probiotic side effects?

[Guest guest]

Hi,

I spoke with a really ignorant pediatrician's office nurse today. she

gave me some flack for giving my girl daily probiotics. she said they

should only be given for diarrhea. i was like UM MY DAUGHTER IS COMING

OFF OF THE AUTISM SPECTRUM AND A LOT OF IT HAS TO DO WITH PROBIOTICS.

There was silence on the other end. I then told her that i would not

have believed it myself if i had not seen it with my own eyes. THen

she went on to say tha ti should talk to the doctor and not be giving

them without his permission. I was like thinking...oh yeah, this

pediatrician is really going to help us!!!! These are the same people

that gave my girl miralax. They are the same ones that approved of her

being on DAILY antibiotics for years! These people WANT TO GIVE HER

MORE VACCINES. They are closed minded and have no idea about autism or

how to help these kids. I hate that as parents we are not respected

and I should have told her "By the way, my husband is an RN and

studying for his GRADUATE degree right now" and maybe she would have

shut up.

Vickers wrote:

,

Which you would recommend trying first, nucca or activator?

From:

nattalie owens <nattalieo>

To: miralax

Sent: Friday, October

17, 2008 7:23:03 AM

Subject: Re:

Fw: eosinophilgastro Just expressing thanks to this group

http://www.netterim ages.com/ image/3014. htm

http://www.nature. com/gimo/ contents/

pt1/fig_tab/ gimo12_F1. html

Both my kids had this very severe. My daughter was

on motility drugs and prevacid. Prevacid twice a day for over 3 years.

My son did no respond to motilitly drugs he was on neocate and previcad

twice daily and zantac. He was miserable every single day he had it. It

is a nightmare and I am very sorry that you are going through this. I

just wanted to breifly share our story with you. If someone sent me

this when my kids were sick I would probably think that they were crazy

so feel free!! We found a severe misalignment with right rotation on

the first vertebre c1 (holds the brainstem) on my kids. We tried chiro

and go nowhere with it. Finally I found a nucca doctor and 23 days

later they were off all medications. I also took them to cranial

sacral which helped tremendously with the soft tissue and healing. 6

months later we still have no meds and mild to moderate gi issues. My

son is drinking whole milk and that is utterly amazing to say the

least. Since they responded so nicely to these gentle treatments I

decided to try an www.activator.

com activator only doctor. And sure enough nucca lied to me because

my kids still had misalignments in the spine, 10 places now to a lesser

degree. He has only been working on them for a week and the difference

is profound. He also informed me that the back of the skull was also

putting pressure on the upper cervical area and he is adressing that as

well. I dont want to make you any broken promises, my kids still

needed meds during the treatment and it is not an instant fix, but it

does seem to be a cure and a cause of this nightmare. Please take a

look at the links I posted above and you will see why it makes such a

big impact on the digestive process. Our activator doctor gave us a

free evaluation and let me see and feel the misalignments. As well as

nucca. Osteopathic medicine is great I can tell you from another board

I am on I have had two parents with unresolved atlas misalignments

after going to an osteopath. I also want to say that prevacid was a

miracle for my childrens pain, it has its dark side as well. It does

slow gastric emptying which can make the already bad situation worse,

it will stop the pain and the inflamation though.

From:

deanna gentry <dkg116yahoo (DOT) com>

Subject: Fw: eosinophilgastro Just expressing thanks to this

group

To: miralax@yahoogroups .com

Date: Friday, October 17, 2008, 5:26 AM

Jeanie

Below is an email sent to me from another group, there

is some websites I thought you might want to read. I haven't read it

myself yet, I'm off to work, but I think it may be interesting.

Deanna,

Fort Worth, Texas

Mom to Cody age 10, Dx: EE (2/08), Guilliam Barre Syndrome(3/08) ,

Epstein Barr Virus-Mono(6/ 08), Environmental Allergies (mountain cedar

& cats)(3/08), Eczema (since birth).

-----

Forwarded Message ----

From: rachella_grossi <rachella_grossi@ yahoo.com>

To: eosinophilgastro@ yahoogroups. com

Sent: Friday, October 17, 2008 12:49:02 AM

Subject: Re: eosinophilgastro Just expressing thanks to this group

Hi Deanna,

I read your post and just wanted to let you know i truly empathize

with your situation and being caught between listening to the medical

expert and trusting your gut. I have found myself in similar

situations numerous times for my own health issues and now my sons.

Have faith you will make the right decision regarding the prevecid.

