Guest guest Posted December 23, 2002 Report Share Posted December 23, 2002 <PRE>merry christmas karen and welcome. i'm kathy 43 and been on disability for 2 years in june. sure doesn't seem like it sometimes. i have inflamatory spondyloathropy, reiters, fibromyalgia, glaucoma and diabetes. i am on methotrexate. just started that a couple months ago. i've been on enbrel remicade, prednisone. they seemed to help but not long enough and then the side effects made it impossible to take them any longer. you'll find lots of information and a lot of great people here. kathy in il Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2002 Report Share Posted December 23, 2002 Dear ...welcome to our family...a dearer group of folks you will never find. My name is Tess, 51, I live in NW Oregon, 4 grown children and 2 grandbabies. I look forward to getting to know you. Merry Christmas & A Healthier 2003 For Us All! Love... Tess Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2002 Report Share Posted December 23, 2002 Hey there karen... Glad to see that you made it... E-mail me with your e-mail addy in the message... I'm having probs sending mail to you... Pami Private addy: 33157@... Check out my " e-store " at http://pamelataylorefreestores.com Shipping is DIRECT from the warehouse to you... Credit Cards accepted. OWNER of the Genealogy Group: Northerns You don't have to be a to join - many other families are linked. ALL E-MAIL SCANNED BY AVG 6.0... NO BUGS HERE... WHERE I LIVE NOW... WHERE I USED TO LIVE... WHERE I WOULD LOVE TO LIVE... -- [ ] Hi everyone I am new My name is Hi My name is , 37 I live in Florida, I was diagnosised with RA as well as Degenerated Rhuemtiod Arthritis back in 97. All the ligaments and tendons are gone in all my joints. I have it in my feet, hands, legs, arms, shoulder, and fingers. I worked a fulltime job less then a YR ago. My arth was bad but within the past 8 months I have gotten so bad that I have had to stop working and will be on disability as of Jan 03. I live alone and has made ever possible method to live alone. I have alot of friends who help to take care of me and fill in the holes where I can't I am on Celebrex and Methotraxate and the Dr has talked about me trying Remicade by Feb 03. I am glad to meet all of you Merry Christmas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2002 Report Share Posted December 23, 2002 gigik12@... thanks for the call this afternoon it was a real treat for me. --- " alex33157@... " <33157@...> wrote: > Hey there karen... > Glad to see that you made it... > E-mail me with your e-mail addy in the message... > I'm having probs sending > mail to you... > Pami > > > Private addy: 33157@... > > Check out my " e-store " at > http://pamelataylorefreestores.com > Shipping is DIRECT from the warehouse to you... > Credit Cards accepted. > > OWNER of the Genealogy Group: > Northerns > You don't have to be a to join - many other > families are linked. > > ALL E-MAIL SCANNED BY AVG 6.0... NO BUGS HERE... > > > WHERE I LIVE NOW... > > WHERE I USED TO LIVE... > > WHERE I WOULD LOVE TO LIVE... > -- [ ] Hi everyone I am new My name > is > > > > Hi My name is , 37 I live in Florida, I was > diagnosised with RA > as well as Degenerated Rhuemtiod Arthritis back in > 97. All the > ligaments and tendons are gone in all my joints. I > have it in my > feet, hands, legs, arms, shoulder, and fingers. I > worked a fulltime > job less then a YR ago. My arth was bad but within > the past 8 months > I have gotten so bad that I have had to stop working > and will be on > disability as of Jan 03. I live alone and has made > ever possible > method to live alone. I have alot of friends who > help to take care > of me and fill in the holes where I can't > > I am on Celebrex and Methotraxate and the Dr has > talked about me > trying Remicade by Feb 03. > > I am glad to meet all of you > > Merry Christmas > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2002 Report Share Posted December 28, 2002 > From: " Betsy Greer " <BETSY@...> > You say that your RA started with your hands and wrists, I'm > wondering how long before it moved into the other joints? My hands are also > the worst affected, the pain and stiffness gets better at times but never > completely goes away. However, for the last couple of months I've been > getting kind of minor soreness in several joints which get sore (nothing > major, just sore) then after about a week or two it goes away and moves into > another spot. I keep wondering if it's just in my head now, since the > hand's stay but the other ones seem to jump around. This is similar to the way my RA started last January. It moved from joint to joint. I can't remember specifically what pattern it followed, but one joint would hurt for a day or two, then another would take over. At first I had only one swollen finger, then gradually the others joined in, all except my left ring finger, which has never been swollen. (Was it protected by my gold rings?) Finally it seemed to settle in my hands, shoulders, and knees. Sue in NC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2002 Report Share Posted December 29, 2002 That does sound similar, and after the last couple of painful days, I'm pretty convinced it's not in my head! My hip has been so sore for a couple of days that I can't sit for very long. What were your initial blood tests like? Positive or negative or a combination of the two? Betsy Re: [ ] Hi everyone I am new My name is > From: " Betsy Greer " <BETSY@...