Guest guest Posted January 6, 2008 Report Share Posted January 6, 2008 ---------------------------------------------------------------------- ---------- Hi, Do any of your children have severe fatigue with ACM/TCS/EDS ? Our son is 17 and has multiple heart problems due to EDS and we thought his extreme fatigue was heart related. We had his meds changed to one with no sedating effect, he's had a stress test, and the fatigue is still just awful. He sleeps well at night but still falls asleep anywhere from 4-6 times a day...sitting up, doing school work, in the car, during movies, anytime. He says he just has no umpf and with 5 brothers that's pretty amazing....lots of energy around here! Thanks, Quote Link to comment Share on other sites More sharing options...
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