Question Chiari Precautions during Non Chiari Surgery

January 7, 2008

Hi All,

I'm having a laparoscopy for endometriosis on Friday. This surgery is what

brought on my chiari in 98, over extending my head to intubate me.

SSSOOOOOOOO I'm the DOCTORS WORST PATIENT NIGHTMARE! I'm laying there, and

their all

suited up and sterile and I'm asking if they have to pee or get a drink.

I'm so anxious. They did it last year and it was SSOOO painful that I would

have rather had another decompression over that anyday. This is my 5th one I

think. I think it's so painful, because I've been on and off and on about

every drug to help with the chiari headaches (Now awaiting TC and possible CI

surgery). They had maxed me out on all pain meds, nausea meds and one nurse

held each head and got in my face and said, look at me, now breathe, in and

out. It was so awful! They were going to admit me, because it was 12:30 in

the morning by this time and then it let up so they sent me home.

I had nosebleeds as a child when excited, stressed, whatever and they would

spray like a can of paint suddenly, or bleed for hours. This week I've had 2

which lasted about 45 minutes each. I was at a friends babysitting her 3

year old and sprayed her bathroom with blood. The pharmacist said it could be

from my med's, but I have such bad headaches and the doctor said it's not

good, but I feel such relief after I have one. I don't know if anyone else

experiences these. I just feel like it's got to be chiari related.

So now, I'm sitting here in pain, because I've had a migraine or chiari

headache for a weak and cant take any nsaids to prevent bleeding.

I also have epstein-barre virus that causes mono and have been sleeping 17

hours a day. Today was good I've been up about 9 hours!

Any input is appreciated. I don't know if I should be doing anything to

prevent injury to my neck.

Thanks for any words of wisdom.

Hope your having a great day.

Sorry it's so long.

Amy

**************Start the year off right. Easy ways to stay in shape.

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