Guest guest Posted January 8, 2008 Report Share Posted January 8, 2008 I've got something wierd going on. I've always had vision problems, which may or may not be chiari related. My chiari is mild and mostly asymptomatic right now, but I also have a syrinx, which is narrow, and was probably caused by a combination of a mild spinal cord injury +maybe the chiari. There was no CSF block on my MRI, and if there is one now I would be suprised because nothing feels different. I take daily cyclobenzaprine, which can affect vision when used long term, but this has come on sort of suddenly, and I thought I'd ask if this sounds familiar to anybody because there is such a wealth of information/experience here. I'm pretty sure my neuro's going to draw a blank for the cause of this, and my eye doc will probably blame it on the meds. I've been doing great lately...I have all my range of motion (for a change), and have been working out, cutting back on meds (a good thing). But when I wake up in the mornings for the past week or 2 my vision is so blurry that even my +3 reading glasses don't help much. They make text (like this) legible but not anywhere near clear. My vision is *really* blurry. As the morning goes on my vision will lose the blurriness, and text will look like letters again without my glasses, instead of just a fuzzy grey blur. It's like I wake up with 20/600 vision and my eyes can't focus and by noon it's back to 20/100 or 20/200, which is more normal for me. Does this sound familiar to anybody? I wanted to get some input before I mention it to the docs. Rozanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2008 Report Share Posted January 9, 2008 I would love to hear answers to this as well. I have had blurry vision this past week and another time. Both times my headache was very, very bad. I remember walking and seeing things looking " smokey " and unclear. It is weird and scary! It went away last time, so I didn't mention it to the Dr's and figured it was from my intense headache. But it happened again this week, hopefully will stop again on it's own! Thanks, May you receive life's many blessings., Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2008 Report Share Posted January 9, 2008 ---You may be having migrain H/A along with Chiari H/A. I remember long time ago I started with auras and cracked vision,that were brought on by stress I beleive. Watch your diet,and eat nuts,grains,berrirs,along with your regular diet,and see if eating natural foods don't help,Lots of luck...Jerry in Carolina... Re:suddenly very blurry vision > I would love to hear answers to this as well. I have had blurry vision this past week and another time. Both times my headache was very, very bad. I remember walking and seeing things looking " smokey " and unclear. It is weird and scary! It went away last time, so I didn't mention it to the Dr's and figured it was from my intense headache. But it happened again this week, hopefully will stop again on it's own! > Thanks, > > > > May you receive life's many blessings., > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2008 Report Share Posted January 9, 2008 I suffer from incredibly painful headaches. Unfortunately, blurry vision is just one of the side effects of this. Is your pressure elevated? Do your hands tremor? in Bethlehem, PA Jerry wrote: > From: " " <peck430@... <mailto:peck430%40yahoo.com>> > To: < > <mailto:%40yahoogroups.com>> > Sent: Wednesday, January 09, 2008 7:52 AM > Subject: Re:suddenly very blurry vision > > > I would love to hear answers to this as well. . . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2008 Report Share Posted January 9, 2008 Before my decompression....I would turn my head and my vision would be so blurry that I could not drive or read until it passed.....my vision progressively got worse. If I raised my head upward I could see better. Weird huh! Another good reason to have decompression by a qualified doctor. [ChiariConnectionIn ternational] Re:suddenly very blurry vision > > > I would love to hear answers to this as well. . . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2008 Report Share Posted January 9, 2008 Hi everyone, Please have your eyes checked for papilladema (swelling of the optic nerves) by an ophthalmologist if you are experiencing visual problems. If you have or suspect you have PTC or high intracranial pressure, you should be monitored for papilladema. (Can go hand-in-hand with chiari-related conditions) Symptoms can include blurry vision, visual disturbances with floaters, enlarged blind spots, loss of peripheral vision, gray or black-outs. Increased CSF pressure on the optic nerves can cause permanent vision loss and with the all of the other things we have to worry about, going blind should not be one of them. I personally was diagnosed first with papilladema by my ophthalmologist which lead to my chiari-related diagnosis (TCS, CCI, Cranial Settling) I have had to undergo Optic Nerve Sheath Surgery to save my vision as I was losing it very rapidly. BUT I have regained most by getting the treatment I needed. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2008 Report Share Posted January 10, 2008 My Chiari symptoms are mild (well, not to me but certainly compared to others here). My main problems are neck/head pain and lots of dizziness. But my vision drives me crazy. I started having blurry vision over a year ago and went to the eye dr. I explained that it came on suddenly and wasn't all the time, but mostly late afternoon into evening. They told me it was age. (I am 43). When I was diagnosed with Chiari, a local neurosurgeon suggested I see an opthomologist, which I did. I again explained it wasn't constant, but came on suddenly. He actually knew something about Chiari, and said that although age may be a big factor (as well as lots of time on the computer), Chiari might also be involved. He also noticed that one pupil was larger than the other, but " behind my eyes " (he used much more technical terms) was fine. I could be reading or watching tv, then wham! I can't see too much. Some times it is so severe, I just give up and go to bed. I have noticed, by looking at certain lights, that I also have some double vision. I am going to TCI (yeah!) at the end of the month and am REALLY HOPING that this is Chiari related. Oh, I also gave up driving at night because of this. Hope this helps. > > I've got something wierd going on. I've always had vision problems, > which may or may not be chiari related. My chiari is mild and mostly > asymptomatic right now, but I also have a syrinx, which is narrow, > and was probably caused by a combination of a mild spinal cord injury > +maybe the chiari. There was no CSF block on my MRI, and if there is > one now I would be suprised because nothing feels different. I take > daily cyclobenzaprine, which can affect vision when used long term, > but this has come on sort of suddenly, and I thought I'd ask if this > sounds familiar to anybody because there is such a wealth of > information/experience here. I'm pretty sure my neuro's going to draw > a blank for the cause of this, and my eye doc will probably blame it > on the meds. > > I've been doing great lately...I have all my range of motion (for a > change), and have been working out, cutting back on meds (a good > thing). But when I wake up in the mornings for the past week or 2 my > vision is so blurry that even my +3 reading glasses don't help much. > They make text (like this) legible but not anywhere near clear. My > vision is *really* blurry. As the morning goes on my vision will lose > the blurriness, and text will look like letters again without my > glasses, instead of just a fuzzy grey blur. It's like I wake up with > 20/600 vision and my eyes can't focus and by noon it's back to 20/100 > or 20/200, which is more normal for me. Does this sound familiar to > anybody? > I wanted to get some input before I mention it to the docs. > Rozanne > Quote Link to comment Share on other sites More sharing options...
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