Thanks to all!

[Guest guest]

I just wanted to thank everyone for your support and for giving me

such great info. I did not know what ME was until today, and it

sounds EXACTLY like what I have. I have been waiting for a diagnosis

beyond CFS and Fibro and my doctor (who thank God know that these are

very real conditions) and I have always known there was something

else, a bigger picture, going on, and have never been able to fit me

into a diagnosis and a treatment beyond just treating symptoms. I did

a lot of research today and was able to find some info on doctors

that may be able to help me that are not that far from me. I am in

one of the worst flares I have ever been through in my life, and

really need help now. I am so scared that I will end up back on my

cane and loose the life I have been able to build in the time my

symptoms have eased up. Even at my best I cant live alone or support

myself. I really need disabilty, I got denied when I first applied

last year but I am thinking about getting a lawyer and re-applying

since I am disabled and my parents should not have to foot the bill

because of it. Thank God for them. Does anyone have advice on this

matter? Know a good doctor in the New England area? Thanks again

everyone for helping me not feel alone and for the great information!!

Blessings,

Dr. and the kids - , Etnie, and Magoo

[Guest guest]

No CFS doctors in New England except the Fibro and Fatigue Center in

Norwalk, Ct. if you are anywhere near there. I have not heard anything good

orbad about the doctor who runs the clinic there although the clinics

overall had a good reputation. I live in the Boston area and am trying to

get my PCP to write a referral to go to the FFC clinic in Philadelphia. The

doctor there will do phone consults. I guess the dr. in Ct. isn¹t

comfortable with that forn of treatment.

I even joined 3 New England yahoo groups for CFS and asked what doctors they

were seeing and not 1 response.

There is a Dr. Enlander in NYC who treats CFS but I don¹t know much

about him.

If you find a doctor in New England please let me know.

Lois

Carlisle, MA

[Guest guest]

Note: Dr. Endlander is a member of our Yahoo Group.

>

> No CFS doctors in New England except the Fibro and Fatigue Center

in

> Norwalk, Ct. if you are anywhere near there. I have not heard

anything good

> orbad about the doctor who runs the clinic there although the

clinics

> overall had a good reputation. I live in the Boston area and am

trying to

> get my PCP to write a referral to go to the FFC clinic in

Philadelphia. The

> doctor there will do phone consults. I guess the dr. in Ct. isn¹t

> comfortable with that forn of treatment.

> I even joined 3 New England yahoo groups for CFS and asked what

doctors they

> were seeing and not 1 response.

> There is a Dr. Enlander in NYC who treats CFS but I don¹t

know much

> about him.

>

> If you find a doctor in New England please let me know.

>

> Lois

> Carlisle, MA

>

[Guest guest]

there is a group in Northhampton,Ma that treats ME, fibro etc   Darren Lynch MD

395 pleasant st,    good luck

[Guest guest]

Have you been a patient or know anybody that has and can recommend them?

Lois

>

> there is a group in Northhampton,Ma that treats ME, fibro etc   Darren Lynch

> MD 395 pleasant st,    good luck

[Guest guest]

check them out at www.northamptonwellness.com  i like them  good luck jennifer