Guest guest Posted December 28, 2007 Report Share Posted December 28, 2007 Hi Arwen wow, wait, you are saying you want to get rid of your thyroid gland. don't do that. you must start informing yourself.. and understand their is a lot of misinformation out there -as well as good info. YOu MUST read enough to understand why DRs are so ill-informed about EVERY aspect of hypothryoid care , including symptoms. -they don't even believe in " Adrenal Fatigue " yet. if you have hashis. you can help yourself greatly by getting on the right med and the right dosage. --this can decrease your Antibody activity/autoimmune response. you can keep your thyroid gland from being totally destroyed. also, you need to understand what " Adrenal Fatigue " is and how it can affect your thyroid status and symptoms. i myself have hashis and HIGH cortisol adrenal fatigue . and know that my diet/low glycemic/allergy/cravings have played a huge role in my health. please read Shoman's book: " won't your dr won't tell you about Hypothyroidism " and 's book Adrenal Fatigue: 21st century stress syndrome they are both about $15 (and perhaps at your library?? don't get discouraged. what city state are you in? perhaps you want to ask if anyone knows of a good dr in your area??? most of us have found endos to be the worst at helping us -Carol > > Hello Everyone :-) > > I was diagnosed with Hashimoto's Disease and a B12 vitamin deficiency > in Nov 07. > > In an effort to keep track of my research, symptoms, and opions, I > have been keeping a letter up to date to take with me to my dr's > visit. I currently am not happy with my current endocrinologist and > am setting up an appointment with another, highly reccomended > endocrinologist, which this information is mostly for. I figured it'd > be a good way to " introduce " myself and my mindset in relation to the > Hashimoto's. > > Thank you! > > * * * > > Since being notified by my general practitioner that my thyroid > levels were " off " , I have done a lot of research on the possible > causes as well as trying to be more aware of possible symptoms I may > be experiencing. Below is the most current and comprehensive > information on my symptoms and what research I've done regarding > those symptoms. > > Initial tests in Sept 07: > My results Ideal range > Thyroglobulin ab........569.............<40- IU/mL > Antithyroid perox ab....239.............<35- IU/mL > TSH.....................4.8.............0.4-4.7 mcIU/mL > Free T3.................5.3.............1.4-4.7 pg/mL > Free T4.................1.5.............0.8-1.9 ng/dL > > > Fatigue. I have noticed a distinct drop in my energy levels for all > of 2007, possibly even earlier. I never needed to nap before and > starting the summer of 2006, I napped 3-4 days a week. Naps would > consistently last for more than 2 hours. I can't remember the last > time I woke up and felt rested and ready to start the day. It is > always a battle to get going in the morning – even if I have slept > until noon. I generally do not sleep well, often waking up at least 2 > times a night. Sometimes, I wake up coughing like something stuck in > my throat. > > Weight gain. I was always around 115-120 until I turned 21, when I > gained about 20 lbs over a few months. I figured this was a normal > metabolism shift. However, from June 2006-Dec 2007, I have gained 40 > more pounds. I don't work out in structured time, but I do volunteer > as a set designer/builder for a theater group and am more likely to > get up and move around when I'm not feeling exhausted (see fatigue). > In any event, there has not been any major diet or exercise change in > this time period. Only recently, in 2007, have I felt so exhausted > that I have noticed my activity level decreasing. > > Dry Skin/Brittle Hair: My hair is harder to comb after a shower due > to feeling dry and brittle. My skin, especially on my legs and hands > gets drier and drier. My face is dry after being cleaned, but I also > have frequent break-outs. > > Cold/Hot: I cycle between being too hot and too cold. I am generally > colder than people around me and always carry sweaters wherever I go. > However, I will get " hot flashes " while sitting at my desk at work or > just generally relaxing that last anywhere between 5 and 30 minutes. > My hands also swell and become itchy when I get too warm. > > Light Periods: This is a symptom of hyperthyroid, but I have had > quite light periods for at least 9 months. > > Emotional/Anxiety Issues: This is probably the most frustrating, > currently. I dealt with depression in high school. Currently, I find > myself easily irritated. Dealing with my diagnosis of Hashimoto's > Disease and Pernicious Anemia has been frustrating. When I experience > any symptom, I think of the diagnosis, and then wonder if maybe my > symptoms are psychosomatic as they seem to have gotten worse with > treatment, not better, and then a cycle of self-doubt, frustration, > and anger. > > Throat Issues: I feel constantly like I have a lump in my throat and > my voice becomes hoarse or tired much more quickly than usual. This > has only been a symptom for about 4 months. I also often wake up > coughing at night, like something caught in my throat. This also was > not a problem until maybe 6 months ago. > > I also experience anxiety issues. I become worried or agitated more > easily. I also have had problems with crowds for several years now. > The worst is being in a crowded store or mall. When I feel I cannot > move around freely without obstacles, I become very tense, my > movement becomes jerky, my breathing gets short and I become very > irritable. My husband and I tend to avoid shopping at " busy " times > and I prefer to have groceries delivered if possible because of it. > The emotional and anxiety issues also magnify my general impatience, > which, with the slow turnaround time of treatment for these diseases > is especially frustrating. > > I have been diagnosed with Hashimoto's Disease and told I have a > related B12 deficiency, which I can only assume is Pernicious Anemia. > The B12 test was done after my Hashimoto's diagnosis and I have not > been able to see my doctor for an official diagnosis of Pernicious > Anemia, even though I have been getting monthly injections (after 3 2- > week injections). In my research (books and online), Pernicious > Anemia is the associated autoimmune disorder that affects my body's > ability to absorb B12, so I figured that's what it must be. > > Since my treatment began, I have seemingly only gotten worse. The B12 > injections seem to do almost nothing. I notice no difference after > having them. The Synthroid seemed to help for about a week and then I > became more fatigued, swallowing became more difficult, my voice > becomes hoarse more easily, and the cycling between hot and cold has > become more intense and frequent. > > I also wonder if I may have Hashitoxicosis. It would explain the > sometimes conflicting symptoms of being hyper and hypothyroid. It > also would seem to explain the cycling between cold and hot. Any > tests that could be done to verify this I would welcome. > > As I've researched Hashimoto's and Hashitoxicosis, I've also looked > at treatment options. I am fine with synthetic hormones and the B12 > injections. However, as I understand my levels will constantly > continue to change until my immune system ultimately destroys my > thyroid, I begin to think it would be worth it to have the thyroid > removed or destroyed and just get it over and done with. When faced > with the decision of whether to constantly deal with the adjustments > over the next 2-20 years or to undergo surgery and/or Radioactive > Iodine Treatment to just get it done and over with, I very much lean > towards preferring the latter. > > I know this is a lot of information and I do not have the years of > expertise, but this is an honest and accurate description of what > I've learned and experienced the past 18 months or so. I hope this > helps to get an accurate assessment of my current knowledge, > symptoms, and feeling regarding my diagnosis. