TCS symptoms..Will I ever feel better?

[Guest guest]

Hi everyone,

I have not posted in quite some time but I always read the post and

answer any post privately that I think I can help.

Anyway, my question is....I had TCS 9 weeks ago. I still have so much

back and leg pain, I cannot stand up straight, and in the past few

weeks

I cannot get enough sleep (12-14-16+ hours a day). My head hurts so

bad

all of the time so I just want to sleep to not feel the pain. This

past

weekend I kept feeling like I was going to pass out when I would stand

up, I also would see stars and feel so light-headed. So, tonight after

being again soooo fatigued.. I checked my blood pressure: When sitting

it was 98/60 and when I stood up it dropped to 88/-. That certainly

explains the light-headedness.

My question to ya'll is " how long did it take you to feel better

agin? "

I am not sure if I had posted after my MRI last month but it showed

that

I had an area that appeared to be from a spinal leak and that I had 2

disk (one that they supposedly fixed) that is buldging??

I sent my films to TCI (my local family doctor freaked when he saw the

MRI results and called me from home to tell me to call TCI ASAP). I

sent the films about 1 week before Christmas and I have not heard a

thing yet. I have emailed my nurse and Dr.B. Not sure if they were out

for the Holiday's or not.

I am not sure if my symptoms are from this " Probable slow leak " or if

they are from something else.

Gosh, it is so frustrating... I want to feel better so bad. I feel so

bad for my family, first they have to deal with me being gone when I

have surgery, then I don't get better?? My poor husband is such a

saint. I could not have made it this far without him.

Dr.B wants me to have CCF but I am so afraid of just feeling worse.

Well, sorry for the lengthy post. I guess I should post more instead

of

trying to fit weeks into one post! ;0)

Thanks to all of you and my prayers are ALWAYS for everyone of ya'll

to

feel better and the doctors to " cure " us!

God Bless and rest pain free as possible,

Mindy