Re: Finally got antibody levels!

[Guest guest]

Just got back from the Endo appt. Hubby definitely has Hashimoto's.

Doc put him on 2 tabs of levothyroxine 112 mcg. for 7 days, then go to

1 tab a day. He said it is like watering a plant. If the ground is

dry and you pour a cup of water on it, the ground soaks up the water

and the plant doesn't get any. But if you saturate the ground first

then the plant will benefit. He said we need to saturate the cells

first before the thyroid gets any benefit. He was more technical in

the explanation.... I'm just conveying what I would say in my own

words. LOL

We discussed the possibility of Celiac since sometimes there can be a

connection. Tomorrow he goes in for a blood draw, a celiac panel.

Also, he wants my hubby to go on a gluten free diet for the next 5

weeks and see if we notice any difference with some gastro issues as

that also can be a symptom of celiac or at least gluten intolerance

for some people.

So that is where we stand at this point. I have to do some research

on foods for Hashimoto's (foods to avoid), and how to do the gluten

free diet. This will be a challenge. :-)

Pettez

>

> It's been awhile since I've posted, I've been waiting for the doc's

> office to get the antibody results to me.

>

> I'm the one with the hubby that has the TSH 27.36, reference range is

> 0.4 - 4.5 mIU/L.

>

> His Thyroglobulin Antibodies are 1087, reference range <20 IU/mL and

> the Thyroid Peroxidase Antibodies are >1000, reference range <35 IU/mL.

>

[Guest guest]

1. Thank you, Joan!2. Also, Jim... hubby's gastro symptoms always were very loose all his life. Then he had other symptoms too that are on the *generic* list of celiac or gluten intolerance. I think I read there are 200 symptoms (that can show through the body systems), but a person can show any varied amount of them or even none at all. That is why it is so hard for docs to even think about it as a possibility. But since the Hashimoto's showed up with the thyroid tests, in doing research on it I found the recommendation to also test for celiac. Fortunately, when I mentioned it to the Endo he was fully informed about how many people go undiagnosed, and the association with thyroiditis and/or osteoporosis. He said it was more common than people know and he was all for doing the celiac panel. Hubby is getting the bloodwork done this morning. :-) Meanwhile we are to be on the gluten free diet for 5 weeks till the appt. You could always go gluten free and see if you notice any difference if your doc won't consider the bloodwork. :-)Here are some links I found online, perhaps you can use:

According

to the National Institute of Diabetes and Digestive and Kidney Diseases , thyroid disease could be linked to Celiac Disease. (National Institutes

of Health, gov't. agency)

According

to the National Institute of Arthritis and

Musculoskeletal and Skin Diseases , Osteoporosis is a complication of untreated

celiac disease.

National Institute of Health PubMed website :

CONCLUSION: The data from a Dutch population confirm the association between

Hashimoto's thyroiditis and coeliac disease. Screening patients with

Hashimoto's thyroiditis for coeliac disease and vice versa is recommended. Hope this helps!Pettez

[Guest guest]

Hi Pettez,

Lots of good info you found so far, so keep it up...

One thing to keep in the back of your mind is that the blood tests

for Celiacs are not full-proof. They were ordered three times by

different doctors for me over the last decade. Then later I got a

saliva test -ASI- for Adrenals and found it on the gliadin test, but

took over two years to find a doctor competent enough that could read

the results.

You are on the right track. Knowledge is power, power that you can

use to advocate for yourself.

If you don't educate yourself on this disease awful things can

happen. I am just sick, I recently learned that one of my cousin's

daughters (there are lots of cousins as my parents have 19 siblings

between them.) had RAI for low thyroid function post partum. It

didn't kill her gland, but now she is experiencing dry mouth and dry

eye problems. This girl is only 22 yrs old with a eight month old

baby. If you don't take an active role and advocate for yourself,

you'll be SORRY!.

BTW, her mom told me that all the doctors assured them that taking a

nuke pill was safe, like its a common practice,nothing, similar to

candy. She thinks doctors treat thyroid similar to when the answer

was to cut out the tonsils for a sore throat back in the 60's or

70's. Needless to say, I am still flabbergasted!

Another cousin who had the goiter surgery about ten days ago is doing

fine. In fact, they say it wasn't a goiter at all, it was a somewhat

solid flat mass. They had to take the right side of her thyroid

gland because it was attached to the large growth. The growth was

larger than a softball if you flatten it. Thanks, everyone for your

prayers.

