Guest guest Posted January 6, 2008 Report Share Posted January 6, 2008 On Behalf Of tnl919@... I am told...once a chiarian, always a chiarian. I went to the chiari web page today....it lists all symptoms associated with chiari, but what about following surgery? Do you still have the same symptoms, different symptoms or what to expect....can anyone offer some guidance and comfort? Any feedback is greatly appreciated. I still get so sick....I just do not know what to expect or think anymore.... Kathleen's experience; Boy, this is a rough one. All of us are so different. We've had different surgeries and results. My first two surgeries in 1990 left me with 24/7 headaches, I was told I didn't have chiari anymore, I just had constant migraine issues. Well, when other neuro type symptoms kicked in, I decided a second opinion was necessary, that only took me seven years. Since then I've been told I have Chiari, Hydrocephalus, EDS, TCS, so who is to say what is left from what. I am still very prone to headaches, never was before 1990 though. I think it is safe to say we will all have some type of neck soreness. I've talked with others that had surgeries in the early 1990's and they seem to have symptom flairs with weather fronts still. There are still those very lucky that walk away and start feeling better the second they leave the hospital, and never look back. I think the more conditions involved create more of a complex situation, more symptoms..... Once you have had any surgery, where ever it is, it's not the same. As I've heard, you can always take it away, you can't get it back. Think hard when going into the OR, make sure it is a step that you are willing to live with later. I know I was ready every time I've gone into the OR, and I don't regret it, tried of it, hell yes. Kathleen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2008 Report Share Posted January 8, 2008 Bravo!! Bravo!! Kathleen. I was told that surgery was a treatment and not a cure by Dr. B at TCI, therefore it is so very wonderful when people do not have to look back and experience no more pain. I for one am not one of those that were so fortunaly! It sucks I agree!! Kathleen wrote: On Behalf Of tnl919@... I am told...once a chiarian, always a chiarian. I went to the chiari web page today....it lists all symptoms associated with chiari, but what about following surgery? Do you still have the same symptoms, different symptoms or what to expect....can anyone offer some guidance and comfort? Any feedback is greatly appreciated. I still get so sick....I just do not know what to expect or think anymore.... Kathleen's experience; Boy, this is a rough one. All of us are so different. We've had different surgeries and results. My first two surgeries in 1990 left me with 24/7 headaches, I was told I didn't have chiari anymore, I just had constant migraine issues. Well, when other neuro type symptoms kicked in, I decided a second opinion was necessary, that only took me seven years. Since then I've been told I have Chiari, Hydrocephalus, EDS, TCS, so who is to say what is left from what. I am still very prone to headaches, never was before 1990 though. I think it is safe to say we will all have some type of neck soreness. I've talked with others that had surgeries in the early 1990's and they seem to have symptom flairs with weather fronts still. There are still those very lucky that walk away and start feeling better the second they leave the hospital, and never look back. I think the more conditions involved create more of a complex situation, more symptoms..... Once you have had any surgery, where ever it is, it's not the same. As I've heard, you can always take it away, you can't get it back. Think hard when going into the OR, make sure it is a step that you are willing to live with later. I know I was ready every time I've gone into the OR, and I don't regret it, tried of it, hell yes. Kathleen --------------------------------- Looking for last minute shopping deals? Find them fast with Yahoo! Search. Quote Link to comment Share on other sites More sharing options...
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