If you choose not to use it, then you can check on the next scope to

see if any damage is developing(assuming the next scope isn't too far

out). If damage does start - then you can re-evaluate and make a

choice. It sounds like you are already suspicious of the PEG and if

indeed Cody is sensitive to that chemical, then the risks may

outweight the benefits of the medicine. Some of us are more sensitive

than others to environmental toxins and chemicals and I think it is

very wise to be careful about the burden we place on our kids. I have

been active in a stop the spray campaign in california regarding

aerial pesticide spraying for a little moth and one of the reports

that was generated was very helpful in understanding how our bodies

process toxins and how genetic predisposition plays a role. Anyhow,

you can read Dr. Haiden's report here:

http://www.lbamspra y.com/Reports/

Haiden200805. pdf . Dr. Haiden is a

Dr of Osteopathic medicine and breast cancer survivor. She is also a

wonderful person who I am fortunate enough to work w/ on this ongoing

campaign!

Cheers -

la - mom to Raja - EC, asthma, lactose intolerance

>

> I agree with everything you said. Our kids are all

individualized. ..each having EE, but yet each case is so unique. Cody

seems to be different in the way that he has no outward symptoms. I

would not know he is different from the norm if it wasn't for this

group. It's not that I don't believe any thing the docs say, I just

believe there is so much not known and they only see the scientific

part, not the day to day part.

> Anyway, there is something I want to run past everyone...I also

wonder if this EE is coming to the defense...to maybe something that

is there that is unknown, undetected, something bigger than the food

allergy in these kids. The same with acid in the gi tract, you don't

want to eliminate it completely, the body may be producing it to aid

the body in defense of virus', bacteria and/or diseases all to which

may not be seen by the docs or maybe something that is yet unknown.

All these things run ramped through my head. Cody's situation is a

little different than most. He got really sick all at once, he came

down with numerous medical conditions all at the same time, that is

why he was so hard to diagnose, so many symptoms that didn't all go

together to get a diagnosis for one condition.

> My husband made a good point to the doc Tuesday after his scope.

She wanted to put him on Previcid. He asked why, would it cure the

EE? Of course she said no, it could help keep down the acid levels

and help heal the esophagus. But yet she told us there is no visible

sign of damage from acid or any sign that he has acid reflux. He also

asked her if your body is producing acid if that was a sign that

maybe the body is doing what it is suppose to do to fight off

bacteria and/or diseases and she said yes it is. She said she wants

him on the Previcid because it is unknown what the repercusions are

in the distant future from the damage to the esophagus caused by the

EE. She said if it was her child, she would give the Previcid. It is

such a hard decision...It is hard for us because this medication that

he was taking at the onset of all his illnesses, could be the

culprit. My mom and myself have had serious side effects from a

medication, different ones. Also

> moderate side effects from soaps, detergents, metals, bleach,

etc...we are chemical sensitive. Not to all chemicals, just some. So

we believe it is highly possible that this medication triggered the

EE for Cody. The chemical name is Polyethylene Glycol, which is also

in Previcid. We aren't trying to be hardaxxes we are just trying to

do what we feel is best for our child. There is so much that the docs

do know about how science works, but there is so much that know how

our child works, and he is chemical sensitive. I wish everything

wasn't so complicated. Thank you all for letting me vent, and I

appreciate any suggestions and will seriously take them in to

consideration.

>

>

>

>

>

>

>

> Deanna,

> Fort Worth, Texas

> Mom to Cody age 10, Dx: EE (2/08), Guilliam Barre Syndrome(3/08) ,

Epstein Barr Virus-Mono(6/ 08), Environmental Allergies (mountain

cedar & cats)(3/08), Eczema (since birth).

>

>

>

> eosinophilgastro Just expressing thanks to this group

>

> As a grandmom of a very sick little one I thank all of you for

helping

> answer so many questions to so many concerned parents. Debbie B.

> Thank you for everything as we begin this journey. So many of you

> have so many answers and help so many. It is good that there is

this

> group. It is needed and it does enlighten and does help ease the

pain

> as we as parents, grandparents etc. turn to this site for insight.

We

> are just beginning this journey into the unknown. Very few people

> know anything about EE and I did not either. Our family ( both

sides

> hubby and mine) are loaded with allergies and asthma. As I begin my

> research I see how this may be genetic. I would like to know what

you

> have found out and if any of you have sought genetic counseling or

> would have your children do this before having children. All but

one

> of our adult children have children and our DIL is pregnant with

her

> second child. Our daughter is in the medical field (OTR) and will

> discuss all of this with her coleagues that are in the medical

field.

> I think there is lots to learn here. It would be great to find a

> cure for this disease that appears to be one that could become an

> epidemic.

>

>