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2007 Report Share Posted December 28, 2007 Hi Carol :-) I don't want to get rid of my thyriod if I can get the correct dosage/balance, etc, it's just that currently, I'm all over the place and I get very frustrated that my current dr will only check my blood levels once every 2 months, when others will test at 4 to 6 weeks. I live in the Seattle area and am going to try a new dr that is highly reccomended in my area. My current Dr I think focuses more on diabetes and, for example of his lack of thuroughness, is only checking my TSH levels (not t3 or t4 or antibodies) at the beginning of january (2 months after I was first put on synthroid). I have been absorbing as much information as possible, and I will add your two reccomendations to my library. Thanks for the reccomendations. > > > > Hello Everyone :-) > > > > I was diagnosed with Hashimoto's Disease and a B12 vitamin > deficiency > > in Nov 07. > > > > In an effort to keep track of my research, symptoms, and opions, I > > have been keeping a letter up to date to take with me to my dr's > > visit. I currently am not happy with my current endocrinologist > and > > am setting up an appointment with another, highly reccomended > > endocrinologist, which this information is mostly for. I figured > it'd > > be a good way to " introduce " myself and my mindset in relation to > the > > Hashimoto's. > > > > Thank you! > > > > * * * > > > > Since being notified by my general practitioner that my thyroid > > levels were " off " , I have done a lot of research on the possible > > causes as well as trying to be more aware of possible symptoms I > may > > be experiencing. Below is the most current and comprehensive > > information on my symptoms and what research I've done regarding > > those symptoms. > > > > Initial tests in Sept 07: > > My results Ideal range > > Thyroglobulin ab........569.............<40- IU/mL > > Antithyroid perox ab....239.............<35- IU/mL > > TSH.....................4.8.............0.4-4.7 mcIU/mL > > Free T3.................5.3.............1.4-4.7 pg/mL > > Free T4.................1.5.............0.8-1.9 ng/dL > > > > > > Fatigue. I have noticed a distinct drop in my energy levels for > all > > of 2007, possibly even earlier. I never needed to nap before and > > starting the summer of 2006, I napped 3-4 days a week. Naps would > > consistently last for more than 2 hours. I can't remember the last > > time I woke up and felt rested and ready to start the day. It is > > always a battle to get going in the morning – even if I have slept > > until noon. I generally do not sleep well, often waking up at > least 2 > > times a night. Sometimes, I wake up coughing like something stuck > in > > my throat. > > > > Weight gain. I was always around 115-120 until I turned 21, when I > > gained about 20 lbs over a few months. I figured this was a normal > > metabolism shift. However, from June 2006-Dec 2007, I have gained > 40 > > more pounds. I don't work out in structured time, but I do > volunteer > > as a set designer/builder for a theater group and am more likely > to > > get up and move around when I'm not feeling exhausted (see > fatigue). > > In any event, there has not been any major diet or exercise change > in > > this time period. Only recently, in 2007, have I felt so exhausted > > that I have noticed my activity level decreasing. > > > > Dry Skin/Brittle Hair: My hair is harder to comb after a shower > due > > to feeling dry and brittle. My skin, especially on my legs and > hands > > gets drier and drier. My face is dry after being cleaned, but I > also > > have frequent break-outs. > > > > Cold/Hot: I cycle between being too hot and too cold. I am > generally > > colder than people around me and always carry sweaters wherever I > go. > > However, I will get " hot flashes " while sitting at my desk at work > or > > just generally relaxing that last anywhere between 5 and 30 > minutes. > > My hands also swell and become itchy when I get too warm. > > > > Light Periods: This is a symptom of hyperthyroid, but I have had > > quite light periods for at least 9 months. > > > > Emotional/Anxiety Issues: This is probably the most frustrating, > > currently. I dealt with depression in high school. Currently, I > find > > myself easily irritated. Dealing with my diagnosis of Hashimoto's > > Disease and Pernicious Anemia has been frustrating. When I > experience > > any symptom, I think of the diagnosis, and then wonder if maybe my > > symptoms are psychosomatic as they seem to have gotten worse with > > treatment, not better, and then a cycle of self-doubt, > frustration, > > and anger. > > > > Throat Issues: I feel constantly like I have a lump in my throat > and > > my voice becomes hoarse or tired much more quickly than usual. > This > > has only been a symptom for about 4 months. I also often wake up > > coughing at night, like something caught in my throat. This also > was > > not a problem until maybe 6 months ago. > > > > I also experience anxiety issues. I become worried or agitated > more > > easily. I also have had problems with crowds for several years > now. > > The worst is being in a crowded store or mall. When I feel I > cannot > > move around freely without obstacles, I become very tense, my > > movement becomes jerky, my breathing gets short and I become very > > irritable. My husband and I tend to avoid shopping at " busy " times > > and I prefer to have groceries delivered if possible because of it. > > The emotional and anxiety issues also magnify my general > impatience, > > which, with the slow turnaround time of treatment for these > diseases > > is especially frustrating. > > > > I have been diagnosed with Hashimoto's Disease and told I have a > > related B12 deficiency, which I can only assume is Pernicious > Anemia. > > The B12 test was done after my Hashimoto's diagnosis and I have > not > > been able to see my doctor for an official diagnosis of Pernicious > > Anemia, even though I have been getting monthly injections (after > 3 2- > > week injections). In my research (books and online), Pernicious > > Anemia is the associated