Re: New Dr., new hope

[Guest guest]

Hi ,

I am on mtx, pred, and Remicade. I have found that when I take increased

doses of mtx and pred that I do have some nausea. It eases up after you get

used to the meds though. It does for me anyway. Any little change in my

meds throws me for a loop for a couple of days. The Remicade has been a

wonderful treatment for me. I have not had any side effects that I know of

from it. I just get a headache about 15 minutes after my treatments and the

nurses will give me Tylenol before I leave the hosp and that works for me.

Other than that, I have not had a prob with it. I noticed improvement the

day after the first treatment and it has been pretty good so far.

I am glad that you finally found a dr who takes you and your RA seriously.

It is so important to have a competent dr with this disease. I hope the

change in meds helps you and that the sickness goes away soon.

Love and Hugs

Stacey in PA

[Guest guest]

Hi ...

I've started off with 20mg of Prednisone and I've had it decreased and

then increased and then decreased, etc. so many times that I can't count

them... the only thing I ever experienced was just a bit more pain when the

dosage was decreased.

I've never had a problem with the methotrexate - I started off with the

tablet form and now I take the liquid injectible in a glass of either orange

or apple juice along with my other meds.

I am a fairly " heavy " coffee drinker and haven't experienced any problems.

But then everyone is different and reacts to things/meds, etc. in a

different way.

Stay safe...

-- [ ] New Dr., new hope

Hello everyone, it's . Sorry I haven't posted much in a while,

but it's a busy season for all of us I guess and I just can't keep up!

ANYWAY, I'm happy to report I have a new Dr. He took one look at me

and said " you have SERIOUS rheumatoid arthritis for someone your

age " . Like, duh!! (I'm 46, by the way). He says my wrists have

pretty much spontaneously fused, and the tendons which hold the pinky

and ring finger up on my right hand have severed, so he's sending me

to a hand surgeon for a consult. FUN!

Went yesterday for xrays. The xray tech, a woman my age, was shocked

at my films. They were pretty gnarly...literally! :-(

Re: meds. He's keeping me on Mthx., upping my Prednisone from 5 mg

day to 20 mg a day, and once he gets approval from the HMO, is going

to start me on Remicade.

Have any of you tried Remicade? I'd be interested to hear your

stories.

ALSO... since I increased the prednisone, I've been vomiting every

day! He told me to make sure I eat first before I take the meds, and

I think maybe coffee could be affecting me too, so I'm going to cut

that out. Has anyone else experienced nausea with increased doses of

prednisone and/or methotrexate?

Happy Holidays to all of you!

in CA

[Guest guest]

In a message dated 12/7/02 7:05:15 PM Central Standard Time,

music_chick2@... writes:

> Have any of you tried Remicade? I'd be interested to hear your

> stories.

>

hi, i tried remicade. it worked wonderful my first treatment i was dancing

when i came home. i walked my dog for miles. i felt as good as before i

became ill. it was great!!!!! by the 3rd infusion i started with rashes, it

has also sparked an old infection that was dormant for 25 years. after that i

stopped taking it. good luck kathy in il

[Guest guest]

I ,too, tried remicade in a study. I was only getting the 3 mg dose which for

my size was not enough. I would get sleepy after the infusions.....and my

legs have swollen up from the knees down ever since the first infusion. Also

if you have any bp or heart problems it may cause you more harm...I have HBP

which I take meds for and while I was getting the infusions my BP would go

way up and stay up till later in the day....Good luck ...I hope it works for

you. Judy in AZ

[Guest guest]

,

I¹m happy to hear that you¹ve found a doctor that is treating you. Both

prednisone and mtx can cause nausea. Do you take the mtx at night?

Sometimes this helps if you sleep through the side effects. If the

prednisone continues to cause nausea, please call you doctor and let him

know. Maybe he will increase your dose slower or can give you something to

help the nausea.

Oral mtx gave me a lot of GI side effects but the injections didn¹t, so

maybe taking it by injections will ease your nausea.

a

> Hello everyone, it's . Sorry I haven't posted much in a while,

> but it's a busy season for all of us I guess and I just can't keep up!

>

> ANYWAY, I'm happy to report I have a new Dr. He took one look at me

> and said " you have SERIOUS rheumatoid arthritis for someone your

> age " . Like, duh!! (I'm 46, by the way). He says my wrists have

> pretty much spontaneously fused, and the tendons which hold the pinky

> and ring finger up on my right hand have severed, so he's sending me

> to a hand surgeon for a consult. FUN!

>

> Went yesterday for xrays. The xray tech, a woman my age, was shocked

> at my films. They were pretty gnarly...literally! :-(

>

> Re: meds. He's keeping me on Mthx., upping my Prednisone from 5 mg

> day to 20 mg a day, and once he gets approval from the HMO, is going

> to start me on Remicade.

>

> Have any of you tried Remicade? I'd be interested to hear your

> stories.

>

> ALSO... since I increased the prednisone, I've been vomiting every

> day! He told me to make sure I eat first before I take the meds, and

> I think maybe coffee could be affecting me too, so I'm going to cut

> that out. Has anyone else experienced nausea with increased doses of

> prednisone and/or methotrexate?

>

> Happy Holidays to all of you!

>

> in CA

>

>

>