Guest guest Posted April 23, 2008 Report Share Posted April 23, 2008 The Empty Chairc Project Will See that Your Photo Has a Place in the Audience at the May 5-6 CFS Advisory Committee Meeting in Washington ImmuneSupport.com 03-29-2008 Advertisement (http://www.immunesupport.com/library/ad.cfm?ad_imp_id=7685315 & redir=2 & article_i\ d=8785 & client_id=1) Even if you or your support group and family can’t attend physically, you can take a place in the audience and SHOW YOUR SUPPORT for more ME/CFS research funding, at the upcoming federal CFS Advisory Committee Meeting in Washington, DC, on Monday and Tuesday, May 5 & 6. ACT NOW to have your photo & name take a proud place at the meeting in one of the empty chairs. Just contact the (_Empty Chairc Project coordinators_ (http://pandoranet.info/emptychairproject.html) ) at the PANDORA website. Write " Empty Chair Project " in the e-mail subject line, and they’ll do the rest. For details about the upcoming meeting, and the CFSAC’s work to advise the Department of Health & Human Services about ME/CFS research, funding, and patient needs, _click here_ (http://www.immunesupport.com/library/showarticle.cfm?id=8744) . Awareness of Patient ‘Invisibility’ Equals More Visibility Sponsored by PANDORA in collaboration with a growing number of other advocacy groups, the Empty Chairc Project demonstrates that support for the CFS Advisory Committee’s work extends far beyond those who are able to travel to Washington for its meetings. In particular, a large photo-attendance can help emphasize the importance of recording or broadcasting the CFSAC's reports so that " invisible " patients everywhere can hear them. Go to the _PANDORA site_ (http://pandoranet.info/emptychairproject.html) to see photos of the Empty Chair section from the last CFSAC meeting, and link to the websites of other organizations participating in the project. And when you're there, link to the CFSAC meeting archives, because HHS is counting clicks as a way to gauge community interest. To Be Continued Until… Quote Link to comment Share on other sites More sharing options...
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