Fw: The whole lack of thirst, sweating, heat intolerance, cold-loving thing

[Guest guest]

My apologies to the admin. <blush> My caffeine hadn't kicked in yet; I did

know better, too. Here's the post I intended as a reply to all of you.

LIZARD ;-)

> Oh, God.

>

>

>

> I am shaking!! Thank you all for your input. I have to tell that

one of the

> opinions was from TCI, and I have to commend Dr. B for being

thorough in

> answering my questions, but as I think about it now, the body temp

thing has

> only really been an issue for the past couple of years, I think.

Should we

> go back?? Dr. B seemed convinced that there was no reason to

proceed with

> surgery at the time, which was about 3 years ago.

>

>

>

> So, the lack of temp control/non-sweating/non-thirsty thing. Is this

a fluid

> obstruction or a brainstem compression issue? Anyone know? What

about the

> language issues? Any of you with children who have ACM see this in

your

> kids? Any of you adults who started having symptoms start having

problems

> with verbal expression?

>

>

>

> Apparently, the coat thing is beyond a hatred of wearing them. My

16 yo is

> the same way as what you all described. Drew actually complains of

getting

> hot and is red in the face and hot to the touch.

>

>

>

> Thank you all so much for your thoughts and experience. This is

scaring the

> hell out of me, but at last, I feel like I'm getting some answers,

too.

>

>

>

> LIZARD ;-)