Bad scare

[Guest guest]

I had bad scare this past week with the MS. I did not take the

interferon LAST MONDAY because I " thought " I was going into another

relapse. Legs numb from waist to toes and actually could NOT walk. Then,

fine again... off and on like this a few days. Well...I was right it

seems... Friday it " hit hard. " Good thing not weekend... I could not

have survived another ER visit like the one when I had relapse in Sept.!

So my husband called Neuro and rushed me there... Somehow, don't recall

exactly, I did somewhat walk into the office. Then the stomach spasums

hit... I could not sign in. Husband had to forge my name, ha!... while I

wobbled like those weebles (that don't fall down... only I DO!) to their

bathroom. I ended up on the FLOOR like the toilet was an altar, God only

KNOWS WHO " used it last " ...but you KNOW you are bad off when YOU DON'T

CARE!...you just hang your head over and barf anyway! The husband came

in... get this, now ain't MEN a piece of work... he ACTUALLY SAID,

" hey...are you ok??? " I looked up.... chin dripping... said, " DO I LOOK

OK, my legs can't feel, I can't walk...???!!! " And he went out and

CLOSED THE DOOR!!! Then the nurse pushed past him, and the nurse came

in. " Oh my! She's on the floor. " She wanted to get me a wheelchair. Now

get this. I COULD NOT walk at that point. And loonie me (at this point)

said... " NO! " She said, " Let me just get you a wheelchair honey, you

can't walk. " She was right... I could not walk, yet REFUSED a

wheelchair! For some reason, at this point...it offended me! I think it

was realization that they were right. I could NOT walk. So, I did the

normal reaction...for me... I Told them I COULD walk, and " I AIN'T

SICK! " I think I even told them all NOTHING was really WRONG with me! I

can't believe I said all that! (I think I MIGHT...mind you...just MIGHT

be in just a tad bit of " denial stage " with this disease...do ya

think???) Anyway...I think they begin to drag me back to the exam room

at that point! You know...me NOT being sick and all...and NOT needing a

wheelchair!

Anyway... I can find humor now, but really it wasn't then. I was scared.

And it was upsetting. They took me straight in needless to say. The

Neuro said I am in a bad relapse, or whatever the word for it is. She

took me off the Avonex. Took blood to see if I built up antibodies...

She wanted to admit me to the hospital THEN... (ADmit or COMmitt

....either one would have been appropriate at that point as I was acting

so loony!) She wanted me in the Hospital. I panicked. I hate hospitals I

told her. I started sobbing at that point. Like a kid of course. Very

emotional about Hospital stays anyway! She agreed, she hated them too

and that she did not blame me for not wanting to go. (God bless this

woman, this made me feel sane once more!) (Though I did think it

humorous/strange at the time, her being a DOCTOR and all, that she said

SHE didn't LIKE hospitals either???) So she let me go home, and set up

with Insurance & Home Health is going to start the IV SolMedrol from my

house (I think that is what it is called...for 4 or 5 days.Can't

remember how its spelled.)

So...given my state of mind in the Neuro's office Friday...I did not ask

many questions I SHOULD have asked.

So I will ask you all...

given my Arthritis history, and condition of my spine, knees, ankles,

and " sever bursitis of hips " ... what is this huge-o dose of IV streoids

going to do to me??? What about my bones? I am so worried about all

this. So worried. What about WEIGHT??? I need to gain at LEAST 20 lbs.

But anymore weight than that, and the arthritis doctor said would be bad

for the bad knees/patellas and spine, etc.

I wanted to question her on why all the " attacks " or relapses or

whatever, so CLOSE together now...and not gettig better inbetween...but

forgot to. But I remember her saying that she would discuss " another

medication for the MS " with me after the IV's.

So who has had the IV SolMedrol or IV STEROIDS over the 5 day period by

drip or whatever or however they do it? I know you all will tell me

stuff I NEED to hear... in order to make MY OWN CHOICE on this. I always

heard bad things about steroids with degenerative disc and bone in

spine, etc. And yet I do sometimes take the low dose Pred. or Medrol

dose pak. But NEVER this IV deal!

..... so.... this was my week.... how bout you all??? I use to grieve

that this MS had made my life SO boring. Well.... I THINK I may have

changed my mind on that observation!

Susie