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Is this normal or has anyone ever dealt with this from a doctor?

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I have Chairi Malformation and had decmopression in 10/07. I'm doing

okay, but still have some issues from that. My regular MD, has

decided after months of testing that I also have another seperate

issue going on and is sending me to a rhumetologist. It took me

almost 2 months to get an appointment to get in to see this guy

because he is suppose to be great, but then the paperwork arrives

today before the visit and one of the papers that I'm suppose to sign

says something like " we are not a disability doctor and we do not

treat people who are trying to get disability " at the end of this

statement it says I have not and WILL not file for disability " and

I'm suppose to sign it. I'm having a very hard time with this.

I have not filed for disability and I feel that it's far to early to

know what lies ahead, but I just don't think that I can sign that.

Anyone else ever dealt with anything like this trying to get in to

see a doctor?

I'm stunned because I thought the goal was to help patients get well

or at least feel better, but this has added lots of stress! UGH!

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Sounds to me like they do not want to deal with the paper work that

filing for disability makes for them. It took me 16 years before I

finally filed for SSDI. I am now going through the system and there

is alot of paper work. It has been over a year now and still no

answer.

I don't know if I would sign that. I am questioning if he can even

do that. Please keep this on the board as I am interested in this.

Let us know what you decide to do.

Take care,

Debi

chiari, hydrocepahlus, PTC, NMH, kinked brainstem, scarring

2 decompressions, VP shunt, 6 shunt revisions

>

> I have Chairi Malformation and had decmopression in 10/07. I'm

doing

> okay, but still have some issues from that. My regular MD, has

> decided after months of testing that I also have another seperate

> issue going on and is sending me to a rhumetologist. It took me

> almost 2 months to get an appointment to get in to see this guy

> because he is suppose to be great, but then the paperwork arrives

> today before the visit and one of the papers that I'm suppose to

sign

> says something like " we are not a disability doctor and we do not

> treat people who are trying to get disability " at the end of this

> statement it says I have not and WILL not file for disability " and

> I'm suppose to sign it. I'm having a very hard time with this.

>

> I have not filed for disability and I feel that it's far to early

to

> know what lies ahead, but I just don't think that I can sign that.

> Anyone else ever dealt with anything like this trying to get in to

> see a doctor?

>

> I'm stunned because I thought the goal was to help patients get

well

> or at least feel better, but this has added lots of stress! UGH!

>

>

>

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