Left to hang out to dry

[Guest guest]

I feel like I was just left hung out to dry by the NS that did my surgery. I am

devistated right now. Since the surgery I have had so much going on with me,

and he has no answers for me. My internet friends have been more helpful. The

physical therapist I go to has told me that I should have been in PT long ago.

Since I was not told to go right after my accident, he thinks I should have gone

right after surgery, but the NS did not think so.

When I went back there for my follow up appointment, my appointment was rushed

because he had an engagement to go to. I appreciate his schedule and I was

going to be at the same event that night. That night he saw me, and what I am

like EVERYDAY!! After about 30 - 45 minutes, I cannot hold my head up without

extreme pain. His office called me at 9am the next day and he wanted a CT, but

I was already on the plane to come home. I had the CT done the next day at

home. That report was normal. Two weeks ago he ordered a flexation X-Ray, that

too came back normal.. however I question the abilities of the X-ray tech and

the radiologist. It just did not feel right.

I just want to share with you all what made me feel this way today... Here is

the email that I sent him:

Update:

Hello again Dr.Xxx,

I thought it important to contact you with the latest. I am still using the

Home TENS unit and have wonderful relief from that. I am also using the home

traction unit which, again is a good thing. However, over the weekend I got a

headache, the first one since the surgery. I also had a return of dizzyness,

radiating arm pain on the right side and twice I began to faint. The headache

is gone but the dizzyness is not.

The new physical therapist is great and seems to be very knowledgable. I hope

he is the answer to the stability issues.

That is my update for now. I hope this is just a temporary thing and it will go

back to what it was just after surgery.

Terri

His response to me:

Thanks Terri. Also, the report on your flexion extension cervical films came in.

They are normal. – X Xxx'

That is all he had to say. am I wrong to feel this way? Before I flew out

there the first time, I felt like I was their only patient. I know that is not

true, but that is the way the staff made me feel. Since surgery, I am more of a

nusience. I have tried not calling just because I did not want to be a bother,

but when I am worried about something, they blow me off. I just want to cry. I

don't know what to do. Thank you to my internet family for always being there

for me. I know that I am not always helpful, but I try the best I can.

A total side note about my Social Security status: The worker called me and

told me that I did not qualify under the federal guidelines because Dr. Xxx

noted that I was recovering. He has no idea what I go through... ugh. I have

been out of work since May 2005 because of my pain and crud... and I couldn't go

to work now even though I would rather be working than sitting at home unable to

do anything. This SUCKS!!!!

What should I do?

Terri