Bj

>

> 1. Thank you, Joan!

>

> 2. Also, Jim... hubby's gastro symptoms always were very loose all

his

> life. Then he had other symptoms too that are on the *generic*

list of

> celiac or gluten intolerance. I think I read there are 200 symptoms

> (that can show through the body systems), but a person can show any

> varied amount of them or even none at all. That is why it is so

hard

> for docs to even think about it as a possibility. But since the

> Hashimoto's showed up with the thyroid tests, in doing research on

it I

> found the recommendation to also test for celiac. Fortunately,

when I

> mentioned it to the Endo he was fully informed about how many

people go

> undiagnosed, and the association with thyroiditis and/or

osteoporosis.

> He said it was more common than people know and he was all for

doing the

> celiac panel. Hubby is getting the bloodwork done this morning. :-

)

> Meanwhile we are to be on the gluten free diet for 5 weeks till the

> appt. You could always go gluten free and see if you notice any

> difference if your doc won't consider the bloodwork. :-)

>

> Here are some links I found online, perhaps you can use:

>

>

> According to the National Institute of Diabetes and Digestive and

Kidney

> Diseases <http://digestive.niddk.nih.gov/ddiseases/pubs/celiac/> ,

> thyroid disease could be linked to Celiac Disease. (National

> Institutes of Health, gov't. agency)

>

> According to the National Institute of Arthritis and

Musculoskeletal and

> Skin Diseases

>

<http://www.niams.nih.gov/Health_Info/Bone/Osteoporosis/Conditions_Beh

av\

> iors/celiac.asp> , Osteoporosis is a complication of untreated

celiac

> disease.

>

> National Institute of Health PubMed website

> <http://www.ncbi.nlm.nih.gov/pubmed/17461476?dopt=Abstract> :

> CONCLUSION: The data from a Dutch population confirm the association

> between Hashimoto's thyroiditis and coeliac disease. Screening

patients

> with Hashimoto's thyroiditis for coeliac disease and vice versa is

> recommended.

>

>

> Hope this helps!

>

> Pettez

>

[Guest guest]

Jim,

Here are a few links on Celiacs testing - and why the antibodies tests aren't reliable.

http://www.celiacdisease.net/testing

http://americanceliac.org/diagnosis.htm

http://www.celiac.com/articles/32/1/How-accurate-are-blood-antibody-tests/Page1.html

HTH,

Bj

>> Thanks so much, Pettezz. I am actually awaiting results of bloodwork and I know celiac was one of the things that was to be checked. I wonder how many different types of blood tests must be done to rule out celiac? I will use your links below, and I may try the gluten free diet as you said. Thanks again, and good luck to your husband.> Jim> > > Re: Finally got antibody levels!> > > 1. Thank you, Joan!> > 2. Also, Jim... hubby's gastro symptoms always were very loose all his life. Then he had other symptoms too that are on the *generic* list of celiac or gluten intolerance. I think I read there are 200 symptoms (that can show through the body systems), but a person can show any varied amount of them or even none at all. That is why it is so hard for docs to even think about it as a possibility. But since the Hashimoto's showed up with the thyroid tests, in doing research on it I found the recommendation to also test for celiac. Fortunately, when I mentioned it to the Endo he was fully informed about how many people go undiagnosed, and the association with thyroiditis and/or osteoporosis. He said it was more common than people know and he was all for doing the celiac panel. Hubby is getting the bloodwork done this morning. :-) Meanwhile we are to be on the gluten free diet for 5 weeks till the appt. You could always go gluten free and see if you> notice any difference if your doc won't consider the bloodwork. :-)> > Here are some links I found online, perhaps you can use:> > > According> to the National Institute of Diabetes and Digestive and Kidney Diseases , thyroid disease could be linked to Celiac Disease. (National Institutes> of Health, gov't. agency)> According> to theNational Institute of Arthritis and> Musculoskeletal and Skin Diseases , Osteoporosis is a complication of untreated> celiac disease. > National Institute of Health PubMed website :> CONCLUSION: The data from a Dutch population confirm the association between> Hashimoto's thyroiditis and coeliac disease. Screening patients with> Hashimoto's thyroiditis for coeliac disease and vice versa is recommended. > > Hope this helps!> Pettez>