Re: From Jane -WI

[Guest guest]

Hello, Jane,

Feeling sorry for yourself is okay. It does not matter what anyone

else says, if you do not feel well, then you don't feel well. Who is anyone

else to question how you feel? They are not sharing your body and the

problems you are having with it.

As for getting family, friends, or others to understand? I don't

bother beyond a couple of mild attempts. Yes, we want others to understand,

sympathize and maybe empathize, but it does not always happen. Even when

others share the same kinds of health problems, they often do not understand

the difficulties you are having with it.

I realize that we all would like to have a friendly relationship

with a sympathetic person with skin on, but when that does not happen, it is

time to look elsewhere for the emotional support that is needed. It is not

the same, but often works out better because there is no continued build-up

of resentment.

All of the above is just my opinion, so take what works for you and

forget about the rest. You cannot change anyone else. You can only change

you.

Dianne

----- Original Message -----

From: " a " <paula54@...>

> Hi, everybody,

>

> I have not wrote to you guys in a couple of weeks, I was really

> sick for two weeks.I don't know what I had but it made me sleep all the

> time.I catch every thing.I started Mtx IM. shots, hate the needles but my

> rheumy said it would help me more.I hope he is right, after the shot, the

> next day, did anyone feel really tired?

>

> I'm having trouble with my family, How do you explaine to your

> family that you are ill, and you can't do what you use to do.Every time I

> turn around I get sick, I know it is the mtx killing off my immune system,

> Am I bringing this on my self? They make me feel like what I have is just

a

> mild thing that how can I get sick? I don't think that they are taking

this

> very serious, it makes me feel bad. They never call to see how i'm doing,

I

> call them once in a while but that is because they are family and want to

> know how everyone is and then they don't tell me anything anyway.They shut

> me out and don't really want to hear about my little problem. I'm sorry

for

> cring on your shoulders right now,I know i haven't said much but I was

with

> you when I was sick, I thought of you all the time.Now I'm back and all

> ready looking for someone to feel sorry for my self, How do you explain

what

> you have and to make them under stan! d?

>

> Love you all

>

> Jane -WI

>

[Guest guest]

<PRE>hi jane, i am sorry to hear you are having such a hard time. you have to

keep

telling your family over and over seems to me anyway. remind them that it is

NOT fun for you. I still remember my dad standing in the doorway (remember i

was told to keep my feet above my heart to reduce swelling) i was in my

recliner and he said. hmmm i see a pattern here. you are going to lose your

job. what else was i supposed to do?? after my surgery he said. ok now you

are disabled. now they do whatever they can for me. i also know your troubles

with the mtx. i started 3 weeks ago. the nurse called me back and said it's

ok if you want to stop. but i said no, i would try it again. so we shall see.

kathy in il

[Guest guest]

Dear jane,

I don't think they mean to misunderstand but usually are in denial about your

health. Ithink my family is. besides the RA I have diabetes and Pulmonary

Fibrosis which is the pits because I have to use oxygen and some dayds that

doresn't help and I catch everything too. I am on an antibiotic noew becadsue

for two week I had trouble breathing but now it is a little better, plus I am

having a flare because I stopped taking the Afrava because oif all the terrible

dside effects and am now in a class action suit for it. The Methotrexate caused

the Pulmonary Fibrosis so be careful, this condition scars the lungs and leaves

you with very little lung power. I still weork but that is aal I can do come

home at the end of thre day and can do nothing from lack of oxygen and

exhaustion. Yes it okay to have pity pafrtys we deserve them just don't let them

take over your life and don't worry about otherds take cared opf youself.

( boopsie2003)

Re: [ ] From Jane -WI

Hello, Jane,

Feeling sorry for yourself is okay. It does not matter what anyone

else says, if you do not feel well, then you don't feel well. Who is anyone

else to question how you feel? They are not sharing your body and the

problems you are having with it.

As for getting family, friends, or others to understand? I don't

bother beyond a couple of mild attempts. Yes, we want others to understand,

sympathize and maybe empathize, but it does not always happen. Even when

others share the same kinds of health problems, they often do not understand

the difficulties you are having with it.

I realize that we all would like to have a friendly relationship

with a sympathetic person with skin on, but when that does not happen, it is

time to look elsewhere for the emotional support that is needed. It is not

the same, but often works out better because there is no continued build-up

of resentment.

All of the above is just my opinion, so take what works for you and

forget about the rest. You cannot change anyone else. You can only change

you.

Dianne

----- Original Message -----

From: " a " <paula54@...>

> Hi, everybody,

>

> I have not wrote to you guys in a couple of weeks, I was really

> sick for two weeks. I don't know what I had but it made me sleep all the

> time. I catch every thing. I started Mtx IM. shots, hate the needles but my

> rheumy said it would help me more.I hope he is right, after the shot, the

> next day, did anyone feel really tired?

>

> I'm having trouble with my family, How do you explaine to your

> family that you are ill, and you can't do what you use to do.Every time I

> turn around I get sick, I know it is the mtx killing off my immune system,

> Am I bringing this on my self? They make me feel like what I have is just

a

> mild thing that how can I get sick? I don't think that they are taking

this

> very serious, it makes me feel bad. They never call to see how i'm doing,

I

> call them once in a while but that is because they are family and want to

> know how everyone is and then they don't tell me anything anyway.They shut

> me out and don't really want to hear about my little problem. I'm sorry

for

> cring on your shoulders right now,I know i haven't said much but I was

with

> you when I was sick, I thought of you all the time.Now I'm back and all

> ready looking for someone to feel sorry for my self, How do you explain

what

> you have and to make them under stan! d?

>

> Love you all

>

> Jane -WI

>