autoimmune disorder that affects my > body's > > ability to absorb B12, so I figured that's what it must be. > > > > Since my treatment began, I have seemingly only gotten worse. The > B12 > > injections seem to do almost nothing. I notice no difference after > > having them. The Synthroid seemed to help for about a week and > then I > > became more fatigued, swallowing became more difficult, my voice > > becomes hoarse more easily, and the cycling between hot and cold > has > > become more intense and frequent. > > > > I also wonder if I may have Hashitoxicosis. It would explain the > > sometimes conflicting symptoms of being hyper and hypothyroid. It > > also would seem to explain the cycling between cold and hot. Any > > tests that could be done to verify this I would welcome. > > > > As I've researched Hashimoto's and Hashitoxicosis, I've also > looked > > at treatment options. I am fine with synthetic hormones and the > B12 > > injections. However, as I understand my levels will constantly > > continue to change until my immune system ultimately destroys my > > thyroid, I begin to think it would be worth it to have the thyroid > > removed or destroyed and just get it over and done with. When > faced > > with the decision of whether to constantly deal with the > adjustments > > over the next 2-20 years or to undergo surgery and/or Radioactive > > Iodine Treatment to just get it done and over with, I very much > lean > > towards preferring the latter. > > > > I know this is a lot of information and I do not have the years of > > expertise, but this is an honest and accurate description of what > > I've learned and experienced the past 18 months or so. I hope this > > helps to get an accurate assessment of my current knowledge, > > symptoms, and feeling regarding my diagnosis. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2007 Report Share Posted December 28, 2007 No, no,no, please ,please ,please do not destroy your thyroid gland let's try to figure this out Your TSH is very high with a corresponding FT3 , usually with a high TSH Frees are low, what has your doctor said about that? Your FT4 is also OK. Hashi's can swing from hypo to hyper although if this was happening I thought the TSH would have been lower there are people here more knowledgeable than me who might be able to help Your B12 not sure what the loading dose is that you had, was it 3 injections over a 2 week period? If so it may not have been enough, a lot of people have 7x1 week or 6 x 2 week.You may also benefit from weekly injections for a while and not monthly, B12 is water soluble so you just " pee " out what you don't use . Here is a good website for PA http://www.pernicious-anaemia-society.org/ If you look at the menu on the left-hand side you will see a forum you can join...............Meleese x ----- Original Message ----- Hello Everyone :-) I was diagnosed with Hashimoto's Disease and a B12 vitamin deficiency in Nov 07. In an effort to keep track of my research, symptoms, and opions, I have been keeping a letter up to date to take with me to my dr's visit. I currently am not happy with my current endocrinologist and am setting up an appointment with another, highly reccomended endocrinologist, which this information is mostly for. I figured it'd be a good way to " introduce " myself and my mindset in relation to the Hashimoto's. Thank you! * * * Since being notified by my general practitioner that my thyroid levels were " off " , I have done a lot of research on the possible causes as well as trying to be more aware of possible symptoms I may be experiencing. Below is the most current and comprehensive information on my symptoms and what research I've done regarding those symptoms. Initial tests in Sept 07: My results Ideal range Thyroglobulin ab........569.............<40- IU/mL Antithyroid perox ab....239.............<35- IU/mL TSH.....................4.8.............0.4-4.7 mcIU/mL Free T3.................5.3.............1.4-4.7 pg/mL Free T4.................1.5.............0.8-1.9 ng/dL Fatigue. I have noticed a distinct drop in my energy levels for all of 2007, possibly even earlier. I never needed to nap before and starting the summer of 2006, I napped 3-4 days a week. Naps would consistently last for more than 2 hours. I can't remember the last time I woke up and felt rested and ready to start the day. It is always a battle to get going in the morning - even if I have slept until noon. I generally do not sleep well, often waking up at least 2 times a night. Sometimes, I wake up coughing like something stuck in my throat. Weight gain. I was always around 115-120 until I turned 21, when I gained about 20 lbs over a few months. I figured this was a normal metabolism shift. However, from June 2006-Dec 2007, I have gained 40 more pounds. I don't work out in structured time, but I do volunteer as a set designer/builder for a theater group and am more likely to get up and move around when I'm not feeling exhausted (see fatigue). In any event, there has not been any major diet or exercise change in this time period. Only recently, in 2007, have I felt so exhausted that I have noticed my activity level decreasing. Dry Skin/Brittle Hair: My hair is harder to comb after a shower due to feeling dry and brittle. My skin, especially on my legs and hands gets drier and drier. My face is dry after being cleaned, but I also have frequent break-outs. Cold/Hot: I cycle between being too hot and too cold. I am generally colder than people around me and always carry sweaters wherever I go. However, I will get " hot flashes " while sitting at my desk at work or just generally relaxing that last anywhere between 5 and 30 minutes. My hands also swell and become itchy when I get too warm. Light Periods: This is a symptom of hyperthyroid, but I have had quite light periods for at least 9 months. Emotional/Anxiety Issues: This is probably the most frustrating, currently. I dealt with depression in high school. Currently, I find myself easily irritated. Dealing with my diagnosis of Hashimoto's Disease and Pernicious Anemia has been frustrating. When I experience any symptom, I think of the diagnosis, and then wonder if maybe my symptoms are psychosomatic as they seem to have gotten worse with treatment, not better, and then a cycle of self-doubt, frustration, and anger. Throat Issues: I feel constantly like I have a lump in my throat and my voice becomes hoarse or tired much more quickly than usual. This has only been a symptom for about 4 months. I also often wake up coughing at night, like something caught in my throat. This also was not a problem until maybe 6 months ago. I also experience anxiety issues. I become worried or agitated more easily. I also have had problems with crowds for several years now. The worst is being in a crowded store or mall. When I feel I cannot move around freely without obstacles, I become very tense, my movement becomes jerky, my breathing gets short and I become very irritable. My husband and I tend to avoid shopping at " busy " times and I prefer to have groceries delivered if possible because of it. The emotional and anxiety issues