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Frustrated to Governments Response...CFSAC, May 2008

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Thanks Jan & Charlotte for this, the young man’s testimony was moving and

eloquent. It is indeed excellent to put a “young, male” face to ME/CFS.

This, in fact, was what turned the tide for those with Polio long ago is my

understanding, even though it too was suffered by mostly women. But when

their Association put out ads showing a MAN in the prime of youth felled by

Polio, it really turned things around.

There is such a long history, and not just for PWME, but women with all

sorts of serious diseases, being dismissed as “hysterical” (or whatever the

usual term at the time was). I call it “LMB Syndrome” (Loony Menopausal

Bitch Syndrome)…the disease of misperception that the majority of doctors

have LOL!

I taught Medical Students for ten years, and although the registration has

long been over 50% women, sexism still reigns supreme in medical school. The

students were very grateful to receive at least a few hours’ teaching from a

different viewpoint. Aylwin xox

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