Re: synthroid water retention, was Re: Re: Myxedema?

[Guest guest]

Hi—I just read the side effects and water retention and edema

are not listed on my synthroid warnings—would there be different warnings in different

states? I definitely had a ton of water retention.

From: Thyroiditis

[mailto:Thyroiditis ] On Behalf Of sol

Sent: Wednesday, May 21, 2008 4:30 PM

To: Thyroiditis

Subject: synthroid water retention, was Re: Re: Myxedema?

Joan, why do you think the T4 in armour doesn't

cause you to retain

water? Is it just that armour also has T3?

sol

joan wrote:

> Hi, synthroid can cause water retention. Read the packet. That is #1

> side effect.

> I couldn't get rid of my water, till I went onto armour. And I never

> had water retention till they put me on synthroid.

>

[Guest guest]

I am speechless—I have run of the mill bloating—nothing

like what you experienced. What an ordeal you went through!

I am so curious about this gluten connection. I have a

very limited diet—and am used to eating from a small list of foods.

I don’t see “gluten” written on labels but I am sure there

are other names. Do you know of a source where I could learn more about this?

When I did a search of Hashimoto’s on google there was a

lot of info but no national organization—like the MS society. Is

there one? It seems like an awful lot of people have this problem and

doctors seem unable to treat it.

From:

Thyroiditis [mailto:Thyroiditis ] On Behalf

Of beckyjov

Sent: Wednesday, May 21, 2008 10:06 PM

To: Thyroiditis

Subject: synthroid water retention, was Re: Re: Myxedema?

Hi ,

WOW! I guess I have a lot of reading to catch up on! It been busy

here in the last few days.

I haven't had nor taken the time to read through this entire thread.

I'll tell you my story. Some people think that edema in thyroid

patients is Myxedema. It very well could be. I had it before I went

into a Myxedema coma in 2004. However, the swelling while taking T4

alone wasn't the same as I experienced with Myxedema and Myxedema

coma.

I also didn't see edema listed as a side effect of $ynthroid or

Levoxyl (another synthetic T4 med) warnings. These drugs fall under

the FDA and would likely have only one label no matter what state

it's shipped to. However, angioedema is the swelling under the skin

and is considered to be an allergic reaction; and it's listed.

Since I couldn't tell how strong your swelling is, so I won't

speculate. I had the unbearable swelling for months. My eyes, face,

hands, belly, legs, ankles, feet were one big mass of an oversized

balloon ready to pop any second. I am just glad in my case it wasn't

life threatening.

My story, diagnosed in 2000 by my little girl's pediatrician. The

rest of the doctors told me go home and take an anti-depressant my

TSH was fine at 1.8. I was put on Levoxyl and started swelling and

swelling. I was so sick I had to be carried from the bed to the

bathroom. My ankles were so swollen I thought if my toe switched my

skin would burst or pop like a balloon.

What kind of awful disease caused me to get worse with treatment kept

going through my groggy head. In a few months I was switched to

$ynthro-crap and went from bad to worse. My DH flushed the $ynthroid

on July 4, 2001 and I've never taken either since. After being off

the T med my swelling disappeared almost completely within two days.

I didn't get the horrible swelling on Unithroid (the only thyroid

drug to never have a reason to be recalled).

Eventually, I found a doc who put me on Armour, but my swelling would

come and go even though it was much milder. It didn't leave me until

after I started eating Gluten-free about two years ago. I conclude

that I was allergic to either the binder, filler, or dye that was in

both Synthroid and Levoxyl. And Gluten can cause havoc on all areas

of the body. Gluten affects many thyroid patients negatively. Until

I addressed the Gluten, I had no quality of life.

HTH,

Bj

> > Hi, synthroid can cause water retention. Read the packet. That is

#1

> > side effect.

> > I couldn't get rid of my water, till I went onto armour. And I

never

> > had water retention till they put me on synthroid.

> >

>

[Guest guest]

Hi I have Coeliac Disease as well as Hashi's a great website here

www.celiac.com

If you look at the sections across the top you will see a forum.............. HTH ,.................Meleese x

----- Original Message -----

From: mary carey

I am speechless—I have run of the mill bloating—nothing like what you experienced. What an ordeal you went through!

I am so curious about this gluten connection. I have a very limited diet—and am used to eating from a small list of foods. I don’t see “gluten” written on labels but I am sure there are other names. Do you know of a source where I could learn more about this?

When I did a search of Hashimoto’s on google there was a lot of info but no national organization—like the MS society. Is there one? It seems like an awful lot of people have this problem and doctors seem unable to treat it.