Guest guest Posted January 16, 2008 Report Share Posted January 16, 2008 Hi guys! I am so glad you brought this topic up. I am only 4 months out of decompression surgery and on top of the car accident post op I have been emotionally up and down. I am now facing problems with the accident and horrible pain that some days I am on the floor with my soft blanket sobbing. I just feel some days that I am alone (other than you guys). I really would like to get responses on this topic as well and I would love to email you privately as well if you want. I think this is something that affects most people dealing with these medical issues. My faith is usually pretty strong and even if I had bad days it would only last a couple till I was spiritually and emotionally back on track...until this all happened 4 months ago. Now I have good days and bad days. But it scares me to think I can not pull myself out of this some days. It takes me longer. Thanks for sharing and I look forward to seeing if and what others have to say about this and how they deal with it. Gentle hugs, Joleen decompressed 09/07/07 ACM 1 10mm Car accident 3 weeks post op herniated disks occipital neuralgia whiplash Post concussion syndrome In a message dated 1/16/2008 3:30:54 P.M. Mountain Standard Time, jkgrigg@... writes: Kathy wrote: It helped me a great deal to go to a " chronic conditions " counselor. Kathleen's response: Thanks so much for responding Kathy. I thought this might spark a topic on the board. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2008 Report Share Posted January 16, 2008 Kathy wrote: It helped me a great deal to go to a " chronic conditions " counselor. Kathleen's response: Thanks so much for responding Kathy. I thought this might spark a topic on the board. I think everyone wrote me privately, which helps tremendously as well. I know sharing how I feel with someone else that isn't family helps considerably. Like you, I have made many friends through the boards over the years, it's my second home. I think Sally grabs her cup of morning coffee and heads for the computer. I don't drink coffee, so I make lots of mistakes early in the morning I hope others feel free to discuss other aspects of living with a chronic illness. Kathleen Diagnosed with CM/hydrocephalus 1990, decompression/shunt. Since diagnosed with craniocervical instability, Ehlers Danlos, and Tethered Cord Syndrome, surgery for everything but EDS since 1998. http://chiariconnectioninternational.com/ I heard like many of you early on that I was " depressed " , " stressed " and needed some " valium " and I would be all better. Fortunately too I have fired a good many doctors and only keep around me the ones that will do what the specialists ask and support and want to learn about our conditions. As Kathleen, Sally, Ray and some others on this listserv know I have been extremely suicidal and besides the counselor it has been this support group that not only saved my life but has kept me going. I appreciate all of them and the message to anyone else is that is what we are here for. BUT get medication and medical help when you need it AND do not always assume everything is chiari. I have almost died twice in the last 5 years from conditions unrelated to chiari. But treatment was delayed because they thought it was chiari. Prayers for everyone, Kathy Quote Link to comment Share on other sites More sharing options...
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