Re: Sick of the run-around with my health

[Guest guest]

,

If I am reading this right, you had your decompression

3 months ago. You might still be healing up from the

surgery. I was told not to make comparisons about pre-

and post- op life until I was a year post-op.

There is a lot of swelling and healing going on that

you cannot see. And the body is having to adjust to

new pathways and structures. It is not a fast

recovery nor is it linear. What feels good to do

today might be miserable tomorrow, then fine again

next week.

I went back to work, half-time at 3 months post-op and

it was a mistake. My symptoms were as bad as before

surgery, but I see now that I was still healing. Over

time, when I stopped pushing myself and rested more, I

started feeling the benefits.

I was 6 months post op before felt my first 'new

normal' but every few months, I had a better, new

normal. It was 2 years before it leveled out.

Even now, 5 years post-op, I rest my head every chance

I get to prevent symptoms like dizziness and

headaches, which I still get sometimes.

BTW, I agree with you about some docs not looking at

old films. Some are just not inquisitive. I think

it's a personality thing, not a doctor thing. I have a

couple of doctors who are very inquisitive. They

appreciate the research I bring with me, they like

that I am well informed, and they are interested in my

old films. But, I have a few others that are not

inquisitive and could care less.

Hanna

--- wrote:

> They are playing with my health. At least that is

> the way it feels.

> I am so sick of being sick and so sick of getting

> told there is

> nothing showing up on tests. I have acquired yet

> more MRI & CT

> results from the hospital here (there was one they

> never gave me

> before), one in Mansfield, OH and one from

> Indianapolis, IN. They

> all three indicate a tumor of some kind and a

> lesion. They also

> indicate Chiari. One of them even shows that I have

> a syrnix. They

> suggested another MRI to evaluate it…In which my

> physician at the

> time, must have thought I was crazy and there was

> nothing wrong with

> me and decided to ignore it.

>

> The doctors all up to now, must think the same and

> have chose to

> ignore my other MRI's. Now, do syrnix's just

> disappear? Do tumors

> just go away? I am at my wit's end. I am not

> wanting anything to

> be wrong with me. I am wanting whatever it is to be

> found and

> corrected. The MRI's after that (after 1007, 1008,

> & 2000) do not

> indicate anything! I just don't get it!

>

> One doctor asked me why I was showing him old

> results. I said, so

> you can find what is wrong with me and why they did

> not see this

> stuff on other MRI's, but they did on these. He

> thought it was

> pointless. No it is not. They can find what they

> are missing now.

> That is what I think. Compare them all. Look in

> the specific areas

> indicated on the other ones to the current ones.

>

> I am sorry for going on like this…I just needed to

> get that out and

> see what you all think. I had the occipital

> decompression

> laminectomy C1 on October 30th, 2007. It did not

> help. I am still

> having major symptoms that I had before. So, there

> must be something

> else there. I am not crazy and I was praying that I

> would feel much

> better. I had myself convinced that I was going to

> feel great! I am

> disappointed. I have had 2 episodes of passing out

> in the last 2

> months. That makes a total of 5 times in my life.

> 2 in 1997, 1 in

> 1999 and the recent 2.

>

> Thank you for letting me vent like this. I could

> write more, but I

> am sick and my head hurts.

>

>

> v

[Guest guest]

Believe me when I say that we have all mostly gone through docs telling us

we are nuts. It is AWFUL. I gave up dealing with ANY local docs and went to

the experts, where I had my surgery. Hanna is right, it took me two years

to recover as well. 3 months is NOTHING. I'm sorry that isn't great news,

but you need to be resting most of the time at this point, in my humble

opinion, if you are feeling terrible. I agree that you need to get more

answers too. I couldn't go back to work for well over six months and even

then it was pretty bad, I just had not choice.

Much love to you!

>

> --- wrote:

>

> > They are playing with my health. At least that is

> > the way it feels.

> > I am so sick of being sick and so sick of getting

> > told there is

> > nothing showing up on tests. . . .