Re: Post CCF/decompression and Return of Headaches -- Part 2

[Guest guest]

hello!

i have had ccf/decompression & unfortunately my head still hurts.

actually, i had a revision to my fusion last jan 31st & for about a

month & half my headaches improved-but then another month & half & i

was where i was before the surgery-headaches sucked & hurt like-well-

you know!

but the question was if we were still vunerable to low/high pressure-

oh yeah i am! i swear everytime something is coming i know & hurt

really bad. i might as well just stay in bed those days but im not

allowed. grr. my parents want me to be up & around but then my mom

will say she doesnt know how i deal w/ my headaches-well, i dont but

i am not allowed to go to my room & hide! anyway, i am off point.

there is really nothing i can do to make dealing with that any easier-

i take morphine IR & morphine long lasting both 30 mg. usually i

just take my IRs a lil earlier than i normally would bc it is just

too awful to bare (sp?)

the other question was about sleeping. the only thing i can do is

take lunesta to get me to sleep bc i notice if i dont take it or dont

fall asleep quickly & then stay asleep the headache seems to break

through very easily. i do take both of my morphine's at bedtime but

still have a hard time sleeping.

i dont know if this helped at all. but figured i would put my input

in just in case it helps someone.

good luck!

hugs,

shannon 26, east stroudsburg, pa

apr '01 decompression in philly

feb '03 revision of decomp & fusion to c4 (done in same surgery) @ TCI

jul '03 vp shunt placed @ TCI

jan '05 shunt valve replaced @ TCI

1/31/07 fusion revision down to c6

>

> Morning, Group Members --

>

> Thank you to all who have responded to my post. I will eventually

> get around to answering you individually -- just takes time.

>

> I am wondering -- how many of you have had the ccf/decompression

and

> find that you are still vulnerable to low and/or high pressure

> headaches?

>

> My headaches really ramp up something awful during the night and

> nothing I can think of to try helps. Plus, I have also noticed

that

> when I go to bed at night, all of a sudden my nose becomes very,

very

> congested -- but not any other time during the day, only at night

> when I lay down. I even sleep with a cool mist humidifier on me at

> night.

> Sometimes it'll help if I get up and out of bed, but not usually.

>

> These headaches are like a sinus type headache as far as location,

> but, are definitely not sinus related.

>

> I would sure appreciate any input on how other group members are

> dealing with these kind of headaches. I know there have been a lot

> of posts recently re: post op headaches, unfortunately I just am

not

> able to search them over and read them -- time at computer is very

> limited still -- just intensifies my headaches.

>

> Grma Lee

>

[Guest guest]

I have been decompressed not detethered yet, not

fused.

I get/got headaches almost every day, not as bad as

before decompression, but they said I would not get

full relief anyway. I can tell when a storm is

approaching or a barometric change is in progress,

even before the weatherman says so. At least, for me,

once the storm breaks, I feel better, in fact, a lot

better. But, the approach is excruciating.

Sometimes they feel like sinus, and sometimes not, but

becuase I also have sinus problems and I am a

migraineur, it is hard to know where to throw the

dart. I was taking a migraine med almost every day,

becuase what started as a pang/stab over my eye would

later become a migraine. This has been a multi-year

problem, before and after decompression.

But, surprise, surprise. After much delaying on my

part, I am trying Topamax as a preventive, and it is

working. I am still only at 25 mg a day, I have an

active sinus infection and winter cough, but I am only

getting one headache a week requiring medication.

Okay, now to my point and why it fits your question.

The headaches I got that pushed PAST the Topamax were

definitely on days of weather changes.

Hanna

> I am wondering -- how many of you have had the

> ccf/decompression and

> find that you are still vulnerable to low and/or

> high pressure

> headaches?