also magnify my general impatience, which, with the slow turnaround time of treatment for these diseases is especially frustrating. I have been diagnosed with Hashimoto's Disease and told I have a related B12 deficiency, which I can only assume is Pernicious Anemia. The B12 test was done after my Hashimoto's diagnosis and I have not been able to see my doctor for an official diagnosis of Pernicious Anemia, even though I have been getting monthly injections (after 3 2- week injections). In my research (books and online), Pernicious Anemia is the associated autoimmune disorder that affects my body's ability to absorb B12, so I figured that's what it must be. Since my treatment began, I have seemingly only gotten worse. The B12 injections seem to do almost nothing. I notice no difference after having them. The Synthroid seemed to help for about a week and then I became more fatigued, swallowing became more difficult, my voice becomes hoarse more easily, and the cycling between hot and cold has become more intense and frequent. I also wonder if I may have Hashitoxicosis. It would explain the sometimes conflicting symptoms of being hyper and hypothyroid. It also would seem to explain the cycling between cold and hot. Any tests that could be done to verify this I would welcome. As I've researched Hashimoto's and Hashitoxicosis, I've also looked at treatment options. I am fine with synthetic hormones and the B12 injections. However, as I understand my levels will constantly continue to change until my immune system ultimately destroys my thyroid, I begin to think it would be worth it to have the thyroid removed or destroyed and just get it over and done with. When faced with the decision of whether to constantly deal with the adjustments over the next 2-20 years or to undergo surgery and/or Radioactive Iodine Treatment to just get it done and over with, I very much lean towards preferring the latter. I know this is a lot of information and I do not have the years of expertise, but this is an honest and accurate description of what I've learned and experienced the past 18 months or so. I hope this helps to get an accurate assessment of my current knowledge, symptoms, and feeling regarding my diagnosis. *Note: Information is freely exchanged on this board based on patient experiences, and should not be considered a medical recommendation. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2007 Report Share Posted December 28, 2007 Please see my response to Carol's Re:Introduction post as well. Currently, my DR has said nothing about FT3 levels and I'm only scheduled for bloodwork to check my TSH levels for my next appointment next weekend. It doesn't have anything requesting T3, T4, or antibodies. Yes for the B12 - I had 3 injections (once every 2 weeks for 6 weeks). Now I'm at once a month. I'm supposed to be able to discuss this more with my doctor at my Jan 5th appointment. The whole process is so slow it's incredibly frustrating. I just have to wait with my body going from hot to cold to exhausted, but can't sleep solidly for 8 hours, etc etc. also, most people talk about check ups/bloodwoork every 4-6 weeks, but i've had to wait 2 months between these appointments and I've been feeling awful for the past month. It's driving me crazy. I'm so happy I only have one more week to go... > > No, no,no, please ,please ,please do not destroy your thyroid gland let's > try to figure this out > > Your TSH is very high with a corresponding FT3 , usually with a high TSH > Frees are low, what has your doctor said about that? Your FT4 is also OK. > Hashi's can swing from hypo to hyper although if this was happening I > thought the TSH would have been lower there are people here more > knowledgeable than me who might be able to help > > Your B12 not sure what the loading dose is that you had, was it 3 injections > over a 2 week period? If so it may not have been enough, a lot of people > have 7x1 week or 6 x 2 week.You may also benefit from weekly injections for > a while and not monthly, B12 is water soluble so you just " pee " out what you > don't use . Here is a good website for PA > > http://www.pernicious-anaemia-society.org/ > > If you look at the menu on the left-hand side you will see a forum you can > join...............Meleese x > > > ----- Original Message ----- > > > Hello Everyone :-) > > I was diagnosed with Hashimoto's Disease and a B12 vitamin deficiency > in Nov 07. > > In an effort to keep track of my research, symptoms, and opions, I > have been keeping a letter up to date to take with me to my dr's > visit. I currently am not happy with my current endocrinologist and > am setting up an appointment with another, highly reccomended > endocrinologist, which this information is mostly for. I figured it'd > be a good way to " introduce " myself and my mindset in relation to the > Hashimoto's. > > Thank you! > > * * * > > Since being notified by my general practitioner that my thyroid > levels were " off " , I have done a lot of research on the possible > causes as well as trying to be more aware of possible symptoms I may > be experiencing. Below is the most current and comprehensive > information on my symptoms and what research I've done regarding > those symptoms. > > Initial tests in Sept 07: > My results Ideal range > Thyroglobulin ab........569.............<40- IU/mL > Antithyroid perox ab....239.............<35- IU/mL > TSH.....................4.8.............0.4-4.7 mcIU/mL > Free T3.................5.3.............1.4-4.7 pg/mL > Free T4.................1.5.............0.8-1.9 ng/dL > > > Fatigue. I have noticed a distinct drop in my energy levels for all > of 2007, possibly even earlier. I never needed to nap before and > starting the summer of 2006, I napped 3-4 days a week. Naps would > consistently last for more than 2 hours. I can't remember the last > time I woke up and felt rested and ready to start the day. It is > always a battle to get going in the morning - even if I have slept > until noon. I generally do not sleep well, often waking up at least 2 > times a night. Sometimes, I wake up coughing like something stuck in > my throat. > > Weight gain. I was always around 115-120 until I turned 21, when I > gained about 20 lbs over a few months. I figured this was a normal > metabolism shift. However, from June 2006-Dec 2007, I have gained 40 > more pounds. I don't work out in structured time, but I do volunteer > as a set designer/builder for a theater group and am more likely to > get up and move around when I'm not feeling exhausted (see fatigue). > In any event, there has not been any major diet or exercise change in > this time period. Only recently, in 2007, have I felt so exhausted > that I have noticed my activity level decreasing. > > Dry Skin/Brittle Hair: My hair is harder to comb after a shower due > to feeling dry and brittle. My skin, especially on my legs and hands > gets drier and drier. My face is dry after being cleaned, but I also > have frequent break-outs. > > Cold/Hot: I cycle between being too hot and too cold. I am generally > colder than people around me and always carry sweaters wherever I