Brain Herniation - Chiari I Malformation

[Guest guest]

I am forwarding an edited version of emails I exchanged with

DB privately on

oral use in exacerbation of Chiari I Malformation after an

auto accident. Chiari I

is a brain herniation where part of the hind brain extends

out of the skull into the

spinal cord space. Symptoms include headache, limb tingling

and weakness,

dizziness, misperception of speech and among others.

Garnet

Articles on Chiari I Malformation:

Chiari I Malformation

HTTP://www.eMedicine.com/radio/topic149.htm

Prospective Analysis of Self-Perceived Quality of Life

Before and After

Posterior Fossa Decompression in 112 Patients With Chiari

Malformation

With or Without Syringomyelia

http://www.medscape.com/viewarticle/500844

==========================

I just subbed my sister to the DMSO list because her 29 yo

daughter,

just got back an MRI taken Nov 17th showing Chiari I

Malformation, a

tissue herniation or protrusion of brain tissue down into

the spinal cord

space at the back of the head. It cannot be determined from

MRI whether

it is congenital in origin, as many are, or induced by the

trauma.

Apparently many people who have this congenitally do not

report symptoms

until they are in the 40's or 50's.

The auto accident was July 18th. The headaches, tingling,

blurred

vision, sensing blurred speech when she is speaking clearly

among other

symptoms did not go away with PT or time so finally on Nov

17th, four months

after the accident they ordered an MRI, which she got the

results of late

last week.

Surgery to open up more space for the herniated brain tissue

is a possibility.

He will likely order another MRI with contrast media to

further elucidate the condition.

I gave my sister the low down on oral and topical use, the

general effects and

how it is used in stroke and closed head injury as well as

other types of

trauma.

========================

DB's response:

Having had some sleep now and time to think about it, here

are my

thoughts...

Do not start out with oral DMSO. The first reason is that my

detox from DMSO

was rather severe and I was already pretty clean. The second

reason is that

after I got all my good effects from DMSO, the last couple

of times I took

it, I had a short but distinct woozy head feeling from only

a small dose 1/8

teaspoon. She certainly doesn't need anything like that

right now. Also, if

she is on any meds at all, the DMSO will potentiate them

possibly too much.

I think she should start out with pure MSM, my preferred

source being

Lignisul from www.msm-msm.com. The detox is much less

severe. It will still

potentiate other meds but not as badly. My experience is to

start with only

250 milligrams and work up from there. Let the detox effects

be her guide

for increasing dose. If she hits a wall of too much detox,

stop for 3 days,

drink a lot of pure water (no chlorine or fluoride) and

start over at the

last dose that didn't give her a problem.

When I did this back in '99 I had to eventually work up to

40 grams total

daily taken in 3-4 divided doses to control my pain. I have

no way of

knowing if this will work for her but I do know it will be

much less harsh

than DMSO.

About the myelogram- if she is having headaches now, oh boy

just wait until

she has a myelogram! There is just nothing like it. My head

pounded for a

solid week and the only treatment was massive intake of

coffee. Even though

I've quit coffee now, I would say that if is she is not a

coffee drinker, if

she is scheduled for a myelogram, she better start learning

how to drink

coffee and I mean BLACK. The trick is not to get hooked for

life. Coffee is

horrible for the adrenals and heart. It's not just the

caffeine either, it

has everything to do with the way coffee is processed. I'm

still learning

about that but already know enough to know it's true. Tea

and Yerba Mate or

other sources of caffeine are not as bad for you as coffee.

Nevertheless,

only coffee will do for the aftermath of a myelogram.

While I doubt what happened to me from my myelogram will

happen to her at

her young age, nevertheless be on the lookout for the exit

of disease from

her spinal column after the iodine injection. If bumps and

boils come up, or

worse (mine was WORSE!) then she needs to be aware that

disease has already

taken root, although that is possibly a separate issue from

this condition.

I would for now relegate the use of DMSO to whatever

external use that may

be of benefit to her. No matter what has been said, there is

a difference, a

BIG difference to me, of using it externally versus taking

it internally.

After she has throughly detoxed with MSM, then maybe she can

move on to oral

DMSO. At that time I would start with no more than 1/8

teaspoon in OJ on an

empty stomach. (BTW, never take it with milk.)

That's about all I have for now.

RE: Need Help with Brain Herniation

I will let you know what they find out from the Neurologist

tomorrow. I

would not be surprised if he orders a myelogram.

I think what she needs help with are the general dynamics of

oral dosing of

DMSO. Just someone who knows the ins and outs of that in

general can give

them enough info to then try it out and combined with what

they find out

from the Neurologist and further testing they can then

decide which way to

go and how to use DMSO if at all.

ransley wrote:

> Wow! This is one heck of a thing here! I'm humbled that

I am asked for >

advice but I gotta tell ya- this is sooo outta my league.

Reading that link

> showed me that pretty quick. But I'll sure try to help.

There is one

> question that sticks straight up to me right away: Is

she going to have a

> > Myelogram? MRI's are not detailed enough for all spinal

problems and the

> > next text is usually a myelogram. I'll bet it's next on

the agenda for

her.