Guest guest Posted January 6, 2008 Report Share Posted January 6, 2008 I am writing to let everyone know that we had the first Chiari Support Meeting today at the Fond du Lac library. This is what we have come up with..... Voss will be the person to contact for information on the group being held in the Eau Clair area. I am sure she will be in contact with the people she already knows in that area. Schultz and Sue and Brauer are going to be in charge of the group being held in Green Bay. They have the list of the people that we know of so far in that area and will be in contact with you. I am in contact with Louise to see if she is willing to join the rest of us in Wisconsin so that we are all working together as one. I also contacted Jeanne to see if she would like me to set something up in Madison. I talked to Sharon (Grammy) and she agreed that would be a good area for us to go for a meeting. I am hoping that everyone working together makes this a big success. We are going to hold an annual meeting at the Fond du Lac library so we can keep all the groups in sync with what we all are doing and if we have ideas for things to bring up in future meetings. The next annual meeting will be in April and I will keep you all informed on when. I am soooooo..... sorry about the directions that were given to the library. I went based on the people there and what they told me. If anyone got lost trying to get there I made sure to write down the proper way to get there. I think we got a lot of good ideas for the groups and what we all hope to see happen with the medical community. If there is anyone that is out there that would like to join a group please feel free to e-mail me and I will get you to the right person. My e-mail address is ceilingtofloorandmore@.... If you also know of anyone that is interested in joining please let them know my address and I will also get them to where they need be. I want to thank all that came to the meeting. Even though it was a get to know you meeting I think we got everyone on the right page for what we are looking for and we got some answers that we didn't have. Thanks again to you all, Ryea Quote Link to comment Share on other sites More sharing options...
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