go. > However, I will get " hot flashes " while sitting at my desk at work or > just generally relaxing that last anywhere between 5 and 30 minutes. > My hands also swell and become itchy when I get too warm. > > Light Periods: This is a symptom of hyperthyroid, but I have had > quite light periods for at least 9 months. > > Emotional/Anxiety Issues: This is probably the most frustrating, > currently. I dealt with depression in high school. Currently, I find > myself easily irritated. Dealing with my diagnosis of Hashimoto's > Disease and Pernicious Anemia has been frustrating. When I experience > any symptom, I think of the diagnosis, and then wonder if maybe my > symptoms are psychosomatic as they seem to have gotten worse with > treatment, not better, and then a cycle of self-doubt, frustration, > and anger. > > Throat Issues: I feel constantly like I have a lump in my throat and > my voice becomes hoarse or tired much more quickly than usual. This > has only been a symptom for about 4 months. I also often wake up > coughing at night, like something caught in my throat. This also was > not a problem until maybe 6 months ago. > > I also experience anxiety issues. I become worried or agitated more > easily. I also have had problems with crowds for several years now. > The worst is being in a crowded store or mall. When I feel I cannot > move around freely without obstacles, I become very tense, my > movement becomes jerky, my breathing gets short and I become very > irritable. My husband and I tend to avoid shopping at " busy " times > and I prefer to have groceries delivered if possible because of it. > The emotional and anxiety issues also magnify my general impatience, > which, with the slow turnaround time of treatment for these diseases > is especially frustrating. > > I have been diagnosed with Hashimoto's Disease and told I have a > related B12 deficiency, which I can only assume is Pernicious Anemia. > The B12 test was done after my Hashimoto's diagnosis and I have not > been able to see my doctor for an official diagnosis of Pernicious > Anemia, even though I have been getting monthly injections (after 3 2- > week injections). In my research (books and online), Pernicious > Anemia is the associated autoimmune disorder that affects my body's > ability to absorb B12, so I figured that's what it must be. > > Since my treatment began, I have seemingly only gotten worse. The B12 > injections seem to do almost nothing. I notice no difference after > having them. The Synthroid seemed to help for about a week and then I > became more fatigued, swallowing became more difficult, my voice > becomes hoarse more easily, and the cycling between hot and cold has > become more intense and frequent. > > I also wonder if I may have Hashitoxicosis. It would explain the > sometimes conflicting symptoms of being hyper and hypothyroid. It > also would seem to explain the cycling between cold and hot. Any > tests that could be done to verify this I would welcome. > > As I've researched Hashimoto's and Hashitoxicosis, I've also looked > at treatment options. I am fine with synthetic hormones and the B12 > injections. However, as I understand my levels will constantly > continue to change until my immune system ultimately destroys my > thyroid, I begin to think it would be worth it to have the thyroid > removed or destroyed and just get it over and done with. When faced > with the decision of whether to constantly deal with the adjustments > over the next 2-20 years or to undergo surgery and/or Radioactive > Iodine Treatment to just get it done and over with, I very much lean > towards preferring the latter. > > I know this is a lot of information and I do not have the years of > expertise, but this is an honest and accurate description of what > I've learned and experienced the past 18 months or so. I hope this > helps to get an accurate assessment of my current knowledge, > symptoms, and feeling regarding my diagnosis. > > > > > *Note: Information is freely exchanged on this board based on patient > experiences, and should not be considered a medical recommendation. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2007 Report Share Posted December 28, 2007 Arwen wrote: > I don't want to get rid of my thyriod if I can get the correct > dosage/balance, etc, it's just that currently, I'm all over the place > Well, I'm no expert, but have been reading various thyroid boards for several months, and so far as I can tell people who have had RAI or thyroidectomies have just as much trouble balancing all this as people with Hashi's. And some of the people who have had surgical removal or radiation have developed further secondary problems as a result, further complicating their efforts to get and stay well. I'm just a few months into this, and yes, I've had trouble balancing, and am still in the process of working up my thyroid dose slowly. I'm also taking hydrocortisone for severe adrenal fatigue. And at some point, if they don't straighten themselves out, I will have to address the sex hormones. When I first started on Armour, I thought this was all going to be easy--hypothyroid? Take a thryoid hormone replacement and get well. LOL, it didn't work out that way, and now I think that the people for whom it does turn out to be that easy are extremely lucky, and they may even be a minority. In my case that was last Feb or March, and I'm still working on sorting it all out. I was sick a very long time, though, and maybe that has an effect. NO idea how long I've had antibodies, but I suspect its been quite a while. Certainly I've been iodine allergic for over 20 years. I'd have thought if the antibodies dated back that far, I'd have had a sky high TSH by now, but I don't. It has been going up slowly but steadily though. And it shows way higher in saliva tests than in blood tests. Geez, I got to rambling on, sorry, anyway, my point was removing your thyroid will be as likely to make this more complicated for you as it would to simplify anything. sol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2007 Report Share Posted December 28, 2007 Yes thanks I did see your response after I had posted It doesn't look like your loading dose of B12 was enough, a lot of people benefit from 6 injections over a 2 weeks period so almost every other day for 2 weeks.This helps build up the stores , there is some good information in the link I posted and the forum is good too. Then a lot of people move on to weekly injections for a while how long is dependant on how you feel and a lot learn to self-inject Hopefully your Jan 5th appointment will go well ----- Original Message ----- > Please see my response to Carol's Re:Introduction post as well. > > Currently, my DR has said nothing about FT3 levels and I'm only > scheduled for bloodwork to check my TSH levels for my next > appointment next weekend. It doesn't have anything requesting T3, T4, > or antibodies. > > Yes for the B12 - I had 3 injections (once every 2 weeks for 6 > weeks). Now I'm at once a month. I'm supposed to be able to discuss > this more with my doctor at my Jan 5th appointment. > > The whole