Jan

[Guest guest]

Jan,

I hope you can feel much better soon. Those long drives can be trouble.

Would you please tell your physician what you told us here regarding

being a " 2 " on the pain scale with the prednisone for a few days. If

your doc won't help you try to get down to a low level of pain more

often, please find someone else. You deserve to live a life with as

little pain as possible.

Re: [ ] Sjogren's Syndrome Support, SjSWorld

>

> Hi Tess: I see you are up tonight also. I made a quick trip to my

daughter's (440 miles round trip)leaving Thanksgiving morning and

returning Friday afternoon. I am paying for it today and especially

tonight. My shoulders and hip have really been on me today. The only

relief (somewhat) is the Theracare pads on the painful spots.

Fortunately, there have been several $1.00 coupons lately and my local

supermarket doubles coupons all the time plus they have been on sale

lately. The only real relief that I've had recently though has been the

little over a week that I was Predisone for the Asthma infection. There

were 4 days that my pain was down to a 2 and I thought I had died and

gone to heaven it's been so long since I have had a painfree day.

> I went into this site you posted and found quite a bit of interesting

reading. I have had dry eyes for several years now especially at night

when it wakes me up. The feeling is that there are grains of sand in my

eyes and gooey matter. Don't have it as often now as I used to but it's

one of the things I mentioned to my old doctor and he said (repeatedly

on many things) " I don't see anything. You look fine. Maybe if you went

on a diet and exercised more these things wouldn't happen to you. " It's

probably not SJS but I am curious as to what it might be. Maybe he's

right.

> I have an appointment with my dr on the 16th. I have been having a

lot of pain in particularly my left breast and sometimes, the right one

seems to ache in sympathy.

> I haven't posted much lately because by the time I go through my mail,

I am so tired and hurting that I have to struggle up from the chair and

walk around a few minutes to be able to stand up straight and then go to

bed.

> Keep your fingers crossed for me. Tomorrow, my ex-son in law is

coming over and hopefully hooking up my new(ha ha, one year old)printer

that has not been compatible with my computer as it only has Windows 95.

It will be great to print things out and keep them. I try to print a

few things at work(take my own paper) but have been so busy lately,

haven't been able to take the time.

> I'm glad you had a nice thankgiving with your family. Did you make

your Pecan pie. I was able to make a Pumpkin pie but wasn't able to

make the Caramel Pecan pie that I wanted to. I did make the giblet

gravy and wild and brown rice stuffing that my daughter always requests.

> Guess I will close now and to you and all the " family " - hope you have

a painfree night and an even better tomorrow. Love, prayers, hugs, and

positive thoughts. Jan in CA +/:=)