Re: pain meds after decompression?

[Guest guest]

Hi,

I and two of our children have had surgery with the TCI gang and

they were very good at having our pain managed. They have pain

managemnet people as well as the PA's that do nothing but ACM/TCS

recoveries.

I had a bit of a time getting the right meds but not long and when

they found the right dose and type I had little pain. My children

had very little pain from the git-go as it was in peds. and those

nurses were all over the pain, making sure it went AWAY!

in WA

>

> Hello everyone

> I know this has come up before, but I wasnt really

> paying attention then. LOL.

>

> I am having decompression @ TCI on the 22nd. Does anyone

> know what kind of pain meds they send you home with?

> I am terrified of being in pain. I am getting more nervous

> as it gets closer.

>

> I know they only send you home with enough for a month &

> thats no problem, but I am already on something pretty

> strong for pain so I was was afraid it wouldnt keep me out

> of pain or if they come & talk to you about what you need &

> what you already take.

>

> Any help would be great!! Thanks guys. Tina in Fla. ACM,TC,EDS

>

>

[Guest guest]

hello!

tci is really good at the pain meds-they have been for me! i also

have gone to get surgeries there where i was on high doses or

morphine-so they had to give me higher doses of morphine after

surgery-and if that didnt work they gave me a different medication-i

think it starts w/ a " d " but is not demerol bc i think demerol is

below morphine. anyway, so they do a very good job handling your

pain. you just have to wait for them to give it to you-which is a

pain.

they do ask you what you are on when you go for pre-surgical testing

so they are aware of what doses of things you will need for your

stay. so they should be aware of the high doses of pain meds you are

on. i wouldnt worry about that too much. but like i said, when you

are in pain afterwards & you are still hurting & you need more, they

will give you more. sometimes, they give you what they think you

will need but i guess it is a guessing game-you never really know.

now, when you leave they give you enough for a few weeks-a month of

whatever you were on. you then have to go to your own pain doctor &

they will take over your pain management.

good luck!! i hope this helps.

hugs,

shannon 26, east stroudsburg, pa

apr '01 decompression in philly

feb '03 revision of decomp & fusion to c4 (done in same surgery) @ TCI

jul '03 vp shunt placed @ TCI

jan '05 shunt valve replaced @ TCI

1/31/07 fusion revision down to c6

>

> Hello everyone

> I know this has come up before, but I wasnt really

> paying attention then. LOL.

>

> I am having decompression @ TCI on the 22nd. Does anyone

> know what kind of pain meds they send you home with?

> I am terrified of being in pain. I am getting more nervous

> as it gets closer.

>

> I know they only send you home with enough for a month &

> thats no problem, but I am already on something pretty

> strong for pain so I was was afraid it wouldnt keep me out

> of pain or if they come & talk to you about what you need &

> what you already take.

>

> Any help would be great!! Thanks guys. Tina in Fla. ACM,TC,EDS

>

>

[Guest guest]

,

I think the med you were tryin to think of might be Dilaudid.

I was on that post-TC surgery at TCI 2 months ago.

Virginia

4 plc fracture of the C1, Tethered Cord, " acquired chiari (not acm),

5.7 mm " and atlanto occipital dislocation due to equestrian accident,

2004

TC surgery, Nov. 2007 at TCI. CC Fusion upcoming.

>

> hello!

>

> tci is really good at the pain meds-they have been for me! i also

> have gone to get surgeries there where i was on high doses or

> morphine-so they had to give me higher doses of morphine after

> surgery-and if that didnt work they gave me a different medication-

i

> think it starts w/ a " d " but is not demerol bc i think demerol is

> below morphine.