process is so slow it's incredibly frustrating. I just have > to wait with my body going from hot to cold to exhausted, but can't > sleep solidly for 8 hours, etc etc. > > also, most people talk about check ups/bloodwoork every 4-6 weeks, > but i've had to wait 2 months between these appointments and I've > been feeling awful for the past month. It's driving me crazy. I'm so > happy I only have one more week to go... > > > > >> >> No, no,no, please ,please ,please do not destroy your thyroid gland > let's >> try to figure this out >> >> Your TSH is very high with a corresponding FT3 , usually with a > high TSH >> Frees are low, what has your doctor said about that? Your FT4 is > also OK. >> Hashi's can swing from hypo to hyper although if this was happening > I >> thought the TSH would have been lower there are people here more >> knowledgeable than me who might be able to help >> >> Your B12 not sure what the loading dose is that you had, was it 3 > injections >> over a 2 week period? If so it may not have been enough, a lot of > people >> have 7x1 week or 6 x 2 week.You may also benefit from weekly > injections for >> a while and not monthly, B12 is water soluble so you just " pee " out > what you >> don't use . Here is a good website for PA >> >> http://www.pernicious-anaemia-society.org/ >> >> If you look at the menu on the left-hand side you will see a forum > you can >> join...............Meleese x >> >> >> ----- Original Message ----- >> >> >> Hello Everyone :-) >> >> I was diagnosed with Hashimoto's Disease and a B12 vitamin > deficiency >> in Nov 07. >> >> In an effort to keep track of my research, symptoms, and opions, I >> have been keeping a letter up to date to take with me to my dr's >> visit. I currently am not happy with my current endocrinologist and >> am setting up an appointment with another, highly reccomended >> endocrinologist, which this information is mostly for. I figured > it'd >> be a good way to " introduce " myself and my mindset in relation to > the >> Hashimoto's. >> >> Thank you! >> >> * * * >> >> Since being notified by my general practitioner that my thyroid >> levels were " off " , I have done a lot of research on the possible >> causes as well as trying to be more aware of possible symptoms I may >> be experiencing. Below is the most current and comprehensive >> information on my symptoms and what research I've done regarding >> those symptoms. >> >> Initial tests in Sept 07: >> My results Ideal range >> Thyroglobulin ab........569.............<40- IU/mL >> Antithyroid perox ab....239.............<35- IU/mL >> TSH.....................4.8.............0.4-4.7 mcIU/mL >> Free T3.................5.3.............1.4-4.7 pg/mL >> Free T4.................1.5.............0.8-1.9 ng/dL >> >> >> Fatigue. I have noticed a distinct drop in my energy levels for all >> of 2007, possibly even earlier. I never needed to nap before and >> starting the summer of 2006, I napped 3-4 days a week. Naps would >> consistently last for more than 2 hours. I can't remember the last >> time I woke up and felt rested and ready to start the day. It is >> always a battle to get going in the morning - even if I have slept >> until noon. I generally do not sleep well, often waking up at least > 2 >> times a night. Sometimes, I wake up coughing like something stuck in >> my throat. >> >> Weight gain. I was always around 115-120 until I turned 21, when I >> gained about 20 lbs over a few months. I figured this was a normal >> metabolism shift. However, from June 2006-Dec 2007, I have gained 40 >> more pounds. I don't work out in structured time, but I do volunteer >> as a set designer/builder for a theater group and am more likely to >> get up and move around when I'm not feeling exhausted (see fatigue). >> In any event, there has not been any major diet or exercise change > in >> this time period. Only recently, in 2007, have I felt so exhausted >> that I have noticed my activity level decreasing. >> >> Dry Skin/Brittle Hair: My hair is harder to comb after a shower due >> to feeling dry and brittle. My skin, especially on my legs and hands >> gets drier and drier. My face is dry after being cleaned, but I also >> have frequent break-outs. >> >> Cold/Hot: I cycle between being too hot and too cold. I am generally >> colder than people around me and always carry sweaters wherever I > go. >> However, I will get " hot flashes " while sitting at my desk at work > or >> just generally relaxing that last anywhere between 5 and 30 minutes. >> My hands also swell and become itchy when I get too warm. >> >> Light Periods: This is a symptom of hyperthyroid, but I have had >> quite light periods for at least 9 months. >> >> Emotional/Anxiety Issues: This is probably the most frustrating, >> currently. I dealt with depression in high school. Currently, I find >> myself easily irritated. Dealing with my diagnosis of Hashimoto's >> Disease and Pernicious Anemia has been frustrating. When I > experience >> any symptom, I think of the diagnosis, and then wonder if maybe my >> symptoms are psychosomatic as they seem to have gotten worse with >> treatment, not better, and then a cycle of self-doubt, frustration, >> and anger. >> >> Throat Issues: I feel constantly like I have a lump in my throat and >> my voice becomes hoarse or tired much more quickly than usual. This >> has only been a symptom for about 4 months. I also often wake up >> coughing at night, like something caught in my throat. This also was >> not a problem until maybe 6 months ago. >> >> I also experience anxiety issues. I become worried or agitated more >> easily. I also have had problems with crowds for several years now. >> The worst is being in a crowded store or mall. When I feel I cannot >> move around freely without obstacles, I become very tense, my >> movement becomes jerky, my breathing gets short and I become very >> irritable. My husband and I tend to avoid shopping at " busy " times >> and I prefer to have groceries delivered if possible because of it. >> The emotional and anxiety issues also magnify my general impatience, >> which, with the slow turnaround time of treatment for these diseases >> is especially frustrating. >> >> I have been diagnosed with Hashimoto's Disease and told I have a >> related B12 deficiency, which I can only assume is Pernicious > Anemia. >> The B12 test was done after my Hashimoto's diagnosis and I have not >> been able to see my doctor for an official diagnosis of Pernicious >> Anemia, even though I have been getting monthly injections (after 3 > 2- >> week injections). In my research (books and online), Pernicious >> Anemia is the associated autoimmune disorder that affects my body's >> ability to absorb B12, so I figured that's what it must be. >> >> Since my treatment began, I have seemingly only gotten worse. The > B12 >> injections seem to do almost nothing. I notice no difference after >> having them. The Synthroid seemed to help for about a week and then > I >> became more fatigued, swallowing became more difficult, my voice >> becomes hoarse more easily, and the cycling between hot and cold has >> become more intense and