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extreme fatigue in kids with ACM/TCS/EDS

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Hi,

Do any of your children have severe fatigue with ACM/TCS/EDS ?

Our son is 17 and has multiple heart problems due to EDS and we

thought his extreme fatigue was heart related. We had his meds

changed to one with no sedating effect, he's had a stress test, and

the fatigue is still just awful.

He sleeps well at night but still falls asleep anywhere from 4-6

times a day...sitting up, doing school work, in the car, during

movies, anytime. He says he just has no umpf and with 5 brothers

that's pretty amazing....lots of energy around here!

Thanks,

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