix me as well as

> the body shop fixed my car!

> They say whiplash takes 6-8 weeks or more to heal and it's almost 5 weeks,

> so hopefully it will subside soon.

> I should have just eaten the darned hospital food.

>

> Please let us know what your doctor says. I hope this Enbrel shortage is

> over soon. I hear the building is done but waiting for FDA inspections. So

> maybe soon you'll be able to get it.

> I hope you feel better.

> a

>

>

>

>

>