frequent. >> >> I also wonder if I may have Hashitoxicosis. It would explain the >> sometimes conflicting symptoms of being hyper and hypothyroid. It >> also would seem to explain the cycling between cold and hot. Any >> tests that could be done to verify this I would welcome. >> >> As I've researched Hashimoto's and Hashitoxicosis, I've also looked >> at treatment options. I am fine with synthetic hormones and the B12 >> injections. However, as I understand my levels will constantly >> continue to change until my immune system ultimately destroys my >> thyroid, I begin to think it would be worth it to have the thyroid >> removed or destroyed and just get it over and done with. When faced >> with the decision of whether to constantly deal with the adjustments >> over the next 2-20 years or to undergo surgery and/or Radioactive >> Iodine Treatment to just get it done and over with, I very much lean >> towards preferring the latter. >> >> I know this is a lot of information and I do not have the years of >> expertise, but this is an honest and accurate description of what >> I've learned and experienced the past 18 months or so. I hope this >> helps to get an accurate assessment of my current knowledge, >> symptoms, and feeling regarding my diagnosis. >> >> >> >> >> *Note: Information is freely exchanged on this board based on > patient >> experiences, and should not be considered a medical recommendation. >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2007 Report Share Posted December 28, 2007 Thank you (to everyone) for your support It seemed to me as well that it'd be much easier once I got on the hormone replacement (esp since another Hashi friend of mine said it's easy and fine). I'm glad to see that I'm not the only it seems to not be so easy. The most frustrating is that I feel *worse* after starting the injections and Synthroid. And yes, the sex hormone issue is a huge concern as I'm a newlywed and my lack of drive has been a stressful point. The diagnosis did help as my husband now knows that it wasn't just a lack of love for him or something. Still... very frustrating. But the whole cycle of symptom regocnition, second guessing, frustration, anger, depression - anyone else relate to that? Currently, that, fatigue, long between appointment/testing times, and the non existant sex drive are the most frustrating parts... > > I don't want to get rid of my thyriod if I can get the correct > > dosage/balance, etc, it's just that currently, I'm all over the place > > > Well, I'm no expert, but have been reading various thyroid boards for > several months, and so far as I can tell people who have had RAI or > thyroidectomies have just as much trouble balancing all this as people > with Hashi's. And some of the people who have had surgical removal or > radiation have developed further secondary problems as a result, further > complicating their efforts to get and stay well. > > I'm just a few months into this, and yes, I've had trouble balancing, > and am still in the process of working up my thyroid dose slowly. I'm > also taking hydrocortisone for severe adrenal fatigue. And at some > point, if they don't straighten themselves out, I will have to address > the sex hormones. > > When I first started on Armour, I thought this was all going to be > easy--hypothyroid? Take a thryoid hormone replacement and get well. LOL, > it didn't work out that way, and now I think that the people for whom it > does turn out to be that easy are extremely lucky, and they may even be > a minority. In my case that was last Feb or March, and I'm still working > on sorting it all out. I was sick a very long time, though, and maybe > that has an effect. NO idea how long I've had antibodies, but I suspect > its been quite a while. Certainly I've been iodine allergic for over 20 > years. I'd have thought if the antibodies dated back that far, I'd have > had a sky high TSH by now, but I don't. It has been going up slowly but > steadily though. And it shows way higher in saliva tests than in blood > tests. > > Geez, I got to rambling on, sorry, anyway, my point was removing your > thyroid will be as likely to make this more complicated for you as it > would to simplify anything. > sol > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2007 Report Share Posted December 30, 2007 Hi Carol, It usually means an increase of adrenaline and noradrenaline, but cortisol usually follows the release of those, so yes, it probably increases cortisol release also. > > > > > > Hello Everyone :-) > > > > > > I was diagnosed with Hashimoto's Disease and a B12 vitamin > deficiency > > > in Nov 07. > > > > > > In an effort to keep track of my research, symptoms, and opions, > I > > > have been keeping a letter up to date to take with me to my dr's > > > visit. I currently am not happy with my current endocrinologist > and > > > am setting up an appointment with another, highly reccomended > > > endocrinologist, which this information is mostly for. I figured > it'd > > > be a good way to " introduce " myself and my mindset in relation > to the > > > Hashimoto's. > > > > > > Thank you! > > > > > > * * * > > > > > > Since being notified by my general practitioner that my thyroid > > > levels were " off " , I have done a lot of research on the possible > > > causes as well as trying to be more aware of possible symptoms I > may > > > be experiencing. Below is the most current and comprehensive > > > information on my symptoms and what research I've done regarding > > > those symptoms. > > > > > > Initial tests in Sept 07: > > > My results Ideal range > > > Thyroglobulin ab........569.............<40- IU/mL > > > Antithyroid perox ab....239.............<35- IU/mL > > > TSH.....................4.8.............0.4-4.7 mcIU/mL > > > Free T3.................5.3.............1.4-4.7 pg/mL > > > Free T4.................1.5.............0.8-1.9 ng/dL > > > > > > > > > Fatigue. I have noticed a distinct drop in my energy levels for > all > > > of 2007, possibly even earlier. I never needed to nap before and > > > starting the summer of 2006, I napped 3-4 days a week. Naps > would > > > consistently last for more than 2 hours. I can't remember the > last > > > time I woke up and felt rested and ready to start the day. It is > > > always a battle to get going in the morning – even if I have > slept > > > until noon. I generally do not sleep well, often waking up at > least 2 > > > times a night. Sometimes, I wake up coughing like something > stuck in > > > my throat. > > > > > > Weight gain. I was always around 115-120 until I turned 21, when > I > > > gained about 20 lbs over a few months. I figured this was a > normal > > > metabolism shift. However, from June 2006-Dec 2007, I have > gained 40 > > > more pounds. I don't work out in structured time, but I do > volunteer > > > as a set designer/builder for a theater group and am more likely > to > > > get up and move around when I'm not feeling exhausted (see > fatigue). > > > In any event, there has not been any major diet or exercise > change in > > > this time period. Only recently, in 2007, have I felt so > exhausted > > > that I