Update on hospital stay!A scare!

[Guest guest]

I left almost 2 wks ago because my son had to be admitted into

hospital for more testing. I blocked my group mails so I wouldnt come

back to to much so I have not been up on the groups! Anyways he was

admitted and they wanted to do a IV cleanout for the needed tests. I

noticed within a few hours he started with stomach swelling and

questioned what they was using? They told me it was something new

(miralax isnt new so didnt worry to much) and works great, it is

called " Go lightly " . Well through out the night into the next day the

swelling continued. I was really starting to worry and no poo into

the next day. They even said he should have already. Into the next

night the nurse left the containor in the room of go lightly and I

got up and looked at the ingredients. I was freeked out to see it was

PEG!! I told them it doesnt work that great for him and causes severe

swelling/issues. Around 2am I called the nurse in because the

swelling was so severe he looked deformed/veins bulging ect. This

scared me and I told them something wasnt write. They looked at him

and ordered STAT exrays thinking he had blockage. Well no blockage! I

told them it was the PEG and has to be off of it. The doc pulled him

write off that morning. He said most would have evacuated by the next

morning and we was on the second morning! I told him that is what it

does to him swelling, but this was the worst i had ever seen(it was

going into him IV around the clock). The worst is yet to come, his

blood work came back and he had a dramatic drop in potassium and

started having heart fluxuations he ended up in ICU. The PEG when

sits in the body to long this can deplete the potassium and cause

heart issues(this is something new to me on miralax/PEG). Also I

wasnt told tell after the fact that infusing potassium back in to get

the levels needed can also be dangerous on the heart and this is why

he went into ICU! Well his levels went back to normal and heart

fluxuations stopped. They monitered him for a while and ended up

doing his biopsy in ICU instead of the norm room for precautions.

They was an excellent staff and so is our doctor, he had the best

care ever. But wanted to let those who dont know about the postassium

drops and diurectics(sp) staying in the body to long- Potassium

drops/dangerous on heart! This makes me wonder also about when he was

on miralax and nothing coming out for a few days and this happening

at home(heart/potassium)! I well never touch that stuff again no

matter how needed it may seem. Well they did the deeper biobsy for

nerve testing and we havent gotten the results back yet. He breifly

suggested and showed us the biopsy/scope pics, suspects the intrance

beginning with the anus may be missing the nerves. If this is it,

this explains why my son no matter how loose/even watery the stools

are still cant move(motility)! It stops about 5/6 inches befor the

anus opening due to no nerve contractions. Eventually he gets so full

and loose it just pushes out. This is what I have been suspecting for

about 2yrs or so now. If hirschsprungs he would have been born with

this, but this is not official diagnoses as of yet, may be something

else. The thing that is even more flustrating to me is if it is

hirschsprungs then why did he get 10 times worse after his vaccine

allergic reaction almost 4yrs ago(I discovered through research that

vaccines and any allergic reaction to anything can damage the

intestinal nerve cells)I suspect that instead of admitting vaccines

does this they diagnose many with hirschprungs etc!? He only had

occaissional constipation befor that day and then after severe gi

issues, I know the allergic reaction to vaccines caused this severe

issue but yet this was possibly something he was born with. I have

researched this to death and cant get to much info on enviromental

triggers or makes worse on hirschrungs and allergic reactions. Im

stumped, I do recall coming accross some info in past on hirsprungs

can be enviromentaly triggered in a certain nurmber of people but for

the life of me I cant find it now. I guess at this point I need to

quit trying to figure this out until we get his test results most

likely monday or so! I hope all is well with everyone! Jennie<><