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Boston area Chiarians?

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I might be spending lots of time in the Boston area

(Waltham) over the next year and wondering if there

are dcos in teh area who are savvy about Chiari,

tethered cord and EDS neurologists, pain specialists,

maybe pcp, allergists, etc?

Thanks,

Hanna

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I'm in western massachusetts, about 1-1/2 hrs from Boston.

I don't know for sure if I have ACM, but from everything I've

read, I do. People have told me that every person with Spina

Bifida does in fact have ACM (I have Spina Bifida Cystica).

Not sure of any others, but there is a

meeting in Pittsfield MA each month. I know that's all the way across

the state from you, but it's not a bad place to start. Keep asking around

on here too! My wife and I were going to go to it this month, but I just

realized I have to work.

Never say never! Can't is a " four letter word! "

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