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Re: CCF on Feb 1st

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Dearest and fellow Chiarians,

The only pharmacy the PA's suggested to us was Great Neck Chemists Inc. of New

York as they are capable of mixing the medications which are not

available at other pharmacies.

The hard collar is what they will prescribe so bring that one with you and

hopefully it will fulfill their requirements.

My son Mike had decompression, rods and fusion on November 1 and is doing

well! The previous passing out spells, vomiting until he passed out, and

headaches are a thing of the past! We are amazed at his progress! Because he

also has Ehlers Danlos, he has more flexibility than we expected.

You are in our prayers!! Remember, you are in the BEST hands!!

May your days be filled with much love, kindness, compassion, understanding,

and relief!

With kindest remembrances ~ Namaste,

CIM, CCI, FCS, EDS, TCS (repaired 10/07), slipped disc between C5-6

Mother of 3 with CIM, TCS, and other related issues

monied54 wrote:

Hi everyone!

I will arrive in NY on 1/30, pretest 1/31 and CCF surgery on 2/1.

Hopefully will be at VH but will call to be sure. I am trying to get my

list together for everything I need to pack and just had a couple of ??

Anyone else going to be there at this time? My mom and I really

appreciated meeting everyone when I had my TCS in August!

I have both a soft and hard collar. Will I need to take both or is one

preferred over the other?

I also can't find the name of the pharmacy we used the last time. They

told my mom that this time we can have delivery to the VH but I need to

have the name & # so RXs can be sent. Does any one happen to know which

ones are close?

Getting kinda anxious... Hoping for the Best!

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