Re: First day of Prednisone

[Guest guest]

Judi, I'm very sorry to hear that you are feeling so bad. The prednisone

should bring you relief. My best advice regarding prednisone is to use

it to calm things down, but don't get stuck on it. Wean off as soon as

you can (as per the doctor's instructions, of course).

That's great that you can see a rheumatologist on the 22nd. A

forty-minute drive is well worth it if she's good.

The best of luck to you! I'm glad that Nurse Ron is there to take care

of you.

[ ] First day of Prednisone

> Hi All,

>

> Had a visit with my doctor this morning--Ron nearly had to ask for a

> wheel chair to get me into the office. I have never been in that

> much pain before, and really unable to do anything. Ron had to get

> me dressed this morning. After one quick look, and a few questions,

> the sweet doctor said " well, there's no doubt about the diagnosis

> now! We are going to attack this thing right back. " So he started

> me on 40 mg pred this week, and a taper over the next 4 weeks. He

> also made an appt. with a new rheumy " only " 40 minutes away, and told

> her that " this lady needs to see you NOW! " So I get to go see her on

> the 22nd, which is pretty amazing for a first-time appt.

>

> I'm already starting to feel a bit better, but still awfully

> uncomfortable. Ron said he'd allow just this one email, then I am

> back on the couch for the rest of the evening, even have a sub for

> bowling (which I may be able to resume next week.)

>

> If any of you have any suggestions for me, like what to expect from

> the pred., etc., and what to tell the rheumy when I go, I'd

> appreciate it. He told me that it would give me an appetite (well

> that would be something novel!) and might make me feel weak for

> awhile. Well, weak would be an improvement. I thought I'd start a

> journal, retro to last week when this really bad flare started, and

> take it with me as some of you have done. Any suggestions for what

> to eat--dr. said buy lots of fish, chicken, veggies & fruit.

>

> OK, my nurse is pulling me away, so I'll talk to you tomorrow (I

> hope!) Hope you all are having peaceful day & night to come.

>

> God bless,

> Judi

[Guest guest]

Hi Judi,

Sorry you're feeling so bad, but how great that your doctor is so supportive

and is willing to treat you aggressively. I think it's awesome that he/she

got you an appointment so soon. Having a good doctor on your side is so

important in fighting this disease.

Ron's such a sweetheart (and you can tell him I said so!). Having a

supportive spouse is another important thing.

Much love and prayers that you feel better soon,

Carol

[ ] First day of Prednisone

Hi All,

Had a visit with my doctor this morning--Ron nearly had to ask for a

wheel chair to get me into the office. I have never been in that

much pain before, and really unable to do anything. Ron had to get

me dressed this morning. After one quick look, and a few questions,

the sweet doctor said " well, there's no doubt about the diagnosis

now! We are going to attack this thing right back. " So he started

me on 40 mg pred this week, and a taper over the next 4 weeks. He

also made an appt. with a new rheumy " only " 40 minutes away, and told

her that " this lady needs to see you NOW! " So I get to go see her on

the 22nd, which is pretty amazing for a first-time appt.

I'm already starting to feel a bit better, but still awfully

uncomfortable. Ron said he'd allow just this one email, then I am

back on the couch for the rest of the evening, even have a sub for

bowling (which I may be able to resume next week.)

If any of you have any suggestions for me, like what to expect from

the pred., etc., and what to tell the rheumy when I go, I'd

appreciate it. He told me that it would give me an appetite (well

that would be something novel!) and might make me feel weak for

awhile. Well, weak would be an improvement. I thought I'd start a

journal, retro to last week when this really bad flare started, and

take it with me as some of you have done. Any suggestions for what

to eat--dr. said buy lots of fish, chicken, veggies & fruit.

OK, my nurse is pulling me away, so I'll talk to you tomorrow (I

hope!) Hope you all are having peaceful day & night to come.

God bless,

Judi

[Guest guest]

(((((((((((((Judi))))))))))...lots of love & hugs & prayers for you,

kiddo. I think limiting extra salt and drinking lots of water helps

with prednisone. Sometimes one's emotions kind of intensify as well.

I'm so glad " Nurse Ron " is there for you.

Much Love....

Tess