> > You say that your RA started with your hands and wrists, I'm > wondering how long before it moved into the other joints? My hands are also > the worst affected, the pain and stiffness gets better at times but never > completely goes away. However, for the last couple of months I've been > getting kind of minor soreness in several joints which get sore (nothing > major, just sore) then after about a week or two it goes away and moves into > another spot. I keep wondering if it's just in my head now, since the > hand's stay but the other ones seem to jump around. This is similar to the way my RA started last January. It moved from joint to joint. I can't remember specifically what pattern it followed, but one joint would hurt for a day or two, then another would take over. At first I had only one swollen finger, then gradually the others joined in, all except my left ring finger, which has never been swollen. (Was it protected by my gold rings?) Finally it seemed to settle in my hands, shoulders, and knees. Sue in NC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2002 Report Share Posted December 30, 2002 > From: " Betsy Greer " <BETSY@...> > That does sound similar, and after the last couple of painful days, I'm > pretty convinced it's not in my head! My hip has been so sore for a couple > of days that I can't sit for very long. > > What were your initial blood tests like? Positive or negative or a > combination of the two? At first my rheumy diagnosed me with frozen shoulders and diabetic limited joint mobility syndrome and sent me to physical therapy, which was sheer agony. The diabetic syndrome was supposed to be painless, though, and I was having unbearable pain which had also spread to my knees. I kept calling him about the pain, and when he finally realized, I think, that I might have RA, he got me in to see him in two days and had bloodwork done. My rheumatoid factor was 170 (normal < 20); sed rate was 105 (normal 0-30); and C-Reactive Protein was 12.2 (normal 0.0-1.0). So in my case my diagnosis was definite. I am lucky in that respect to be diagnosed correctly about six months after the disease started. Last month my sed rate was 12 and C-Reactive Protein was 0. I hope you get a diagnosis and some help soon. Good luck. Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2002 Report Share Posted December 30, 2002 I'm glad you got a pretty quick diagnosis so they could start proper treatment, that in itself must have been somewhat of a relief, even though the diagnosis is definitely not something anyone would wish for. I'm kind of worried that because my blood tests are fairly " normal " that they're not going to figure anything out and I'll just have to live with it for who knows how long? Luckily, my internist is very sympathetic and is determined to get me some kind of relief. Also, because my right hand thumb joint is already enlarged, I'm worried that if I don't start some kind of treatment that it's just going to get worse. I've already lost some use of that hand because of it. Oh well, enough whining for today, thanks for the post, any information is helpful at this point! Have a good day! Betsy Re: [ ] Hi everyone I am new My name is > From: " Betsy Greer " <BETSY@...> > That does sound similar, and after the last couple of painful days, I'm > pretty convinced it's not in my head! My hip has been so sore for a couple > of days that I can't sit for very long. > > What were your initial blood tests like? Positive or negative or a > combination of the two? At first my rheumy diagnosed me with frozen shoulders and diabetic limited joint mobility syndrome and sent me to physical therapy, which was sheer agony. The diabetic syndrome was supposed to be painless, though, and I was having unbearable pain which had also spread to my knees. I kept calling him about the pain, and when he finally realized, I think, that I might have RA, he got me in to see him in two days and had bloodwork done. My rheumatoid factor was 170 (normal < 20); sed rate was 105 (normal 0-30); and C-Reactive Protein was 12.2 (normal 0.0-1.0). So in my case my diagnosis was definite. I am lucky in that respect to be diagnosed correctly about six months after the disease started. Last month my sed rate was 12 and C-Reactive Protein was 0. I hope you get a diagnosis and some help soon. Good luck. Sue Quote Link to comment Share on other sites More sharing options...
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