New to Chiari

[Guest guest]

In recent events and many hospital visits, it was discovered that I

have a severe case of chiari 1. When I told my children and my

parents, my family was stunned. NOT knowing or EVER hearing anything

of this disorder in the past, we all did our share of research. Upon

our findings, we had become extremely startled with what we found. I

am a 36 year old mother of 5. I have dealt with and faced some

unknown health issues over the last fifteen years. Upon the last

emergency room visit, I was given a CAT. The ED Dr. had come to me

with concern. Not quite knowing how to approach me with the diagnosis

that he saw, he referred me to a neurosurgeon. I was stunned. Afraid

and un aware of what I was facing, I went to one doctor after another

until I was finally told about my condition. The final Doctor that I

have seen was one that was referred to me by several other doctor's.

Upon my visit to his office, I was clearly nervous and afraid. I had

awaited for this answer for a very long time, and I now know why I

dealt with such anticipation. Dr Oro' of Aurora Medical Center,

in Aurora,Colorado is one of the countries TOP renoun Chiari Dr's. I

am lucky to have found him. With the questions that I have, and the

symptoms that I suffer from, I know that I am NO LONGER alone.

However, I have NOT yet chosen to have any sort of operation, I am

skeptical and VERY AFRAID. I was told that my symptoms WILL continue

to get worse if I do not resolve the issues at hand. But the fear of

what may happen, and what might NOT happen are constant on my mind.

Does any one have ANY hope for me???