have noticed my activity level decreasing. > > > > > > Dry Skin/Brittle Hair: My hair is harder to comb after a shower > due > > > to feeling dry and brittle. My skin, especially on my legs and > hands > > > gets drier and drier. My face is dry after being cleaned, but I > also > > > have frequent break-outs. > > > > > > Cold/Hot: I cycle between being too hot and too cold. I am > generally > > > colder than people around me and always carry sweaters wherever > I go. > > > However, I will get " hot flashes " while sitting at my desk at > work or > > > just generally relaxing that last anywhere between 5 and 30 > minutes. > > > My hands also swell and become itchy when I get too warm. > > > > > > Light Periods: This is a symptom of hyperthyroid, but I have had > > > quite light periods for at least 9 months. > > > > > > Emotional/Anxiety Issues: This is probably the most frustrating, > > > currently. I dealt with depression in high school. Currently, I > find > > > myself easily irritated. Dealing with my diagnosis of > Hashimoto's > > > Disease and Pernicious Anemia has been frustrating. When I > experience > > > any symptom, I think of the diagnosis, and then wonder if maybe > my > > > symptoms are psychosomatic as they seem to have gotten worse > with > > > treatment, not better, and then a cycle of self-doubt, > frustration, > > > and anger. > > > > > > Throat Issues: I feel constantly like I have a lump in my throat > and > > > my voice becomes hoarse or tired much more quickly than usual. > This > > > has only been a symptom for about 4 months. I also often wake up > > > coughing at night, like something caught in my throat. This also > was > > > not a problem until maybe 6 months ago. > > > > > > I also experience anxiety issues. I become worried or agitated > more > > > easily. I also have had problems with crowds for several years > now. > > > The worst is being in a crowded store or mall. When I feel I > cannot > > > move around freely without obstacles, I become very tense, my > > > movement becomes jerky, my breathing gets short and I become > very > > > irritable. My husband and I tend to avoid shopping at " busy " > times > > > and I prefer to have groceries delivered if possible because of > it. > > > The emotional and anxiety issues also magnify my general > impatience, > > > which, with the slow turnaround time of treatment for these > diseases > > > is especially frustrating. > > > > > > I have been diagnosed with Hashimoto's Disease and told I have a > > > related B12 deficiency, which I can only assume is Pernicious > Anemia. > > > The B12 test was done after my Hashimoto's diagnosis and I have > not > > > been able to see my doctor for an official diagnosis of > Pernicious > > > Anemia, even though I have been getting monthly injections > (after 3 2- > > > week injections). In my research (books and online), Pernicious > > > Anemia is the associated autoimmune disorder that affects my > body's > > > ability to absorb B12, so I figured that's what it must be. > > > > > > Since my treatment began, I have seemingly only gotten worse. > The B12 > > > injections seem to do almost nothing. I notice no difference > after > > > having them. The Synthroid seemed to help for about a week and > then I > > > became more fatigued, swallowing became more difficult, my voice > > > becomes hoarse more easily, and the cycling between hot and cold > has > > > become more intense and frequent. > > > > > > I also wonder if I may have Hashitoxicosis. It would explain the > > > sometimes conflicting symptoms of being hyper and hypothyroid. > It > > > also would seem to explain the cycling between cold and hot. Any > > > tests that could be done to verify this I would welcome. > > > > > > As I've researched Hashimoto's and Hashitoxicosis, I've also > looked > > > at treatment options. I am fine with synthetic hormones and the > B12 > > > injections. However, as I understand my levels will constantly > > > continue to change until my immune system ultimately destroys my > > > thyroid, I begin to think it would be worth it to have the > thyroid > > > removed or destroyed and just get it over and done with. When > faced > > > with the decision of whether to constantly deal with the > adjustments > > > over the next 2-20 years or to undergo surgery and/or > Radioactive > > > Iodine Treatment to just get it done and over with, I very much > lean > > > towards preferring the latter. > > > > > > I know this is a lot of information and I do not have the years > of > > > expertise, but this is an honest and accurate description of > what > > > I've learned and experienced the past 18 months or so. I hope > this > > > helps to get an accurate assessment of my current knowledge, > > > symptoms, and feeling regarding my diagnosis. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2008 Report Share Posted January 7, 2008 Honey, that's the story of my life! I am right there with you and have been fighting this for the last 2 years basically. I think it is the frustration of dealing with the doctors and how they make you feel that makes it all worse! > > > I don't want to get rid of my thyriod if I can get the correct > > > dosage/balance, etc, it's just that currently, I'm all over the > place > > > > > Well, I'm no expert, but have been reading various thyroid boards > for > > several months, and so far as I can tell people who have had RAI or > > thyroidectomies have just as much trouble balancing all this as > people > > with Hashi's. And some of the people who have had surgical removal > or > > radiation have developed further secondary problems as a result, > further > > complicating their efforts to get and stay well. > > > > I'm just a few months into this, and yes, I've had trouble > balancing, > > and am still in the process of working up my thyroid dose slowly. > I'm > > also taking hydrocortisone for severe adrenal fatigue. And at some > > point, if they don't straighten themselves out, I will have to > address > > the sex hormones. > > > > When I first started on Armour, I thought this was all going to be > > easy--hypothyroid? Take a thryoid hormone replacement and get well. > LOL, > > it didn't work out that way, and now I think that the people for > whom it > > does turn out to be that easy are extremely lucky, and they may > even be > > a minority. In my case that was last Feb or March, and I'm still > working > > on sorting it all out. I was sick a very long time, though, and > maybe > > that has an effect. NO idea how long I've had antibodies, but I > suspect > > its been quite a while. Certainly I've been iodine allergic for > over 20 > > years. I'd have thought if the antibodies dated back that far, I'd > have > > had a sky high TSH by now, but I don't. It has been going up slowly > but > > steadily though. And it shows way higher in saliva tests than in > blood > > tests. > > > > Geez, I got to rambling on, sorry, anyway, my point was removing > your > > thyroid will be as likely to make this more complicated for you as > it > > would to simplify anything. > > sol > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.